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hi, I'm newly diagnosed with RA. I took Methotrexate for 4 wks but became violently ill and now take Leflunomide along with others. I don't care for my rhuematologist so will be looking for someone new. If I have to spend the rest of my life with this person I figure I need to be comfortable with them. I guess I'm just concerned because I'm scared. I seem to be in pain all the time. I'm tired and afraid I won't be able to continue to work. I love to cook and I can't stand to be on my feet or use my hands. It hurts to hold a magazine or book and turn the pages. The most simple things seem to take so much. It's frustrating, makes me angry at times. I just worry this is what my life will be from now on, or maybe even worse. Any words or wisdom or reassurance out there? Thanks
Hi, Not sure I am doing this right. I am right there with you re: scared of this RA stuff. I started with a fifth's disease DX in July 07. Have had migrating joint pain since then. Eventually it settled to constant in my hands and feet. Hooray...right!? LOL I have tested negative for RA until recently. I was started on hydroxychloroquine and my Rheumy thinks it is possible that I have a false postitive......I will find out in a few weeks. The meds seemed to work for a few days and I was pain free, but am pretty much where I started now 2+ weeks into it. I understood it can take months to actually see the results of hydroxychloroquine so perhaps that was just a fluke...... I agree with you that this is scary. I am scared of the meds, scared of the prognosis and would really rather this just go away! I don't want to be this person anymore....sigh!
Hang in there, it is somewhat comforting to know others are out there although I wish this on no-one. I hope your symptoms clear!
Lieschan
Lieschan, Mom to Max 11, AS, GAD and Ethan T1D
Posts: 1 | Location: Vashon Island, WA | Registered: 12-17-2008
Thanks for your response. I was beginnng to wonder if I would hear from anyone. I'm seeing a new rhuematologist New Year's Eve. I'm hoping she can put me at ease. I had a few good days this week. Funny how you appreciate a few good days. It use to be you would say, "I'm having a bad day" every now and then. Now bad day is the norm and saying "I'm having a good day" is few and far between. But it will get better. I'm having faith. I hope the best for you! I check every few days if you ever need to talk. Happy Holidays!
