Migraine

There was a column in the New York Times about chronic pain sufferers and their caregivers. Hopefully this link will work: Chronic Pain: A Burden Often Shared

I know parts of this rang true for me, especially about the guilt and lashing out.

Found this on The Daily Headache, a blog written by a woman in Seattle who suffers from migraines and chronic daily headache. Her blog entry linking to the NYT article.

Hi MJ,

This is exactly the information and education we talk about on this forum everyday. Is it better coming from the NY Times???

quote:

Originally posted by Nancy Bonk:
Hi MJ,

This is exactly the information and education we talk about on this forum everyday. Is it better coming from the NY Times???

I agree, Nancy, that we talk about it every day. But, imho, every person that is touched by this article; that reads this article and sees themself and isn't here yet, for them, it might just have been the article that they needed just to know that they weren't alone. Hey, whatever works to give more people a fighting chance, I think, as long as the facts are correct, mind you, is wonderful.

Perhaps it also could help a non pain sufferer identify more with what we go through. One step at a time, but, having greater numbers of allies can be a big step. It's worked before in other movements...

Ok, so, I'm talking w/o reading the article. Perhaps I should have done that first. But honestly, I'm in a lot of pain right now, and reading is not something that's coming easy to this muddled brain.

If the NYT article said something absolutely stupid, please disregard my plug for the coverage. (eek)

Nancy, you are absolutely right that this information isn't anything new, that we talk about it on here all the time. My main point in posting it was because it's nice to see some write-ups about it in a large publication. Sort of like that migraine column that one of their writers did a few months ago.

I apologize if my intention was misinterpreted. Jamie put it well, that there are a lot of migraineurs and chronic pain sufferers, as well as their caretakers, out there that haven't found a support network like what we have now. I know I am very thankful both for this forum and for my boyfriend, who shares a lot of the burden of this disease.

MJ, I owe you an apology. My comment was a bit "snarky" and I'm sorry .

The NYTimes article was a good one, and Jamie is right, if it brings more attention to people in pain and their caregivers all the better.

MJ,
Thanks for sharing the article. I agree with what Jamie said. I just can't articulate exactly that at this migraine moment.

quote:

Originally posted by Nancy Bonk:
MJ, I owe you an apology. My comment was a bit "snarky" and I'm sorry .

The NYTimes article was a good one, and Jamie is right, if it brings more attention to people in pain and their caregivers all the better.

No hard feelings, Nancy!

I agree the article was nice to get the word out nationally.

I also looked into the links for the spouses/caregiver support and I think there should be better national support groups for our "support groups" that do not cost money of any kind. The link given in this article for The Well Spouse Assoc. was $25 for an online membership....again to reinforce what everyone else was saying: Thank goodness we have forums like this for support here. I am currently looking as well for support locally for my husband since he does a wonderful job in taking care of me, but he is not computer savvy.