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Migraine Community MyMigraineConnection 4 Partners, Families, Friends chronic pain article in the NY Times|
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Grand Wizard |
There was a column in the New York Times about chronic pain sufferers and their caregivers. Hopefully this link will work: Chronic Pain: A Burden Often Shared
I know parts of this rang true for me, especially about the guilt and lashing out. Found this on The Daily Headache, a blog written by a woman in Seattle who suffers from migraines and chronic daily headache. Her blog entry linking to the NYT article. -MJ my blog: http://rhymeswithmigraine.blogspot.com/ “HOPE CAN GROW FROM THE SOIL OF ILLNESS!” This is the theme of 2008’s National Invisible Chronic Illness Awareness Week in September. Drop by and find out ways to encourage a friend, be encouraged yourself, and spread the word. http://www.InvisibleIllness.com "What will you do, if it does not turn out how you expect?" "I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest  |
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Community Manager Guru  |
Hi MJ,
This is exactly the information and education we talk about on this forum everyday. Is it better coming from the NY Times??? |
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Forum Moderator Wizard  |
I agree, Nancy, that we talk about it every day. But, imho, every person that is touched by this article; that reads this article and sees themself and isn't here yet, for them, it might just have been the article that they needed just to know that they weren't alone. Hey, whatever works to give more people a fighting chance, I think, as long as the facts are correct, mind you, is wonderful. Perhaps it also could help a non pain sufferer identify more with what we go through. One step at a time, but, having greater numbers of allies can be a big step. It's worked before in other movements... Ok, so, I'm talking w/o reading the article. Perhaps I should have done that first. But honestly, I'm in a lot of pain right now, and reading is not something that's coming easy to this muddled brain. If the NYT article said something absolutely stupid, please disregard my plug for the coverage. (eek) Jamie Forum Moderator  |
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Grand Wizard |
Nancy, you are absolutely right that this information isn't anything new, that we talk about it on here all the time. My main point in posting it was because it's nice to see some write-ups about it in a large publication. Sort of like that migraine column that one of their writers did a few months ago.
I apologize if my intention was misinterpreted. Jamie put it well, that there are a lot of migraineurs and chronic pain sufferers, as well as their caretakers, out there that haven't found a support network like what we have now. I know I am very thankful both for this forum and for my boyfriend, who shares a lot of the burden of this disease. -MJ my blog: http://rhymeswithmigraine.blogspot.com/ “HOPE CAN GROW FROM THE SOIL OF ILLNESS!” This is the theme of 2008’s National Invisible Chronic Illness Awareness Week in September. Drop by and find out ways to encourage a friend, be encouraged yourself, and spread the word. http://www.InvisibleIllness.com "What will you do, if it does not turn out how you expect?" "I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest |
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Community Manager Guru |
MJ, I owe you an apology. My comment was a bit "snarky" and I'm sorry
 .The NYTimes article was a good one, and Jamie is right, if it brings more attention to people in pain and their caregivers all the better. |
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Master |
MJ,
Thanks for sharing the article. I agree with what Jamie said. I just can't articulate exactly that at this migraine moment.  Sherry "Be kind, for everyone you meet is fighting a hard battle." ~ Plato c. 427-347B.C. |
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Grand Wizard |
No hard feelings, Nancy!  -MJ my blog: http://rhymeswithmigraine.blogspot.com/ “HOPE CAN GROW FROM THE SOIL OF ILLNESS!” This is the theme of 2008’s National Invisible Chronic Illness Awareness Week in September. Drop by and find out ways to encourage a friend, be encouraged yourself, and spread the word. http://www.InvisibleIllness.com "What will you do, if it does not turn out how you expect?" "I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest |
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Migraine Community MyMigraineConnection 4 Partners, Families, Friends chronic pain article in the NY Times
