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Grand Wizard
Picture of MaxJerz
Posted
Blech, I don't know what's going on, if it's the steroids or what, but today is not a good day.

I'm exhausted. My head hurts. I'm feeling down in the dumps.

My new doc prescribed me a 10-day course of prednisone to try to break this ongoing migraine. Today is day 7. I haven't had a break in the pain, though it did get down as low as a 3 (lower than it ever is on its own or I can get it with abortives). Yesterday it topped out at a 7. The first 5 days the pain was pretty low and it was wonderful, but yesterday and today the pain was back and it's been making me somewhat miserable.

Plus, the insomnia has finally taken its toll, I think, because I'm feeling run down and exhausted today. I want to go home and nap. The steroids also gave me a bit of euphoria and a crazy amount of energy, so coming down from that isn't helping things.

I will say that most of the side effects were more tolerable than some I've gotten from preventive meds I've trialed, which is pretty sad. I just wish I had gotten more of a break in the pain.

Part of me really wonders if I will *ever* be rid of this constant head pain.

I could just use a few hugs today. I can't get myself motivated to do anything, and it just feels too impossible to try to deal with this pain coming back again.

Thanks, guys... Frowner


-MJ

my blog: http://rhymeswithmigraine.blogspot.com/

Why do I capitalize Migraine?

Hope can grow from the soil of illness! http://www.InvisibleIllness.com

"What will you do, if it does not turn out how you expect?"
"I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest
 
Posts: 2276 | Location: western WA | Registered: 06-01-2007Reply With QuoteEdit or Delete MessageReport This Post
Sage
Picture of Cindy
Posted Hide Post
Oh MJ, I wish I had that magic wand for you again. I had so hoped this would work for you. Heart Group Hug Heart Group Hug Heart Group Hug Please take extra good care of yourself this weekend. I know DBF does a wonderful job as does MadCat. But I say heed the call of your nice warm comfy bed if that's what you want.

When will they call about the Botox?

Group Hug
Cindy
 
Posts: 1244 | Location: Orinda, CA (San Francisco Bay Area) | Registered: 01-10-2008Reply With QuoteEdit or Delete MessageReport This Post
Grand Wizard
Picture of MaxJerz
Posted Hide Post
Thanks for the hugs, Cindy. I should hear next Friday from my doc's office to find out if the Botox has been approved or not. My appointment is scheduled for the following Monday, 6/9, so at least it's not that far from now.

DBF has already agreed to make me some special diet-friendly brownies this weekend. Heart

Just a few more hours and it's the weekend!!


-MJ

my blog: http://rhymeswithmigraine.blogspot.com/

Why do I capitalize Migraine?

Hope can grow from the soil of illness! http://www.InvisibleIllness.com

"What will you do, if it does not turn out how you expect?"
"I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest
 
Posts: 2276 | Location: western WA | Registered: 06-01-2007Reply With QuoteEdit or Delete MessageReport This Post
Sage
Picture of nutmegan
Posted Hide Post
MJ - I feel so bad for you, honey! I really hoped this would work too! Here's Group Hug Group Hug Group Hug gentle soothing hugs. Be extra nice to yourself and hooray for DBF. Thank him from us for taking such good care of you! Hang in there!

Heart Megs


Free our brains from migraine pain
my blog: www.meganoltmanfreemybrain.typepad.com


 
Posts: 1408 | Location: New Jersey, USA | Registered: 12-23-2007Reply With QuoteEdit or Delete MessageReport This Post
Maven
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MJ,

Here's some sympathetic hugs coming your way: Group Hug Group Hug Group Hug

I've avoided the prednisone for a while, as the "roid rage" got me one time, and I didn't like it AT ALL! My neuro & I joke about it now.

I'm hoping you get to stay cool, quiet and in the dark comfort of your bed all weekend. I'll be sending healing thoughts your way.

Rebecca
 
Posts: 513 | Location: coastal South Carolina | Registered: 01-19-2007Reply With QuoteEdit or Delete MessageReport This Post
Maven
Picture of justgrateful
Posted Hide Post
Oh MJ,

Group Hug Heart Group Hug I am so sorry this has been so rough. I was really hoping this would work. Try to relax with DBF tonight and know that I am thinking of you!!

I keeping my fingers crossed for the botox Fingers Crossed Hang in there!!

HeartDar
 
Posts: 791 | Location: Southern California | Registered: 12-16-2007Reply With QuoteEdit or Delete MessageReport This Post
Community Manager
Guru
Picture of Nancy Bonk
Posted Hide Post
Hi MJ,

How ya doing? Any better? I'd love to have that wand and give it a big old wave right over your head, just make it all go away.

Heart
 
Posts: 2708 | Location: New York | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
Forum Moderator
Wizard
Picture of JamieHOST
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Hi MJ!

Just poking my head in to cheer you on! You can do it- I'm sending my super booster rocket power across the country to make it happen!

No? Too cheesy? Ok, well, how about "I hope you're hanging in there, just know we're all thinking of you!" Does that sound more like it?

Either way, you've got the support. Group Hug


Jamie
Forum Moderator


 
Posts: 1902 | Location: north carolina | Registered: 01-12-2007Reply With QuoteEdit or Delete MessageReport This Post
Grand Wizard
Picture of MaxJerz
Posted Hide Post
Cindy, Megs, Rebecca, Dar, Nancy and Jamie, you ladies are the best. Thanks for your hugs and well wishes.

I left work early today. I didn't have anything pressing to do, my boss had taken the afternoon off and the sun came out. So I went home and laid down on the couch with my book. I can't say my head's feeling better, but I'm feeling less down in the dumps, so that's good.

While I was home, my doc called (personally!) to give me my bloodwork results from last week. Looks like it is all normal, with maybe "a hair" of metabolic acidosis from the Topamax. While I had him on the phone, I told him how I was doing with the prednisone. He was disappointed I hadn't gotten better relief, but encouraged me to finish the taper and give him a call if I have any problems. We're still on track for the Botox in a week from Monday (insurance allowing Fingers Crossed).

He also thanked me again for coming to my appointment last week so well-prepared. I'm going to send him and his office staff a thank you card, since I've been treated better there than I have anywhere else before and I want to make sure they know it.

So now it is the weekend, I just have three more days of prednisone taper to go. DBF is making us some delicious pork stir fry for dinner and has plans for brownies this weekend as well. And I plan to rest and take it easy!

Thanks again for the boost. You all helped me get through the day! Heart Heart I'm going to lay back down shortly.


-MJ

my blog: http://rhymeswithmigraine.blogspot.com/

Why do I capitalize Migraine?

Hope can grow from the soil of illness! http://www.InvisibleIllness.com

"What will you do, if it does not turn out how you expect?"
"I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest
 
Posts: 2276 | Location: western WA | Registered: 06-01-2007Reply With QuoteEdit or Delete MessageReport This Post
Forum Moderator
Guru
Picture of LauraHOST
Posted Hide Post
MJ,

I'm glad to hear things are looking up for you. Here's some extra Group Hug's for you to add to your stock pile.

I'll be hoping and praying that the Botox gets approved. I'm so excited this doctor is working out for you, MJ. That's wonderful!!


Laura
Forum Moderator

***You're welcome to enter your birthday, etc in the Celebrate folder so we can party with you!! =) ***

 
Posts: 2539 | Location: Virginia Beach, VA | Registered: 05-17-2007Reply With QuoteEdit or Delete MessageReport This Post
Forum Moderator
Wizard
Picture of JamieHOST
Posted Hide Post
Sometimes "mental health days" are the best things in the world- doing something that feels good for you, and take care of you! Glad you were able to read and do what YOU wanted to do!


Jamie
Forum Moderator


 
Posts: 1902 | Location: north carolina | Registered: 01-12-2007Reply With QuoteEdit or Delete MessageReport This Post
Sage
Picture of Cindy
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MJ good for you for going home yesterday. You needed the calm and quiet home had to offer. What an added bonus you were home when the doctor called. Sounds like you've got yourself a gem there. When he sees someone so diligent in being prepared I'm sure it helps him be willing to go the extra mile too.

Take care this weekend.

Cindy
 
Posts: 1244 | Location: Orinda, CA (San Francisco Bay Area) | Registered: 01-10-2008Reply With QuoteEdit or Delete MessageReport This Post
gwp
Sage
Posted Hide Post
I hope today is a better day!

Gret
Gretchen in Mississippi
 
Posts: 1399 | Location: Mississippi | Registered: 03-25-2007Reply With QuoteEdit or Delete MessageReport This Post
Grand Wizard
Picture of MaxJerz
Posted Hide Post
It is a better day, Gret - thanks for checking in on me. I got out of the house for a while, and even though my head is now pounding it was worth it to enjoy the day for a little while.


-MJ

my blog: http://rhymeswithmigraine.blogspot.com/

Why do I capitalize Migraine?

Hope can grow from the soil of illness! http://www.InvisibleIllness.com

"What will you do, if it does not turn out how you expect?"
"I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest
 
Posts: 2276 | Location: western WA | Registered: 06-01-2007Reply With QuoteEdit or Delete MessageReport This Post
Forum Moderator
Supreme Guru
Picture of dragondroolHOST
Posted Hide Post
Group Hug Smooshes. Loads and loads o' smooshes!

Glad you're feeling better.



Dragondrool
Forum Moderator


~~8=:>>>>
 
Posts: 3335 | Location: Montana | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
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