Migraine

I just don't know what to do with myself. I am on day 11 with this migraine. A few weeks ago I had called my doc about a 7 day mig. He gave me 3 days worth of injections. It finally broke with my last dose of med, just to return a few hours later. So in reality, this has been at least 21 days, but I am positive even more than that. I don't honestly want to know that exact timeframe.

Since it restarted after that rescue med, I CANT break it. I have called my doc, but he is not coming across with anything helpful. I have been in the ER the past 2 nights and that didn't even help the pain with the IV meds. I am at my wits end. I am so miserable I can hardley stand being in my own skin.

I am spending so much time in bed and I can hardley funtion. I just don't feel as though I can keep going on like this. I am so exhausted. Plus there is not a thing I can do but push on with already spent energy. I can't figure out how to get any energy or strength back. Plus, I just got wrote up at work because of the absences, so I have to find some way to become funtional.

At this point, i feel as though every ounce of strength is gone. I am completely exhausted, yet I still have this gigantic mountain if front of me left to climb. I can't handle anymore, but I don't have a choice. I have no clue where to turn now or what to do. I will probably go back to the ER again tonight and see if there is something new they can try. I am extremely exhausted and even terrified.

Thanks for listening guys.

I think you're right, thinking that the ER is in order. I'm hoping you've already been, or that you're there now, and that they've come up with something so that you're doing better. If I had magic answers, I'd sure share them in a nanosecond with you. Would that I could. I'm so sorry you're having to go through the frustration and exhaustion. Especially the latter. I've been through some wicked periods of exhaustion, and that's the toughest thing to deal with on any front.

Hang in there.

Thanks Droolie. Its so nice to have that support and understanding. And the hugs too Well I did it. I went back to the ER last night. In the past 3 nights I have tried, inapsine, benadryl, toradol, triple shot, magnesium and even a steroid and really no response. It was my third night and the doctors were callin to notify my specialist. After last night, they said that I needed to be seen. So I am going to Chicago this morning to see what my doc can do to help. I am a little weary since he still isn't getting anywhere, but I am so miserable I will try anything at this point. I will let you know what I find out when I get back. Thanks for being here guys! I am getting to the point that I am very very scared, but it helps to know that I am not alone.

Alaura,

I'm so glad you're headed to Chicago. We're pulling for you back here! KNow that we're here for you, thinking of you and praying that things will turn around for you very quickly.

Check back in when you get home, OK?

jenny

Alaura,

Praying you get some answers and some relief today! Sending lots of hugs!

lisa

Good Alaura, keep us posted, ok?

Alaura
How my heart goes out to you!! It is so easy to hear the fatigue and sense of being overwhelmed in your notes. I'm praying that your doctor in Chicago will be able to set you on a course to break this horrible migraine cycle!!

While none of us can actually go there with you, I hope you know that you are surrounded by the love and caring of those of us on this forum! Please take care of yourself and be loving and kind to yourself!!

As I write Bewitched is playing in the background, and I wish I could just twitch my nose and make everything okay for you!

Please let us know how things go!

Cyn

I hope going to Chicago was helpful for you. I sympathize with where you are coming from and I understand the frustration and exhaustion. Good Luck hun!

Meli

Simply saying thank you is not enough. I feel so broken right now that your love and support means the world to me. Its such a blessing to know that I have others who will pull for me when I am not strong enough to do so myself.

I have an update from my appointment yesterday, although its not a very good one. My doc was trying me on the MAOI, which we have to be really careful with because of interactions. He is now taking me off of the maoi, but can't start any other treatment or preventative until it is completely out of my system. I have a little over a week to wait, and then I can start a new preventative. In the meantime, I have no meds. Which doc clearly explained that I need to hang in there, because in the long run, things will improve. So I understand it will take time.

I am in such a bad state right now with my pain. I am barely funtioning and nearly live in bed. I am missing work and every other part of my life right now. I told doc that I understand I need time, but also that I am very concerned about the here and now. I am so exhausted and feel beat down. This pain wont stop or respond to any meds, so I asked him what we could do. Told him that I would do or try anything just for some relief but his hands are honestly tied right now, he can't do much.

He explained that I since was in the hospital 3 times and in the ER three nights in a row, that at this point it would be getting dangerous to continue slamming my body with meds especially with the MAOI. It would be too hard on my body to go back in the hospital, and he can't find anymore effective abortives so I am staying with what I have now.

Basically, I just wait for the preventative. He has written me off of work until the first week in Nov. Since my pain is constantly high and I hardly get sleep, he is going to keep me sedated and in bed so that I can get by and also get some of the physical stress off of my body. I guess I need time to recover and start healing.

I am still terrified, not knowing what will happen next or when I will feel better. But at least I know doc is honestly working very hard and trying to help me as much as possible. His confidence gives me a glimmer of hope right now as I can see nothing through this fog ahead of me.

I'm glad your doctor is willing to help and try things even though it's not a quick fix. I hope you make it through the next week without any meds and you are able to start on a new preventative and hopefully it will help.

Try to stay strong, I know it's hard. You'll be in my thoughts and prayers as always.

Meli

Get your rest Kelly and keep saying positive things to yourself! Wish for some miracle for you but praying for strength until you can get moving on with your new preventative. Thanks for the update!

lisa

Hi Alaura,
I'm so sorry you are having to go through this. At least your Dr. gave you something to keep you sedated until you can take your new preventive. It seems like a good thing to get off the MAOI since it didn't seem to be helping you and you are limited on other meds you can take while on it. Just get your rest and know we are here for you.

Peggy

((Alaura)),

Sweetie, you are really going through a difficult time, and I so wish there was something tangible I could do for you! I am so glad your doctor is being so patient and giving you something to help you rest. I'm praying that the preventative medicine begins to work soon and that you'll begin to feel some hope.



Cyn

Alaura-

wish there were some magic words that would make you feel better. i'm sorry that you are going through such a rough time. try to hang in there, things will improve. i'm glad that you have such a great doc by your side.

Be strong.

Best.

I hope you all know what your support and prayers mean to me right now. This is the hardest time I have faced yet with this illness. I have to admit that I have been scared I would just be pushing and endouring through all of this alone and with no options. Its not as terrifying when know that you guys offer so much support and understanding. No, you can't help my pain or come up with the perfect words to make this all better. But, having you all by my side is just a good as any "miracle medicine"

At this point, I am doing ok just hanging in there. The pain is staying high, but resting and taking care of myself is filling the majority of the day. This is something I am not used to and I would love to be out and about, even working. But to be honest, I am a little relieved that I have been written off of work and told to rest. For now, I don't have to worry about pushing myself over the limit to accomplish everything. I am not constantly on the go. I have needed this rest for a long time now, and I am glad to be listening to what I need right now. I hope this is a good start for me to head in the right direction.

THanks again guys, I love you all!