Migraine

Hey guys,

I wanted to stop in and give an update. Kelly hasn't been able to hop online but wanted to get in touch. It seems as though she has hit another wall. They just can't break through this migraine she has had for so long, plus she keeps having horrible side effects to her meds. It seems to be a long waiting and guessing game as far as her meds. Today she has been very dizzy and uncordinated, so her nurse has ordered her to stay in bed and sleep. She also is getting a fever and they aren't sure what is up with that.

She said that Dr. N changed around some of her IV meds yesterday and she just needs to give them a chance to kick in. It doesn't sound like they are helping her yet, but she will be able to see in a little bit of time. At this point she doesn't have any timeframe of when she will get to go home. THey are just taking it one day at a time. She seems to be ok with that though. She needs to break this pain and get herself feeling better, so she isn't rushing to get out. Its best that she is trying these meds there and being able to change things around. Rather than taking them home and being stuck with no relief or bad side effects.

Although she doesn't know how soon, she and DH are forming a plan for when she does get to go home. It sounds like she and her pups will be staying with her parents for a while. This way DH can continue to work and they can have the bathroom remodeled . LOL I am sure that is rather low on her list right now, but it will be nice for her to come home to and she will miss all the noise involved. She will be able to stay with her parents and get the care that she needs once she gets out. The most important is that she will be able to give herself the time to continue healing that she will need.

Its great to hear that she is staying hopeful. I know she is having a hard time, but she is hopeful with this stay. She thinks that once they break through, she will be on that path to improvement. I hope she feels well enough to get on here herself and catch up with you all soon. I know she is resting now, but I will fill you in more later if she would like that. Thanks guys!

Alaura thank you so much for providing this information. I have been worried and wondering what is going on.

If you speak with her again today please give my love. I am praying and thinking all the positive thoughts I can for her.

When you go into the hospital Tuesday will you be in the same facility?

YES! Kelly and I see the same doc. Granted I really hope that she is better and home by tuesday, but it will be wonderful to see her again. She was such great support to me when I was there last time, I would love to be able to see her. I will be an inpateint myself obviously, but I should be able to stop in and visit.

I sure will pass on the support and concern! I know she will appreciate it.

Alaura, thank you for the update. I've been wondering how she's holding up myself. Please send her my love as well next time you talk with her. I really hope she sees some improvement soon. I'm glad she's able to stay positive even though she's been in the hospital for so long and I hope you'll be able to do the same thing next week when you go in as well..
and lot of for both of you.

Meli

Thank you for the update.

Heaven knows it's hard to be patient when progress is slow in coming, but it sounds like Kelly's doing everything she can, and is being as patient as she can be, committing to not rushing things. Hopefully, you will be able to visit with each other when you go in, too. It's always easier to do things together with buddies, right? I know you'll be cheering each other on.

to you both, and loads of wishes!

Hey again guys,

I wanted to add a quick update for Kelly. She is still in the hospital and not responding very well to her meds yet. She is trying so hard to stay hopeful but I know she is having a hard time, too. THis is day 11 so she is so ready to be responding, feeling better, and back home with George and her pups. Her doc has changed her meds around some today. She will be taking ativan and norflex every six hours to continue trying to break this migraine. She also has toradol and magnesium that she can take as needed. I know that she would appreciate some extra prayers that she will start to respond and get home soon.

Doc doesn't have a timeframe yet for her to knwo when she will get to go home, but she doesn't think she will stay longer than two weeks. I sure hope not anyway! Even though she wants to be home, I know that she really wants to feel better too. I am sure you all know this is a hard waiting game.

Just wanted to give an update. I hope she is feeling well enough to stop in and update you all for herself here soon. Thanks again guys!

I hope Kelly hangs in there. It happen to me when I started having migraines. I would wish this on anyone. Sorry everyone my heart just goes out to her and her family. I pray for her safe recovery. Please let her know.

Dutchess

Thanks for the update Alaura. I'm so sorry things haven't helped Kelly yet. I hope that this new change in her meds will help her today. And maybe seeing you when you get there will help her too. You're both in my thoughts

Meli

Thanks everyone for the support! I try not to spend too much on the computer b/c it bothers me. It has been such a difficult time for me. I have felt very optimistic and hopeful the whole stay up until this week.

My pain level has hit a wall and we jsut can't break it. Dr. N is very frustrated. We're trying different types of meds today. But, he is starting to get concerned about theamount of certain meds we've been pouring into my system. If I don't respond to this regimen, he's going to discharge me on Thursday. We're goign to talk tomorrow more about what that means for when I go "home". (my parents home).

I am a bit scared. I know Dr. N is doing everything he can. I know that I'm trying to do everything I can. Why can't it just work?!

I'm fighting not being sad about having such high levels of pain for so long nad with my pain level not coming down. It is hard not to feel defeated. I'm trying to keep a positive mantra. And I've really just got to take it minute by minute.

Today I have teh option to take a cocktail of 3 medications that I've taken in the past that I HATE the psychological side effects I get from it, but I am pretty sure that it will help my head. I am terrified of taking it because I ruled it out in the past b/c the side effects just weren't worth it. But, I don't know what else to do now.

The most exciting thing about today is that Alaura arrives(not excited she has a reason to be here) but I am glad that we can be support for each other for a couple of days.

Hugs to you all. I miss you b/c I have not kept up with the tea room, but I look forward to it when my head can tolerate it better.

Kelly

You can do it!!


Be well
Dutchess

Kelly,


May as well try everything you can... Can they give you something to negate the psychological side effects of the cocktail?

Don't be scared yet. One minute at a time. Are there other docs working on your case, or is it just Dr. N? Just wondering if the bigwigs had put their heads together to make something work, and consult as a team... Sometimes one person can toss somehting new into the equation. I assume this is what's going on, but if not... may be worth asking what one of the other docs there- like M. Diamond consult on the case.

Hugs and more hugs from me and Preston.

Kelly!!!

I know what being in constant pain and not having anything help feels like. Last week I was at the barganing phase I think. Someone could have told me that I would feel better if I took a pie to the face and I would have tried it. It wears you down in a way nothing else can.

Physical pain and not having relief for days on end is a nightmare! It is amazing how much our bodies put up with.

I hope this ends for you very soon. I am so sorry that you are in so much pain. I wish I could wave a magic wand and make us all well!!!

You are in my thoughts!!! You are one tough cookie - you will get through this. You will feel better!

Hang in there sweetie!!

Hi Kelly,

I'm going to give you some information on different medication options (not for you to re-read the articles, but give you medication info) you may want to share with your doctors in hopes of breaking your Migraine. Jamie's idea of getting another opioin there is a good one too, never any harm in having a second set of eyes look at you!

IV Treatment of Refractory Migraines

and
IV Lidocaine - Effective Treatment for Refractory Migraines in the Clinic

Keeping my fingers you are feeling better in no time!

Hey Kelly,

Just checking in to see how you are feeling? Any luck on pain reduction? How about asking to have Dr.M take a look at your chart and see what she could offer? Another set of eyes is always a good option.

Would you let me know how you are doing?

Hi Alaura,

Please let me know how you are making out, ok?

quote:

Originally posted by Alaura:
YES! Kelly and I see the same doc. Granted I really hope that she is better and home by tuesday, but it will be wonderful to see her again. She was such great support to me when I was there last time, I would love to be able to see her. I will be an inpateint myself obviously, but I should be able to stop in and visit.

I sure will pass on the support and concern! I know she will appreciate it.