Migraine

Wow. The conversation about the NY Times articles on their blog is fabu!!

Reading that discussion brought a couple of questions to my mind. Why is it that we don't have that kind of discussions about the articles and blogs (called share posts on this site) here on this site? How many of our members realize that our very own Teri Robert is considered by most people to be the leading patient advocate and non-physician expert on migraines and headaches in the US, possible in the world?

It's not that I don't like the NY Times discussion. I really DO! It's just that I really do wonder why there are more active discussions about things from other sites when there's so much great info here, on the site that supports this forum.

Any thoughts?

Hey Abi!

Good to see ya girl!

I think I understand what you are saying, and the only thing I can think of, to why there is not as much discussion or comments on what Teri writes maybe, is because it is fact, not personal experience. I mean, every once in a while there is an SP about something personal, but for the most part, the things she says, can't be argued, because they are facts.

Also - the members we have here, I think have learned from this site, enough to not make statements such as "drug X cured me, you should all try it" and things of that nature.

Just my observation. The comments on the NYT articles, most of them are statements, in my opinion, that are either not true, not from true migraineurs that have been diagnosed, or people that have not taken the time to understand that it is, indeed a neurological disease. They think that just getting rid of all the flour, for example, in their diet, they will never have another migraine again. Yes, that may be their trigger, but I doubt that the statement of them never having another migraine after cutting that ingredient from their diet is true.

Again, this is just my thoughs, not the thoughts of anyone else.

But it's good to see you!!!! I miss ya when I don't see ya here for a while!!!

I like this topic too - I'll be interested to see what others think....

Thanks Abi

I think it's also because we have these message boards to pour our hearts out on. I also agree with Eileen, Teri's information is correct and factual, and we are a very intelligent group as far as migraines go.

I haven't followed the NYT link. I've only got a small amount of time to dedicate to migraine education and support, and this is the best place I've ever found. No need to look around when I've got the best here.

As far as traffic, a lot of the discussion here is educating newbies. I usually don't comment on a thread that already has 10 or 12 replies. I usually have nothing to add, so our threads don't usually go on for more than a day or two or three.

We stay on topic. We've got threads for personal and off-topic posts, and we keep the other posts relevant to real information. In many other blogs, the discussion can wander to other topics if it's not aggressively moderated.

Gretchen in Mississippi

I know a big part of the reason I post links to articles or blog posts like the NYT ones because I like to share when I find more "mainstream" media coverage of migraines/headaches. Oftentimes there's misinformation or inaccuracies in these articles, so the question often comes up if it's good or bad coverage, which leads to a discussion like the NYT thread you mentioned.

On the flip side, I think there's less talk about shareposts/articles on this site because Teri doesn't publish anything she can't back up with research. We do often discuss her new articles/posts in the New Information folder when she posts the links. And, like the others have said, we have a very organized format with a well-moderated forum.

Abi, I totally agree with you that Teri is the leading patient advocate for migraine disease. When I was listening to the NPR broadcast last night, I found myself thinking that I would have a much higher opinion of the interview if it had been Teri, as she has much more reliable information to share than others might.

what everyone else is saying makes a lot of sense to me. what i first thought when i read abi's post was that i read blogs kind of separately from this forum. there are a lot of migraine blogs - some with news and facts, and many w/migraineur's experiences. it's just another facet of the online support i enjoy. helps me to know i'm not alone in this crazy migraine world.

emily

Well, without starting a complete political debate; I am happy to say that "my" candidate agrees with me regarding issues about the war, taxes, and terrorism and also agrees with me on the healthcare issues our country faces.

Thankfully, healthcare is a top priority for the candidates, Republican and Democrat alike

quote:

So, what do you think? Where do you stand on the issues? Have you seen our Healthcare '08 site to track the candidates? Submitted by Nancy Bonk