Migraine
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Migraine Community MyMigraineConnection Archive of Long or Older Conversations Hello!!! forum members!!! Where are you ?|
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Community Manager Guru  |
WE NEED YOU!!
With close to 900 members on this forum, we need your help to go to the AHDA (Alliance for Headache Disorders Advocay) site and subscribe to the mailing list. NOW. Soon, we will be emailing our representatives in Washington for more funding on Migraine disease and headache disorders. Teri said so far we have only had 100 email subscriptions. Here's the site, AHDA, click away and sign up today. Together we can do great things. 
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Maven |
This is a free subscription, by the way. The Alliance needs and appreciates donations but there is no charge to lend your name to the cause. Ever wondered what lil' ol' you could do to make a difference in migraine and headache progress? HERE'S WHAT LIL' OL' YOU CAN DO! Lend your name! Print out the flier and give it to the people in your life! Be a strand in the cable that will connect us sufferers with the money that will fund the research we desperately need. I signed up first thing. Have you? Will you?   http://sparklingwithcrystals.blogspot.com/ basilar-artery migraine, MAV, BPPV, migraine with and without aura, cluster headaches, but no tension headaches! W00t!  |
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Grand Wizard |
I am signed up, and the flyer is printed out and hanging both on my cube and on my office's employee board.
If my finances allow, I plan to put at least part of my tax refund toward a donation for the AHDA. But at the very least I will be contacting my representatives when it's time. Where is everyone else?? Just a thought... is there any way we could publicize this further, maybe with the NYT new migraine blog? The more we can get the word out, the better. -MJ my blog: http://rhymeswithmigraine.blogspot.com/ “HOPE CAN GROW FROM THE SOIL OF ILLNESS!” This is the theme of 2008’s National Invisible Chronic Illness Awareness Week in September. Drop by and find out ways to encourage a friend, be encouraged yourself, and spread the word. http://www.InvisibleIllness.com "What will you do, if it does not turn out how you expect?" "I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest  |
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Apprentice |
I am signed up already.
I will see about badgering some non forum people... I spend so much money trying to cope right now that I don't have it in me for a donation though. I must not take meds today....but it really hurts  Laurelin |
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Apprentice |
I am happy to say I just received my "Action E-List Sign-up Confirmation" email!!
I am still pretty new so THANKS!!, Nancy, or I would have never known about it! Lori  |
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Community Manager Guru |
Laurelin,
Thanks for signing up. Please don't worry about the donations. We can only do what we can do. I can't afford to donate now either. |
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Community Manager Guru |
Lori,
AWESOME!
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Community Manager Guru |
Hi MW,
Thanks so much.
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Community Manager Guru |
MJ,
Thanks so much.
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Grand Wizard |
I can't afford it right now either - that's why it will wait until my refund. But I'm hoping I can donate once I get that.  -MJ my blog: http://rhymeswithmigraine.blogspot.com/ “HOPE CAN GROW FROM THE SOIL OF ILLNESS!” This is the theme of 2008’s National Invisible Chronic Illness Awareness Week in September. Drop by and find out ways to encourage a friend, be encouraged yourself, and spread the word. http://www.InvisibleIllness.com "What will you do, if it does not turn out how you expect?" "I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest |
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Sage |
And I just got my confirmation
Cindy |
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Forum Moderator Supreme Guru  |
Done deal!
 Dragondrool Forum Moderator ~~8=:>>>> |
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Grasshopper |
Just signed up!
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Sage |
Just signed up too - I kept forgetting!
 MJ I think that's a great idea about the NYT blog - I'm going to go look if comments are the only way to get something on there or if there's a way to make a request to the editors. Free our brains from migraine pain my blog: www.meganoltmanfreemybrain.typepad.com E-course on Managing Life with Migraine at www.takebackyourlifefrommigraine.com  |
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Forum Moderator Grand Wizard  |
I'm signed up and getting excited about emailing my representative! Thanks for the reminder Nancy!
Laura Forum Moderator ***You're welcome to enter your birthday, etc in the Celebrate folder so we can party with you!! =) ***  |
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Migraine Community MyMigraineConnection Archive of Long or Older Conversations Hello!!! forum members!!! Where are you ?
