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Novice |
Thank you Teri for your quick response to my question. I moved my new question to a new thread so I wouldn't totally hijack the other thread. Your explanation made a lot of sense. But it created more uncertainty than answers. I guess now I’m wondering if an increased intraocular pressure could be a symptom of or somehow indicative of pseudotumor cerebri. You said in your reply that your doctors think your migraines may have actually caused your glaucoma. Do they think there is any correlation to the pseudotumor cerebri other than it can also affect your vision? Am I making too big of jump? After eight years of chronic daily headaches with no explanation as to why they can’t control them, I’m still looking for any rock or stone that has been left unturned. I have done some research on it after seeing it mentioned by you and Nancy on the forum. I do have a few of the symptoms, the main one being hearing the heartbeat in my head, but I don’t know if it is enough really check it out. I am currently under the care of an ophthalmologist due to a severe cornea abrasion. In all of the times she has examined my eye she hasn’t mentioned anything with my optic nerve, just the pressure that runs on the high side of normal. I think it is a long shot and I may be grasping at straws, but maybe that would explain why nothing has been found that can control my migraines. There is a part of me that is hesitant to bring it up to my doctor. I have had such a hard time being taken seriously by some doctors that I don’t want to be looked upon as a hypochondriac. Doctors really don’t know what to do with me anymore. I am just trying find anything that hasn’t already been addressed explain my current situation. I don’t know what else to do. Shortone |
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MMC Lead Expert Supreme Guru |
From what the OSU researchers told me, they don't see a higher than usual prevalence of PTC among their patients with low-tension glaucoma, just the far higher incidence of Migraine. Now, that's not to say that it didn't contribute to my glaucoma, but there's really no way to tell. BUT increased OIP can indeed be a symptom of PTC. Untreated, PTC can actually cause blindness.
The only symptoms of PTC that I had were tinnitus during some Migraines and that my Migraine preventive stopped working and new ones didn't work either. My ophthalmologist never found any papilledema, which is sometimes a symptom. My Migraine specialist felt PTC should be ruled out since we were making no progress with preventives, and an LP is the ONLY truly definitive diagnostic test for PTC. One of the best things Dr. Young did was suggest that LP. That was truly the turning point in my treatment. If I were in your place, I'd definitely be talking to my doctor about an LP to check the cerebrospinal fluid pressure. If you do have an LP, please discuss pressure levels with your doctor in advance. There needs to be a plan in place so you only have to do one LP. My pressure was 230 with a normal range of 100 - 200. That wasn't very much above the normal range, but we had no idea what was normal for me. Dr. Young drew off enough fluid to put my pressure at 150. It takes a few months for that much fluid to rebuild, so we had time. We reviewed my diary three weeks later, and saw that my Migraines had decreased by 50%, and I was no longer having tinnitus with any of them. That confirmed that the pressure was too high for me, and he prescribed meds to maintain the lower level. I don't know where you live, but I have to say that if your doctors don't know what to do, finding a good Migraine specialist would be my recommendation. Hope this is helpful.
![]() Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Novice |
Thank you so much Teri! You really did help. I will speak with my doctor about the possibility of PTC at my next appointment.
Thank you again, Shortone |
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MMC Lead Expert Supreme Guru |
You're welcome.
![]() Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Master |
Thanks from me, too, Teri. I'm also addressing this possibility with my neuro. I have only a few of the PTC symptoms, but my headaches remain so atypical and unpredictable, and the pulse in my head and feeling of pressure is pretty frequent, so I'm definitely checking it out, and your info was very helpful.
Robin
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MMC Lead Expert Supreme Guru |
Robin,
You're very welcome. One thing to remember is that -- no matter what ANY doctor says -- the only truly definitive diagnostic test for PTC is an LP. We have some people here who have been told that they couldn't have PTC because they didn't have papilledema. That's just wrong.
![]() Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Fledgling |
I agree that it is very important to get those glaucoma checks done regularly and don't take them for granted if they are higher than normal like I did. I waited to go to a dr. I should have went and because I waited I have nerve damage. I was told there is a link and that my migraines may have contributed to the glaucoma. My readings were 23 or 24 and I didn't think much of it, thought it was just a little high, but guess its enough to cause damage. He said I should have been on drops years ago. Just be warned, I never knew there was a link between the two but the dr said there have been studies that have proved the link between migraines and glaucoma.
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Novice |
Hi I also have ocular hypertension.
I went to the optometrist several months ago, when I starting having some bad headaches with new feelings of pressure behind my eye. My prescription was ok, but I found out I had ocular hypertension but was in a gray area on whether or not to start medication for it. The optometrist also said there were no signs of pressure behind the eye or intercranial hypertension (I asked since I'm also dealing with chronic hypertension). I went to the headache specialist this week (I was referred to her since I have had a chronic headache for the last 3 months, with more frequent migraines). She said that inter-cranial hypertension can cause chronic headaches, and she wants to get a second opinion from an ophthalmologist on my eyes. She said I could try IV meds to bread the headache cycle, and/or try a daily preventative like Topomax and getting a second opinion on my eyes before considering a lumbar puncture. (My MRI, CBC, electrolyte, thyroid, glucose test results were normal, though I did find out I have low vitamin D; I am on medication for hypothryoidism and chronic hypertension.) |
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