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Novice
Picture of Shortonedreams
Posted
quote:
Shortone,

I'll see if I can come up with published research on the intraocular pressure issue.

In the meantime, I'm glad to share some other information with you that's not been published yet. Researchers at the Ohio State University do quite a bit of research on glaucoma. They have a top opthalmic surgery department too, so I was sent there, both for diagnosis and when I started losing a significant amount of vision despite oral meds and eye drops. I have an uncommon form of glaucoma called low-tension glaucoma. Although my pressure has never been above "normal," pressures within that normal range were too high for my optic nerve and caused glaucoma. Luckily, my optometrist spotted a tiny blind spot in the visual fields test. He sent me to an ophthalmologist, who sent me to OSU to confirm the diagnosis. Both my local ophthalmologist and the specialists at OSU told me that intraocular pressure is increased during a Migraine attack. They confirmed it for me by testing when I had a Migraine. It makes sense when you think about the vasodilation and resultant inflammation of surrounding nerves and tissue.

What's more, the docs at OSU think that the years of severe Migraines I had before triptans and when my Migraines were out of control may have CAUSED my glaucoma. The prevalence of Migraine in the general population in around 12%. Among the patients they're studying with low-tension glaucoma, the prevalence of Migraine is 40%. Pretty hard NOT to see a correlation.

Add to all of this that my Migraine specialist diagnosed me with Pseudotumor Cerebri, and there's yet another possible contributor to my vision loss.

Having lost 50% of my vision and the ability to drive at night, I'm super cautious about anything that could impact my vision.

I'd encourage you to make sure that you not only have regular pressure checks, but thorough visual fields tests on a regular basis too. That's the only way they can find low-tension glaucoma before significant loss of vision occurs.

Hope this helps!



Thank you Teri for your quick response to my question. I moved my new question to a new thread so I wouldn't totally hijack the other thread.

Your explanation made a lot of sense. But it created more uncertainty than answers. I guess now I’m wondering if an increased intraocular pressure could be a symptom of or somehow indicative of pseudotumor cerebri. You said in your reply that your doctors think your migraines may have actually caused your glaucoma. Do they think there is any correlation to the pseudotumor cerebri other than it can also affect your vision? Am I making too big of jump?

After eight years of chronic daily headaches with no explanation as to why they can’t control them, I’m still looking for any rock or stone that has been left unturned. I have done some research on it after seeing it mentioned by you and Nancy on the forum. I do have a few of the symptoms, the main one being hearing the heartbeat in my head, but I don’t know if it is enough really check it out. I am currently under the care of an ophthalmologist due to a severe cornea abrasion. In all of the times she has examined my eye she hasn’t mentioned anything with my optic nerve, just the pressure that runs on the high side of normal. I think it is a long shot and I may be grasping at straws, but maybe that would explain why nothing has been found that can control my migraines. There is a part of me that is hesitant to bring it up to my doctor. I have had such a hard time being taken seriously by some doctors that I don’t want to be looked upon as a hypochondriac. Doctors really don’t know what to do with me anymore.

I am just trying find anything that hasn’t already been addressed explain my current situation. I don’t know what else to do.

Shortone
 
Posts: 79 | Registered: 04-06-2007Reply With QuoteEdit or Delete MessageReport This Post
MMC Lead Expert
Supreme Guru
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From what the OSU researchers told me, they don't see a higher than usual prevalence of PTC among their patients with low-tension glaucoma, just the far higher incidence of Migraine. Now, that's not to say that it didn't contribute to my glaucoma, but there's really no way to tell. BUT increased OIP can indeed be a symptom of PTC. Untreated, PTC can actually cause blindness.

The only symptoms of PTC that I had were tinnitus during some Migraines and that my Migraine preventive stopped working and new ones didn't work either. My ophthalmologist never found any papilledema, which is sometimes a symptom. My Migraine specialist felt PTC should be ruled out since we were making no progress with preventives, and an LP is the ONLY truly definitive diagnostic test for PTC. One of the best things Dr. Young did was suggest that LP. That was truly the turning point in my treatment.

If I were in your place, I'd definitely be talking to my doctor about an LP to check the cerebrospinal fluid pressure. If you do have an LP, please discuss pressure levels with your doctor in advance. There needs to be a plan in place so you only have to do one LP. My pressure was 230 with a normal range of 100 - 200. That wasn't very much above the normal range, but we had no idea what was normal for me. Dr. Young drew off enough fluid to put my pressure at 150. It takes a few months for that much fluid to rebuild, so we had time. We reviewed my diary three weeks later, and saw that my Migraines had decreased by 50%, and I was no longer having tinnitus with any of them. That confirmed that the pressure was too high for me, and he prescribed meds to maintain the lower level.

I don't know where you live, but I have to say that if your doctors don't know what to do, finding a good Migraine specialist would be my recommendation.

Hope this is helpful.

quote:
Originally posted by Shortonedreams:
Thank you Teri for your quick response to my question. I moved my new question to a new thread so I wouldn't totally hijack the other thread.

Your explanation made a lot of sense. But it created more uncertainty than answers. I guess now I’m wondering if an increased intraocular pressure could be a symptom of or somehow indicative of pseudotumor cerebri. You said in your reply that your doctors think your migraines may have actually caused your glaucoma. Do they think there is any correlation to the pseudotumor cerebri other than it can also affect your vision? Am I making too big of jump?

After eight years of chronic daily headaches with no explanation as to why they can’t control them, I’m still looking for any rock or stone that has been left unturned. I have done some research on it after seeing it mentioned by you and Nancy on the forum. I do have a few of the symptoms, the main one being hearing the heartbeat in my head, but I don’t know if it is enough really check it out. I am currently under the care of an ophthalmologist due to a severe cornea abrasion. In all of the times she has examined my eye she hasn’t mentioned anything with my optic nerve, just the pressure that runs on the high side of normal. I think it is a long shot and I may be grasping at straws, but maybe that would explain why nothing has been found that can control my migraines. There is a part of me that is hesitant to bring it up to my doctor. I have had such a hard time being taken seriously by some doctors that I don’t want to be looked upon as a hypochondriac. Doctors really don’t know what to do with me anymore.

I am just trying find anything that hasn’t already been addressed explain my current situation. I don’t know what else to do.

Shortone



Teri Robert
Lead Expert, MyMigraineConnection
terimmc@helpforheadaches.com




The generally long periods of time between my Migraines are the result of working with a Migraine specialist to refine my preventive regimen. You can see my current regimen HERE.

 
Posts: 3302 | Location: West Virginia | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
Novice
Picture of Shortonedreams
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Thank you so much Teri! You really did help. I will speak with my doctor about the possibility of PTC at my next appointment.

Thank you again,
Shortone
 
Posts: 79 | Registered: 04-06-2007Reply With QuoteEdit or Delete MessageReport This Post
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
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You're welcome. Smiler

quote:
Originally posted by Shortonedreams:
Thank you so much Teri! You really did help. I will speak with my doctor about the possibility of PTC at my next appointment.

Thank you again,
Shortone



Teri Robert
Lead Expert, MyMigraineConnection
terimmc@helpforheadaches.com




The generally long periods of time between my Migraines are the result of working with a Migraine specialist to refine my preventive regimen. You can see my current regimen HERE.

 
Posts: 3302 | Location: West Virginia | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
Master
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Thanks from me, too, Teri. I'm also addressing this possibility with my neuro. I have only a few of the PTC symptoms, but my headaches remain so atypical and unpredictable, and the pulse in my head and feeling of pressure is pretty frequent, so I'm definitely checking it out, and your info was very helpful.

Robin
quote:
Originally posted by Shortonedreams:
Thank you so much Teri! You really did help. I will speak with my doctor about the possibility of PTC at my next appointment.

Thank you again,
Shortone
 
Posts: 278 | Location: Virginia | Registered: 02-22-2007Reply With QuoteEdit or Delete MessageReport This Post
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
Posted Hide Post
Robin,

You're very welcome. One thing to remember is that -- no matter what ANY doctor says -- the only truly definitive diagnostic test for PTC is an LP. We have some people here who have been told that they couldn't have PTC because they didn't have papilledema. That's just wrong.

quote:
Originally posted by shrinkgirl:
Thanks from me, too, Teri. I'm also addressing this possibility with my neuro. I have only a few of the PTC symptoms, but my headaches remain so atypical and unpredictable, and the pulse in my head and feeling of pressure is pretty frequent, so I'm definitely checking it out, and your info was very helpful.

Robin



Teri Robert
Lead Expert, MyMigraineConnection
terimmc@helpforheadaches.com




The generally long periods of time between my Migraines are the result of working with a Migraine specialist to refine my preventive regimen. You can see my current regimen HERE.

 
Posts: 3302 | Location: West Virginia | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
Fledgling
Posted Hide Post
I agree that it is very important to get those glaucoma checks done regularly and don't take them for granted if they are higher than normal like I did. I waited to go to a dr. I should have went and because I waited I have nerve damage. I was told there is a link and that my migraines may have contributed to the glaucoma. My readings were 23 or 24 and I didn't think much of it, thought it was just a little high, but guess its enough to cause damage. He said I should have been on drops years ago. Just be warned, I never knew there was a link between the two but the dr said there have been studies that have proved the link between migraines and glaucoma.
 
Posts: 24 | Location: Madison Heights, MI | Registered: 12-05-2007Reply With QuoteEdit or Delete MessageReport This Post
Novice
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Hi I also have ocular hypertension.

I went to the optometrist several months ago, when I starting having some bad headaches with new feelings of pressure behind my eye. My prescription was ok, but I found out I had ocular hypertension but was in a gray area on whether or not to start medication for it. The optometrist also said there were no signs of pressure behind the eye or intercranial hypertension (I asked since I'm also dealing with chronic hypertension).

I went to the headache specialist this week (I was referred to her since I have had a chronic headache for the last 3 months, with more frequent migraines). She said that inter-cranial hypertension can cause chronic headaches, and she wants to get a second opinion from an ophthalmologist on my eyes.

She said I could try IV meds to bread the headache cycle, and/or try a daily preventative like Topomax and getting a second opinion on my eyes before considering a lumbar puncture. (My MRI, CBC, electrolyte, thyroid, glucose test results were normal, though I did find out I have low vitamin D; I am on medication for hypothryoidism and chronic hypertension.)
 
Posts: 84 | Location: Texas | Registered: 10-29-2007Reply With QuoteEdit or Delete MessageReport This Post
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