Migraine
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MMC Lead Expert Supreme Guru  |
Deb,
He mentioned it in another comment on the first blog entry today... "scalpel said... Actually, I'll go ahead and say this too....I've read some of Teri's forum posts since we first met yesterday, and I think she is knowledgeable and gives pretty good advice generally. But I suspect she created the fictitious persona of james and the story that went with it. Prove me wrong. September 10, 2007 1:00 PM" http://ernursey.blogspot.com/2007/09/another-blog-voice-on-patient.html
 Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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MMC Lead Expert Supreme Guru |
Jenny,
I agree. More in another post!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Let's hope that while he was here he learned a bit about life with migraine disease! He obviously read a bit while he was here--He even indicated that he thinks Teri knows her stuff!! (We've known that all along, now, haven't we??? 
)
jenny |
MMC Lead Expert Supreme Guru |
Yes, he did, Jenny. See my reply to Deb.
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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MMC Lead Expert Supreme Guru |
 Welcome to the "family," dear one. And I meant that very sincerely. You are quite dear for speaking out so bravely. Thank you.No, I don't think you'll "get a a tidal wave of negative responses" here. You're more likely to find people who want to understand such issues better, are quite willing to welcome you into our family, and will offer you support when you need it. IMO, it's not the "addicts" whom we detest. It's those who just think it would be fun to go to the ER, fake pain, and get a short, quick high. There's a big difference. As for those you mention becoming "addicted" from medications prescribed for real pain, I don't consider them to be addicted. They've become physically dependent on the medications. There's a big difference. Someone don't become addicted when they're taking medications their body needs for pain. They can become dependent on the meds that way, just as I'm physically dependent on the antidepressant I take every day. If I tried to stop taking it cold turkey, I would have horrid withdrawal. It's the person who no longer needs the medications for pain, but continues to take it for the "boost" it gives them who becomes addicted. It's pathetic that you were turned away when you sought help. I'm so sorry that happened to you. That this happened is disgraceful. So, how are your Migraines these days? I hope your post won't be a one-time thing; that you'll stick around, get to know people, and feel welcome here. See? Something good did come of all of this. You found your way here, to us.  Welcome again!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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MMC Lead Expert Supreme Guru |
LOL! Sherry, quoting me got your post sent to the moderation folder because of a word I had used. I had to go fix it and approve it before it would show up. Too funny!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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MMC Lead Expert Supreme Guru |
Rebecca,
I saw your reply and was so impressed that you knew the stats. LOL! Somehow, it still surprises me when my book is used as a reference. By now, it shouldn't, but it does. OK. No more accidents now, young lady! hugs,
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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MMC Lead Expert Supreme Guru |
Hey there, everyone,
Here are my thoughts on where this stands now... I also think that we should just leave it alone now. To keep this going is probably disrespectful to ERnursey who never intended for any of this to happen. I originally commented to her, and she rose gracefully to the occasion and explained that the way we read it was not the way she intended, that saying 'migraine' instead of migraine makes a big difference. She's right about that, and if we were regular readers of her blog, we'd probably know that. As for scalpel, either he's a jerk for his attitude toward Migraineurs in the ER, or he's a jerk just yanking our chains to continue this. Either way, I'm not giving him any more of my time after he called one of our own names today. I commented as much, and I meant it. If we take out his part in the discussion, I think it was actually productive. ERnursey did a second blog post explaining the difference between Migraine and 'migraine,' a post that could raise awareness. whatcha think? Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Maven |
I don't know. I don't feel that it was productive at all, especially reading the comments left on Scalpel's blog:
"Anyone have strobes?!" "I'll bring some noisy children!" "I didn't know migraine was the new fibro!" "How is it people make it onto the computer with migraines?" "They're all getting worked up and it can't be helping their migraines, while they try to outdo each other with comments on how debilitating they are!" Uh, no, everyone seems to have missed the point and their sarcasm and "humor" falls very poorly on my brain...which may be my sour attitude at the moment. I did not get a break at work tonight, and I have no water at my house at the moment. So I'm a little more than cheesed, and, I suppose, looking for something to take it out on. It just reinforces the point that none of these ninnies "gets" it, WHATSOEVER. Whatever grasp they think they have, is pretty much a grasp on poo. I'm SO glad that I don't go to any of their ERs. God bless my specialist, too. That being said, I wouldn't post nor address anyone any longer since it's obvious they don't get it nor read enough here to know the people and everyone's unique set of circumstances, nor do they seem to try and care. Which is baffling, considering they are in the business to help people. If they are so bitter already, maybe it's time to find another job? No wonder their patient satisfaction scores are so low. aloofelf.blogspot.com myspace.com/leelood5e My disabling chronic illness is more real than your imaginary medical expertise. |
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Master |
Hi (((Leeloo))), I sure hope you get a break somewhere! Sure seems like if it weren't for bad luck, there wouldn't be any luck today :-(
I didn't see any of what he wrote. Didn't have any time to find the blog and it seemed a waste as it progressed! I agree with you. The guy may be a dr?? Mom says the guys coming out of med school today are nothing like the people she worked with for 40 yrs. Even the nurses coming out of nursing school don't know how to take care of a patients these days. It is a pitiful situation. Hope you have a better day tomorrow! Bob |
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Apprentice |
Hey, I think Scalpel works at my local ER! Thankfully due to the randomness of the ER visit and my extreme reluctance to putting myself through such an ordeal, I don't always get 'those' ones. Funny that such people who appartently think they know so much about migraines, tend to know less than I do.
I will say this, I have always gotten excellent care for chest pains when I go to the ER (Well that is the two times I went for angina from migraine meds). And the chest pains really did not concern me that much, I was told to go, so I went. You get in right away, you get hooked up to several machines. Great treatment. Unfortunately other types of pain are a little too difficult for people to grasp. Maybe most people go to the ER for anything. Last time I was there, some girl had a bad sun burn... not the sort of thing I would rush to the ER for. And with chronic pain, well, we tend to exaust any option so we don't end up there. And as a result we suffer with a great deal of pain, sometimes days worth before we go. Sometimes I get the impression they think I rarely get a migraine and the ER s that first option. The last time, the doc (who literally knew nothing about migraines... as in he thought my hearing loss and ear ringing was a possible side effect of botox treatment, actually asked me if it was) he looked at my chart to see how many ER visits I have had (which had been more than usual due to the whole angina fun), and then took me seriosly when the number was low. How anybody would think waiting five hours in a bright noisy enviroment to get unpredictable and often unsuccesful treatment is a first option is quite beyond me. If I don't go to the ER for chest pains, at least not at first, then I think I am the sort to rationalize myself out of it quite often and sometimes with a severe migraine, rather hoping a nice quick heart attack will solve everything. The best ER trips are those where you get a bed quickly and they turn off all the lights. The best I have ever had, was the fellow that actually knew about migraines, treated my dehydration from the status migraine and gave me an ergotomine.... and the nurse had me in the dark, was very understanding. |
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Master |
I read through all the comments at this blog and agree with Teri that ERnursey a) most probably had no intention of generating this level of animosity, thus b) enough's enough now.
It has, however, very graphically brought out into the open, some of the utter disdain and disgust some doctors and nurses (?) feel towards migraineurs. That is, we're NOT imagining it. So, it's a cautionary little storm in a tea-cup. Better to know the reality and truth instead of struggling with circumspect, covert fob-offs and less than adequate treatment. Secondly, the scalpel specimen has shown himself up for what he is. IF, indeed, he has any medical qualifications and experience, I would have thought he'd be running pretty close to falling foul of his professional body's code of ethics: bringing the profession into disrepute. In my experience, true professionals steer well clear of such ill-advised public slanging matches - at least for that very reason. Although it's very upsetting to read such vitriol and, yes, even hatred towards any group of patients, IMHO, I reckon we need to take it with several grams of sodium chloride, to chalk it up to experience as more than likely some troll on a wind-up mission, and remember that there are some good, caring medical people out there! As Teri indicates, what goes around comes around. samxxx |
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Community Moderator Guru  |
I agree with Teri. I think this guy is being rude to the woman ERnursey - by taking over her blog - she has not posted in that thread in a day or so.
This guy is a joke with a God complex. I really doubt he is a doctor. What happen to the oath he took when he became a doctor? He is just looking for fights - that's it. It's really not worth the time. The guy has some issues of his own. He is an unapoligetic jack### so to continue to try an battle with him, is just giving him what he wants. I feel sorry for the people he treats. He said something back to me to the effect of just because he is a jerk online doesn't mean he is like that in real life - I beg to differ. There is a difference in blowing off some steam and being a complete idiot. I think if the AMA ever found out who this guy was - they'd pull his license - at least I'd hope they'd suspend him. Eileen Gray Community Moderator eileen@helpforheadaches.com "The most authentic thing about us is our capacity to create, to over come, to endure, to transform, to love and to be greater then our suffering." - Ben Okri Please donate!!! Click below to donate to the AHDA - THANK YOU!!! http://www.networkforgood.org/pca/Badge.aspx?badgeId=102755 my blog: http://fireinmybrain.blogspot.com |
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Community Moderator Guru |
Oh - and I checked to see what the latest was this morning...ERnursey closed the blog. Good for her. I'm just mad that Scalpel got the last word. Oh well - he has to live with the fact he is a jerk - not us.
Eileen Gray Community Moderator eileen@helpforheadaches.com "The most authentic thing about us is our capacity to create, to over come, to endure, to transform, to love and to be greater then our suffering." - Ben Okri Please donate!!! Click below to donate to the AHDA - THANK YOU!!! http://www.networkforgood.org/pca/Badge.aspx?badgeId=102755 my blog: http://fireinmybrain.blogspot.com |
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Maven |
Couple things, coming from a half-sociology, half-psychology student, so take it with a grain of salt:
IF this guy is a dr, which I still question, this could be a case of "kick the dog." He gets all of these patients in at work that he absolutely despises, but because he's a professional, he has to be nice to them to their faces. Obviously this guy has a real beef with anyone wanting pain meds, and it just boils him to a vapor, so he gets home and just lets off on anyone he can find on the internet who even remotely resembles the patients he see in his ER. Doesn't matter who they are, how legit they are, if they get in his way, he's going to let them have some of his divine retribution. The very virtual nature of the internet may make his victims seem unreal to him, as well, which offsets any guilt he may feel. "So what if I'm a jerk on the internet, I'm a compassionate doctor." In Sociological theory Goffman talks about the dramaturgical (or theatrical) presentation of self. There's the "front stage" and the "back stage". The front stage is what we want everyone else to see and believe (aka "I'm a compassionate doctor") by basically putting on a costume and acting a certain way. We can do this through our clothes, make-up, posture, speech patterns, facial expressions, bodily gestures, etc. On the reverse, the back stage is where someone can relax, drop the facade, and and essentially “be one’s self”. Generally we do this when we are alone or with those we are closest to, but I think that the internet also allows us another place where we can "let it all hang out" and be in that back stage. This guy is probably really just a jerk in real life who's pleasant enough at work but comes home, sits on his computer, and then lets the world know what he's really about. Either way, it's this guy who's got problems  , not us. He'll end up on someone's "couch" at some point in his life. You can't have that much anger in you and not be set-up to fall. I'm kind of starting to feel bad for the guy because it's going to be a long way to fall. Let's just hope there's a therapist out their equipped enough to deal with him (who hopefully doesn't have migraines). |
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Community Moderator Guru |
Migraineur - My thoughts exactly - I was thinking first sociopath but the career of doctor doesn't fit - I get the "blowing off steam" deal. I get that. What I don't get is that we all repeatedly just wanted him to admit we are not those "migraine" patients and he just could not do it. We never once said ME ME ME FIRST!!!! We all said, by all means, treat the more in need first, no problem, just show us some respect. He seems to never address this point. He hears what he wants to hear and responded to what made him look like a jerk. He blogged on his site about why we are last - funny he didn't use "migraine" as was stated is different from Migraine - so to him, we are just lumped in with the drug seekers.
He's not worth me getting worked up over anymore. He won't change. I doubt anyone will ever make that person see it any other way but his. He is definatly narsicisstic and shallow. I pity him and hope Karma has it's way. Eileen Gray Community Moderator eileen@helpforheadaches.com "The most authentic thing about us is our capacity to create, to over come, to endure, to transform, to love and to be greater then our suffering." - Ben Okri Please donate!!! Click below to donate to the AHDA - THANK YOU!!! http://www.networkforgood.org/pca/Badge.aspx?badgeId=102755 my blog: http://fireinmybrain.blogspot.com |
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