MyMigraineConnection.com

See all our sites for your special health needs at www.HealthCentral.com

Migraine

Make a connection, ask a question, share a concern, give advice or just chat. Our message boards connect you with a community of people who understand where you’re coming from and what you’re going through.

    Migraine Community  Hop To Forum Categories  MyMigraineConnection  Hop To Forums  Advocacy Issues    Call to action, Migraineurs!
Page 1 2 3 4 5 

Read-Only Read-Only Topic
Go
New
Find
Notify
Tools
Call to action, Migraineurs!
 Login/Join 
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
posted
I came across a blog written by an ER nurse recently. She obviously knows nothing about Migraine disease, and is probably someone we'd hope not to have on duty if we have to go to the ER.

She said:
"If we have to do a patient satisfaction score, let's ensure that they are only given to the people who really needed to be in the ER to begin with. And that leaves out the vast majority of the prompt care patients. Don't give them to the 'back pain' and 'migraine' crowd, give them to the pneumonia, kidney stone etc and make sure to give on to everyone that was admitted..."

I posted a very polite comment. The blogger has not replied yet, but another nurse did.

Please, take a few minutes to go to this blog and leave a polite and respectful comment. Please don't post in an angry way. That won't do any good. If we want these nurses to pay any attention to what we're saying, we need to be civil and polite.

Are you with me? I'd love to see lots of comments from Migraineurs!

UPDATE: ERNursey posted a very nice reply to me. You still might want to read, but I don't know if any of you will still want to comment.

To read and/or comment, go to Another Blog Voice on Patient Satisfaction Scores.



Teri Robert
Lead Health Guide, HealthCentral Migraine Community
terimmc@helpforheadaches.com

Author of Living Well with Migraine Disease and Headaches

Stay up-to-date on Migraine info with my free weekly newsleter. Subscribe here

visit me on or

 
Posts: 4220 | Location: West Virginia | Registered: 01-11-2007Report This Post
Grand Wizard
Picture of DebMomm
posted Hide Post
How about a link?


Deb




 
Posts: 2493 | Location: St. Louis | Registered: 01-13-2007Report This Post
Maven
Picture of Migraineur
posted Hide Post
Growl, that's exactly why I'm resistant to going to the ER when I know I really do need to... I actually had my mig specialist call doctor's orders ahead of me to the urgent care clinic so I wouldn't have to deal with any potential friction. It's nice when you can just walk in and get the care you need without having to legitimize yourself.
 
Posts: 547 | Registered: 03-15-2007Report This Post
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
posted Hide Post
Sigh. Yes, that WOULD help, wouldn't it. Embarrassed

quote:
Originally posted by DebHOST:
How about a link?



Teri Robert
Lead Health Guide, HealthCentral Migraine Community
terimmc@helpforheadaches.com

Author of Living Well with Migraine Disease and Headaches

Stay up-to-date on Migraine info with my free weekly newsleter. Subscribe here

visit me on or

 
Posts: 4220 | Location: West Virginia | Registered: 01-11-2007Report This Post
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
posted Hide Post
The owner of the blog posted a nice reply to me. The ER doc who replied to me, still.... GRRRRRRRRRRRRRR.

quote:
Originally posted by Migraineur:
Growl, that's exactly why I'm resistant to going to the ER when I know I really do need to... I actually had my mig specialist call doctor's orders ahead of me to the urgent care clinic so I wouldn't have to deal with any potential friction. It's nice when you can just walk in and get the care you need without having to legitimize yourself.



Teri Robert
Lead Health Guide, HealthCentral Migraine Community
terimmc@helpforheadaches.com

Author of Living Well with Migraine Disease and Headaches

Stay up-to-date on Migraine info with my free weekly newsleter. Subscribe here

visit me on or

 
Posts: 4220 | Location: West Virginia | Registered: 01-11-2007Report This Post
Maven
Picture of Migraineur
posted Hide Post
I second that GRR. How incredibly frustrating it is that these are some of the people we rely on for such a basic standard of medical care. As if dealing with the turmoil of chronic illness and pain isn't hard enough, to have those who are supposed to understand and take care of you delegitimize your experience so much is heart wrenching. It makes you doubt yourself and your sanity.

Your other post about migraine as an invisible illness is really hitting home this week. Because they can't see my pain or the cause of my pain, it's always in contention. You think you'd get used to this after a while, but it never really does get easier. Pain is an interesting phenonmenon too because people really do not like to talk about it. It makes them uncomfortable. That extra sense of, "hush, hush, keep it to yourself," really doesn't help.

I'll try to write something in the morning. I need to think it over, so that I can be thoughtful rather than ranty.
 
Posts: 547 | Registered: 03-15-2007Report This Post
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
posted Hide Post
You know, I wish Invisible Illness Week was bigger, that more people promoted it so more would stop and think.

You're so right about pain making you doubt yourself and your sanity. Been there, and it was one of the worst periods of my life. It's also part of what made me decide to do the kind of work I do.

Thanks!

quote:
Originally posted by Migraineur:
I second that GRR. How incredibly frustrating it is that these are some of the people we rely on for such a basic standard of medical care. As if dealing with the turmoil of chronic illness and pain isn't hard enough, to have those who are supposed to understand and take care of you delegitimize your experience so much is heart wrenching. It makes you doubt yourself and your sanity.

Your other post about migraine as an invisible illness is really hitting home this week. Because they can't see my pain or the cause of my pain, it's always in contention. You think you'd get used to this after a while, but it never really does get easier. Pain is an interesting phenonmenon too because people really do not like to talk about it. It makes them uncomfortable. That extra sense of, "hush, hush, keep it to yourself," really doesn't help.

I'll try to write something in the morning. I need to think it over, so that I can be thoughtful rather than ranty.



Teri Robert
Lead Health Guide, HealthCentral Migraine Community
terimmc@helpforheadaches.com

Author of Living Well with Migraine Disease and Headaches

Stay up-to-date on Migraine info with my free weekly newsleter. Subscribe here

visit me on or

 
Posts: 4220 | Location: West Virginia | Registered: 01-11-2007Report This Post
Supreme Guru
Picture of Eileen Gray
posted Hide Post
Ok - I just got up and saw this one.....Teri I can't even comment to that person right now. I need to cool off!!!!! Good for you and the members of this forum who have the cool to put it into words!!!! I did, however, bookmark the page and will return once I have cooled down and collected my thoughts. Did she happen to day what state she was in? I wanna make sure I don't move there!!! Devil Mad


Eileen Gray



"The most authentic thing about us is our capacity to create, to over come, to endure, to transform, to love and to be greater then our suffering." - Ben Okri
Please donate!!! Click below to donate to the AHDA - THANK YOU!!!
http://www.networkforgood.org/....aspx?badgeId=102755
my blog: http://fireinmybrain.blogspot.com
 
Posts: 3155 | Location: Hopatcong, NJ | Registered: 09-08-2007Report This Post
Grasshopper
Picture of mcdirector
posted Hide Post
Alright! This is at the very least infuriating. I left school before a meeting the other day because my head was about the split down the middle and it was one of those rare occasions when Imitrex wasn't working.

AND I come here and read this BLOG! FINE, don't give ME a customer satisfaction survey. I didn't go to the ER because I've met this staff before. I came home and crawled in the bed with a heating pad, praying I could sleep through some of the pain.

AND while the nurse's comment was nicer than Dr. Scalpel's I guess I got kindof hung up of the "we're not stupid" phrase - which sounded more than a bit defensive. Of course I'm sitting here with one side of my face still numb, so maybe I'm a bit defensive because I'm tired of educating my health care providers.


Bitsy
 
Posts: 40 | Location: NC USA | Registered: 01-22-2007Report This Post
Maven
Picture of Migraineur
posted Hide Post
Ok, I posted. I wish I could go back and edit because there's so much more I'd like to add. Scalpel changed his message just before mine. It used to talk about "giving us our candy" refering to narcotics. At least he chose the more PC route, but it's still a very disheartening message.
 
Posts: 547 | Registered: 03-15-2007Report This Post
Maven
Picture of Leeloo
posted Hide Post
Well, I've posted a couple of times. That's probably it. That guy is obviously an idiot and my opinion of him is starting to shine through the posts, which means I should stop while I'm ahead.

Not to mention, I hate it when people blatantly ignore what someone else has written in order to "give advice" that the previous poster has already explained themselves on... Head Banging Mad


www.aloofelf.blogspot.com
www.twitter.com/leeloosmigraine


My disabling chronic illness is more real than your imaginary medical expertise.
 
Posts: 908 | Location: O'Fallon, Missouri | Registered: 01-31-2007Report This Post
Supreme Guru
Picture of Eileen Gray
posted Hide Post
Maybe we should just copy the friends and family and ER letter right from Teri's book right to the blog there. Pretty much says it all. What a bunch of uneducated people. And to think they may treat one of us some day. I pray that doesn't happen.


Eileen Gray



"The most authentic thing about us is our capacity to create, to over come, to endure, to transform, to love and to be greater then our suffering." - Ben Okri
Please donate!!! Click below to donate to the AHDA - THANK YOU!!!
http://www.networkforgood.org/....aspx?badgeId=102755
my blog: http://fireinmybrain.blogspot.com
 
Posts: 3155 | Location: Hopatcong, NJ | Registered: 09-08-2007Report This Post
Novice
posted Hide Post
Dr. Scalpel should have his license to practice medicine taken away. What a jerk. And that's putting it nicely.
 
Posts: 66 | Location: Atlanta | Registered: 07-20-2007Report This Post
Wizard
Picture of jennyc
posted Hide Post
Geez-that whole "giving us candy" thing it really making me furious!!!

The whole idea that narcotics are a treat--UUUGGGHHHH!!! I feel like screaming!!

When I do have to resort to narcotic pain relief, I cry and repeatedly have to be reminded to breathe as the nurse administers the IV. I HATE HATE HATE IV NARCOTICS!!!! I hate the way they make my head feel and the warm, sick feeling I get from them. I hate that I "lose" 2 days of time because the narcotics are so sedating!

Scalpel's attitude is a real stinker.
But I'm preaching to the choir, here! I'll post to the blog later. I'm too angry now.

jenny
 
Posts: 1721 | Location: PA | Registered: 07-03-2007Report This Post
<Nancy Harris Bonk>
posted
I don't even know where to begin...........
 
Report This Post
  Powered by Social Strata Page 1 2 3 4 5  

Read-Only Read-Only Topic

    Migraine Community  Hop To Forum Categories  MyMigraineConnection  Hop To Forums  Advocacy Issues    Call to action, Migraineurs!

We're New and Improved! LEARN MORE
Get our Free Newsletter