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I am new to this group but I would like to help anyone who suffers from migraine headaches because I understand the pain.
Before moving closer to Chicago, I worked with Dr Jeffery Royce at Swedish American Neuro & Headache Clinic in Rockford, IL. Dr Royce not only was able to diagnose my type headache (Familial hemiplegic migraine)but he worked with my GP and family to help me get through some very difficult days. Also since Dr Royce had worked in a family practice for a number of years, he understood how my allergies and other issues made an inpact on my headaches.
Since moving nearer to Chicago, I have been working with Diamond Headache Clinic. Although I like the doctor I work with, I DO NOT like phoning, leaving a message and then never being able to speak with my doctor directly. Just resently I phoned and asked for the doctor and the PA phoned me back. The PA then called in medication for me to take. "Thankfully" I was admitted to a local hospital before I took the medication because the PA either didn't know or didn't understand that what she called in was a medication in the same "family" as a medication that I am anaphylactic shock allergic to. MY GP caught the error. I do not believe my doctor at Diamond ever even saw the PA's order. Since my doctor at Diamond has met me, he would have known to check my list of allergies before calling anything in for me.
So although I have the same diagnoses and use the same protocol for treatment that Dr Royce put together for me in Rockford, it is just not practical for me to seek treatment in Rockford. But I have found that the local hopsitals where I live now accept without question my diagnoses and protocol for treatment because comes from the Diamond Headache Clinic - so even with its faults, off to Diamond I go.
-:¦:-•:*'""*:•.-:¦:-•*Hello!*•-:¦:-•:*'''''*:•-:¦:-•*Welcome to the family!*•-:¦:- •:*'""*:•.-:¦:-
Hello and welcome to our forum family! Our goal is to provide everyone with the information and support that we all need to manage our Migraines and/or headaches. To that end, we consider this a “safe harbor,” where nobody tries to sell us anything, and we all use “family-friendly” language so parents are comfortable letting their children read the forum with them.
Please take a few minutes to review our policies and guidelines along with the other information in the START HERE folder. For information about Migraines, a good article to begin with is Learning About Migraines - Where to Start.
Finding the "right" doctor is really tough! Some of our members travel GREAT distances to see their specialists. I know that I take a plane and a train to get to mine! For me, the travel and cost is worth it. I can't even describe how terrific it is to see a doctor who really cares--and who doesn't give up on me!
Have you had a chance to take a look at our list of Patient Recommended Migraine and Headache Specialists? It's a great place to find doctors whose patients think highly of them--and who have expertise with migraine/headache care.
You may want to check out our folder for Hemiplegic Migraines. There are many important discussions there that might be helpful to you. Also, we have some good articles about HM. You may want to start by looking at Hemiplegic Migraine - The Basic.
It's terrible that you almost took a med that could've been dangerous to you! It may help you to have all of your prescriptions filled at the same pharmacy. Be careful to let the pharmacist know of your drug allergies. I know that my pharmacy always contacts me before filling a script if any med could bring about an allergic reaction for me. It's always good to have the protection of a good pharmacist to protect you from possible doctor/nurse error!!
Well, once again, welcome to the forum! Let us know if you have any questions, OK?
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