Migraine
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Novice |
Everyone seems to have a horror story about thier doctor or doctors. I cant understand, for the life of me, what makes us sub human in thier eyes? Our lives and wellbeing is in thier hands and they treat us like dog poo!
I wonder if those with sufficant medical care and treatment dont require the support of a forum like this and it never occours to them to go hunting for it/this. Is it the ##### care and the absolute devistation that creates our need go in search of forums such as this? Edited by moderator. Please remember to use family friendly language. Described/disguised "naughty" words are no better than the actual word. Thank you. Blame it on the Boogie .... |
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Community Manager Guru  |
There are plenty of good stories and doctors out there, we just don't hear about them. I don't think the medical profession sees Migraineurs as "sub human."
People come to this site for education, support and information regarding Migraine disease and headache disorders. Sometimes that includes finding a Migraine specialist, other times a word of support knowing they are not alone in this disease. I don't think the question is "What's wrong with Dr's?" so much as how can we take better control of our health care needs? Teri just wrote and excellent SharePost on this topic you can find HERE |
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Apprentice |
Hi Bedge there are lots of good doctor stories on the forum but you are right people who aren't happy with their treatment regime, have more difficult to treat migraines or aren't able to access treatment would be more likely to do their own research and thus find a group like this and post for suggestions.
I can only speak for Australia but it seems there that most GP/Primay Care doctors do not treat migraines and say "nothing can be done as it's all stress". Some also have an attitude towards migraine sufferers and people who are deemed to have stress/anxiety conditions so do treat them more negatively and refuse to treat things. However if you can get a referral to a neurologist they will treat the migraines, some better than others obviously. |
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Grasshopper |
Having been on both sides of this "equation," maybe I can offer a small bit of insight (although take it with a grain of salt: the following is just my opinion).
I am a first-year medical student and a migraneur myself. Part of the problem, IMHO, is that the process of educating physicians is surprisingly dehumanizing. I think it takes someone special to come out the other end with their humanity, empathy, etc., entirely intact. There are a lot of other factors, too, of course; I would venture that most physicians have never had migraines, so they don't really understand how debilitating they can be. Also, I think doctors tend to forget that their patients don't have the same education, training, experience and so on that they do, so they might seem dismissive if they are not as alarmed by a given symptom or situation that may (understandably) be very frightening or frustrating to the patient. Also, so much of medicine involves measuring or evaluating "tangible" things like blood, x-rays, etc. When all of those things appear "normal" to a doctor, I think they tend to equate that with health (commonly expressed as "I can't find anything wrong with you" or some variation on that theme) and put less stock in what the patient reports. I think that is a huge mistake. I know exactly how frustrating it is to feel horrible and have a doctor tell you that you are not "sick" because your MRI, blood work, or whatever, doesn't show any pathology. I don't know how many times I have heard something like "We don't know exactly how this or that works" already in just a few months of medical school. It is imperative to listen to the patient, and I think many physicians forget that. Of course, many patients can be difficult, demanding, have mental illness, or have unreasonable expectations about their treatment. I must admit I have been guilty of the last one myself; it took me a long time to understand that my migraines weren't going to be "cured," despite the fact that I am well-educated and have worked in health care myself. Just a few thoughts. I don't know if that helps or not. I would second the comments above that there are lots of great physicians out there, it just might take a bit of searching to find them. I don't know how the health-care system is structured in Australia, but if you are unhappy with the physician you are seeing now, find another (if you can). Life is too short and migraines are bad enough without having to deal with a lousy doctor. Ask around; surely there are other people in your community with migraines who have found good doctors. Boards like this are a great resource as well, although it might take some searching to find a recommendation for a doctor in your area. It's worth the effort; my wife found me a great neurologist who turned out to be a migraneur herself. Don't give up! Good luck (Good on ya?)  |
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Forum Moderator Grand Wizard  |
There definitely are good doctors, and several forum members (including me) report their positive experiences with their doctors. Despite my satisfaction with my medical care, the support I receive from this forum is extremely important to me. I can log onto this forum daily, but it would obviously be unreasonable of me to expect my doctor to talk to me every day just for "support." Support and medical care are both important.
Nutcracker Forum moderator  |
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Community Moderator Guru  |
I have been treated by 3 Neuro's since my migraines got worse. That's not to mention the other doctor's I've seen as well.
Out of those three Neuro's, two that I know of are migraineurs. One of my primary care doctors are migraineurs, I think there are more out there then you think. Considering that at least 36 million Americans suffer from migraine disease currently, and I believe that breaks down to one in every 10 people....there are a lot more doctors out there suffering from this then you think. It is hard to find a balance between working with your doctor and having them feel like you are knowing, or think you are knowing more. Having them pull the "I'm the doctor here" card, when, in fact you know more about the disease you have is very frustrating. I've had this happen and almost walked out of the appointment. I understand that yes, they have gone though medical school and residency and all of that stuff, but without a good bedside manor, and the ability to still have compassion for people, what kind of doctor is that? I have finally found a wonderful neurologist. I am amazed at his attention to detail, his ability to listen to me, the time he gives me in my appointments....and you know what? I shouldn't be, this should be the norm. Our heathcare system has gotten us so down to being just a number between HIPPA and reimbursments that doctors who actually take their time, and appricaitate that their patient is giving them their business and actually being a doctor instead of just a swinging door that it is now a rarity to have someone that actually listens and cares about YOUR care that YOU are paying THEM for. If you find a good doctor, which you well in your right DESERVE - hold on to them. They are worth their weight in gold. OK I'm off my soapbox now. Eileen Gray Community Moderator eileen@helpforheadaches.com "The most authentic thing about us is our capacity to create, to over come, to endure, to transform, to love and to be greater then our suffering." - Ben Okri Please donate!!! Click below to donate to the AHDA - THANK YOU!!! http://www.networkforgood.org/pca/Badge.aspx?badgeId=102755 my blog: http://fireinmybrain.blogspot.com |
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Grasshopper |
Good point about doctors possibly being migraneurs - you can't tell by looking!
Except for me: I look just like George Clooney when I don't have a migraine and I look just like Ernest Borgnine when I do. Hmm. Maybe I do have visual disturbances... |
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MMC Lead Expert Supreme Guru  |
JayDoc,
Some good thoughts here. You're going to have to keep us posted about what they teach you about Migraines in med school. It hasn't been all that long since our son was in med school, and nothing was ever said about Migraine being a disease, about genetics, or any of that kind of info. He was taught that Migraines are vascular headaches. When you get to choosing a specialty, keep Migraine/Headache medicine in mind. There's now neurology subspecialty training available in the field. If you want any more info on it, drop me an email in the email addy in my signature.
 Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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MMC Lead Expert Supreme Guru |
Bedge,
I don't think there's an easy answer to this. There are doctors who shouldn't be doctors, just as there are such people in every profession. There's also the issue that doctors aren't usually taught much of anything about Migraines in med school. I'm hoping it's changing, but not that long ago -- when our son was in med school -- he was taught that Migraines are JUST vascular headaches. I'm really hoping that med schools are doing better now and teaching doctors-to-be that Migraine is a genetic neurological disease and about the associated issues such as increased risk of stroke and heart attack. Then there's the way doctors have to practice these days. To keep the doors open, they have to see far too many patients in a day. There's precious little time to actually listen to or talk with patients. My personal experience is that the problems aren't limited to Migraine. Even with a strong family history of thyroid disease, it took me literally 10 years to get anyone listen to me, pay attention to my symptoms, and diagnose hypothyroidism, and then it was my Migraine specialist! Hope you're doing ok! Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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