Migraine
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Migraine Community MyMigraineConnection Medications & Treatments Best abortive for hemiplegic migraine?Page 1 2
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Apprentice |
Im sorry you're not getting answers Mary. I know how frustrating that can be, regardless of what the diagnosis is, you just want to KNOW. I can just tell you briefly what happened the first time I had a hemiplegic migraine. It was the most defined, so I'll use that one.
*Sat night I woke up with vertigo/vomiting, which continued only more mildly. *Wed woke up unable to move the left side of my body for several minutes.(this spread to my right side the next day only to a lesser degree) Eventually it came back to life, though it was as if it was "asleep" and I still could not make a fist, and was limping. *My skin was numb and tingling. *I ran into doorways. Missed stairs. Dropped things. Went to pick things up and "missed." *Felt like my eyes were jumping, couldnt focus. *Had burning pain in my upper extremities like I was lifting a heavy weight constantly. Just a myriad of annoyingly frustratingly scary symptoms. Tons more, but you get the gist of it. This went on and faded after about 6 weeks, leaving me weak, but relatively "normal" lol. |
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Apprentice |
Thanks dragondrool (I feel funny calling a person dragondrool!)
 I will definitely call the office the next time I have trouble. And I am keeping careful (as careful as I know how) record of symptoms, which can sometimes be challenging when there is no head pain because I want to attribute everything to the migraine... but we shall see. So perhaps a specialist is in my not so far away future. I saw an entry on here about Getstat over the counter. I think I may give that a shot. I had already done research on feverfew for my sister who has "real" migraines, you know the kind that make your head hurt! And I had considered it, though the possible side effects of long term... well I figured medicine had just as good a chance. Though for an abortive, definitely worth a shot. And a good price too. I don't think it can hurt as it looks to be in homeopathic form. Anyway, I digress. I will definitely call the doc. Thank you for the caution.  |
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Forum Moderator Supreme Guru  |
Make sure the doctor knows you're going to try the Gel-Stat, too.
As for the dragondrool, part, you are more than welcome to shorten it and call me droolie. Everybuddy does.  Dragondrool Forum Moderator ~~8=:>>>> |
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Forum Moderator Wizard  |
Mary, it really sounds like it's time for a migraine specialist. Doctors other than migraine specialists may never have seen a case like yours, and it's important to get a good diagnosis.
Patient Recommended Migraine and Headache Specialists Take care. Nutcracker Forum moderator  |
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Community Manager Guru  |
Hi Mary,
With these episodes, you have head pain too right? Forget about being called whatever, by whomever. You know something isn't right. Keep searching for a doctor who will LISTEN and treat you. As nutcracker said, you may want to start with a Migraine specialist. If not a really, really good neurologist. Do you have any large hospitals with teaching centers attached to them near you? Or a neurology institute? I'm just thinking outloud here. Good luck. Try not to get discouraged. You deserve much better. A diagnosis and treatment plan for starters. Then your life back....
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Master |
Hi Jaimee (and Mary!) I just saw this post today, though I had to skip alot of the reading and just skim it due to migraine (ugg) I got the general idea.
Jaimee, trying to do an abortive with HM migraines is tough. It has been one of my greatest frustrations! I can tell you what I do, but Eileen and others are right, No medical advice, and get yourself a GOOD migraine specialest that is familiar with HM. First off I have Midrin. This is helpful if I can take it right at the beginning of an attack. Usually I cant, cause I have kids to pick up, drop off etc. And Midrin makes me loopy. I will sometimes take it once im in for the night, but by then all it does is dull it a bit. I have tried Gelstat. Im VERY impressed with it! I ordered one box to begin with, just to see if it works.(none of the pharmacies around here carry it) This time we ordered the 6 pack of 8 doses each. I take it just like an abortive. As soon as aura starts hitting, any sign of migraine, I take one. It either completely stops the migraine, or makes it so mild its merely a mild annoyance just about every time. Keep in mind these are with my normal migraines with aura, not the HM.(I get both) It did stop one I was sure was going to be a HM though once! Best of all, NO side effects whatsoever. It has been a wonderful help with going to church. Everytime I go, I get a migraine due to the lighting, but I take that at first sign, and I actually can pay attention to the sermon!(unlike midrin!) Again, please talk to your Dr. before trying anything. I just wanted you to know what works for me.   Tawsha |
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Master |
Hi gang. I really appreciate all of you for answering my questions and giving me ideas. Nancy, you asked if I had pain in my head associated with these episodes. The answer is yes, no, and maybe so. I have had problems with my sinuses since my parents moved our family from Idaho/Montana to southern NM in 1982. My severe allergies was only part of my problem--deviated septum from being hit with balls in the face and bullies. The most painful headaches I have ever experienced is related to my frequent sinus infections. I have been sick with chronic body pain since 1990, when I was diagnosised with CFS. But that pain in many ways was connected to my endometriosis--and that was pain that was horrible!! I had two active points of endo: one, on my left hip and two, on my ovaries. When I had my hysto I real felt like I was a new woman. I wasn't in pain all the time, and felt so different. I actually was convinced my health would be perfect from now on. Unfortunately, those pesky sinus infections kept cropping up. My doctor told me he wanted me to not take sudafed or other decongestants like I had been--daily for years to manage this problem. My ear on my left side seemed like it was always was clogged and made my head hurt plus there was a ringing like a tuning fork. My TMJ seemed to constantly be acting up. And I had vertigo everytime these problems were real bad. I also would have "motorcycle helmet focusing". These things just wouldn't stop. All of this happens regullarly three or four days a week. I have always found all of this very annoying and maddening because of how it makes it hard to do things. I don't always feel a lot of pain, just a series of events that drive me insane. So do I feel pain yes, no, maybe so. Mary in NM |
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Migraine Community MyMigraineConnection Medications & Treatments Best abortive for hemiplegic migraine?
