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    Migraine Community  Hop To Forum Categories  MyMigraineConnection  Hop To Forums  General Discussion    how come we don't have a migraine walk?
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Grand Wizard
Picture of MaxJerz
Posted
Yesterday at our morning staff meeting at work, we had some reps from the local chapter of the National MS Society come speak to us about the walking in or donating to the MS Walk that we have here in the area every spring. (My office does a lot of charity work for a few key causes, namely Susan G Komen, the MS Society and United Way.)

So this gets me thinking... why don't we migraineurs have anything like this?? Light Bulb

It seems like many disease sufferers do these walks now, as a way to raise both awareness and funds for research. A lot of times, the sufferers themselves can't do the walks but their loved ones or sponsors do the walks and the survivors/sufferers cheer them on.

There's got to be a way we can get something like this started and donate the proceeds to the AHDA. It looks like they have some fundraising events in the UK ... so why not get it started in the States??

Any ideas on how we can get this started???


-MJ

my blog: http://rhymeswithmigraine.blogspot.com/

"What will you do, if it does not turn out how you expect?"
"I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest



 
Posts: 2038 | Location: western WA | Registered: 06-01-2007Reply With QuoteEdit or Delete MessageReport This Post
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
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Ahhhhhhhhhh, great minds! We're planning to do these all over the country. We have a lady with the AHDA who is going to be setting it up!



Teri Robert
Lead Expert, MyMigraineConnection
terimmc@helpforheadaches.com




The generally long periods of time between my Migraines are the result of working with a Migraine specialist to refine my preventive regimen. You can see my current regimen HERE.

 
Posts: 3066 | Location: West Virginia | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
Supreme Guru
Picture of dragondroolHOST
Posted Hide Post
Sounds cool to me! Smiler



Dragondrool
Forum Moderator


~~8=:>>>>
 
Posts: 3087 | Location: Montana | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
Grand Wizard
Picture of MaxJerz
Posted Hide Post
Teri, I'm glad to hear someone at the AHDA is working on this! I think this could really help us out. Thumbs Up


-MJ

my blog: http://rhymeswithmigraine.blogspot.com/

"What will you do, if it does not turn out how you expect?"
"I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest



 
Posts: 2038 | Location: western WA | Registered: 06-01-2007Reply With QuoteEdit or Delete MessageReport This Post
Maven
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Great idea, as long as I don't have to do the walking!! Big Grin he he


LauraSue.
(I'm 54, have had severe migraines for over 4 years due to menopause, plus I have fibromyalgia. I take Imitrex plus Anaprox as an abortive and am working with my migraine specialist to find a preventive. I keep a detailed migraine diary and have made significant lifestyle changes to reduce my risk of migraines.)


MENOPAUSE COUNTDOWN:


 
Posts: 558 | Registered: 05-03-2007Reply With QuoteEdit or Delete MessageReport This Post
Master
Picture of MedievalWriter
Posted Hide Post
quote:
Originally posted by Teri Robert:
Ahhhhhhhhhh, great minds! We're planning to do these all over the country. We have a lady with the AHDA who is going to be setting it up!



YESH!!!!

Even if I can't walk I know people who will.

Good. We'll get email info from the AHDA with details? Big Grin







http://stormlaughter.blogspot.com/
http://stormlaughter.deviantart.com/
basilar-artery migraine, MAV, BPPV, migraine with and without aura, cluster headaches, but no tension headaches! W00t! Smiler
 
Posts: 459 | Location: Central Alabama | Registered: 01-13-2007Reply With QuoteEdit or Delete MessageReport This Post
Wizard
Picture of DebMomm
Posted Hide Post
We used to do walks when I was with La Leche League, to bring attention to breastfeeding week. It was supposed to be a mile walk, but we always did a "symbolic" mile in a nice, air conditioned mall. I would bet any walk would welcome your attendance even if you didn't walk. The importance is in the numbers attending, not walking.

I think it sounds like a great idea.


Deb




 
Posts: 1734 | Location: St. Louis | Registered: 01-13-2007Reply With QuoteEdit or Delete MessageReport This Post
Apprentice
Picture of Dave4Sol
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Light BulbAwesome idea.

Sol and I are big advocates in trying to get "Walk for Lupus" in more states and think that having one for migraine disease would be great.

Even if you can't walk often many people you know can. My teenage sons recruit schoolmates each year for the lupus walk. I am sure they would do the same for migrianes.

Peace,

Dave
 
Posts: 206 | Location: with solveig | Registered: 02-03-2007Reply With QuoteEdit or Delete MessageReport This Post
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
Posted Hide Post
MJ,

I agree that this could be very good for raising awareness, maybe even some funding. Will keep everyone updated.

quote:
Originally posted by MaxJerz:
Teri, I'm glad to hear someone at the AHDA is working on this! I think this could really help us out. Thumbs Up



Teri Robert
Lead Expert, MyMigraineConnection
terimmc@helpforheadaches.com




The generally long periods of time between my Migraines are the result of working with a Migraine specialist to refine my preventive regimen. You can see my current regimen HERE.

 
Posts: 3066 | Location: West Virginia | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
MMC Lead Expert
Supreme Guru
Picture of Teri Robert
Posted Hide Post
LOL!

quote:
Originally posted by LauraSue:
Great idea, as long as I don't have to do the walking!! Big Grin he he



Teri Robert
Lead Expert, MyMigraineConnection
terimmc@helpforheadaches.com




The generally long periods of time between my Migraines are the result of working with a Migraine specialist to refine my preventive regimen. You can see my current regimen HERE.

 
Posts: 3066 | Location: West Virginia | Registered: 01-11-2007Reply With QuoteEdit or Delete MessageReport This Post
Master
Picture of MedievalWriter
Posted Hide Post
Does the AHDA need any help with getting the word out with this? Is it far enough along yet?

I would be THRILLED to volunteer to notify the TV media and newspapers and medical community and anyone that the AHDA doesn't already have easy connections to notify around here. Well, I volunteer my Assistant Offspring to do it. Razzer Heck, I'll contact my Senators and Congressional Reps and all my local elected officials. Can't tell me they or someone they know isn't affected by migraine, right? Yes

What should I do Teri? I'd love to help.







http://stormlaughter.blogspot.com/
http://stormlaughter.deviantart.com/
basilar-artery migraine, MAV, BPPV, migraine with and without aura, cluster headaches, but no tension headaches! W00t! Smiler
 
Posts: 459 | Location: Central Alabama | Registered: 01-13-2007Reply With QuoteEdit or Delete MessageReport This Post
Apprentice
Picture of Riley73
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This would be huge! I am there. Let me know if there's anything I can do to help out Blinking

Lori
 
Posts: 128 | Location: NJ | Registered: 02-05-2008Reply With QuoteEdit or Delete MessageReport This Post
Master
Posted Hide Post
I'll do it as long as it is at night! Stupid Sunlight trigger!

LOL...

I have thought the same thing. For such a common condition, there is almost no awareness or discussion.

Though I will say, I was surprised/pleased to find a full page in the April issue of Vouge devoted to alternative treatments for migraine. It wasn't really an "article" per say, but having something like that on the pages of Vouge makes us a little more visible.
 
Posts: 457 | Location: Jersey City Nj | Registered: 01-15-2008Reply With QuoteEdit or Delete MessageReport This Post
Grand Wizard
Picture of LauraHOST
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This sounds like a great way to get some funding! I have a bunch of kids who would love to walk with me. (They just don't know it yet LOL)


Laura
Forum Moderator

***You're welcome to enter your birthday, etc in the Celebrate folder so we can party with you!! =) ***

 
Posts: 2266 | Location: Virginia Beach, VA | Registered: 05-17-2007Reply With QuoteEdit or Delete MessageReport This Post
Novice
Picture of amigraineur52
Posted Hide Post
quote:
Originally posted by Teri Robert:
Ahhhhhhhhhh, great minds! We're planning to do these all over the country. We have a lady with the AHDA who is going to be setting it up!


Teri,
Add my name to that list!

Debbie
 
Posts: 50 | Location: Brockport, NY | Registered: 04-02-2008Reply With QuoteEdit or Delete MessageReport This Post
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    Migraine Community  Hop To Forum Categories  MyMigraineConnection  Hop To Forums  General Discussion    how come we don't have a migraine walk?

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