Migraine

I had to exercise my appeal rights, but they approved it.

Now I'm waiting to hear from Social Security.

Migraine isn't the only thing I've got going on. I've got Meniere's Disease, thyroid disease--I've got a biopsy in a couple of weeks on another nodule that's started growing (I've got 11 nodules in all--yes, eleven). I can't even remember everything I have to deal with on a daily basis. Elder Assistant Offspring has had to deal with OPM and my employer and my Union nearly by herself because, well, I'm disabled and I can't do it.

No way I can deal with Migraine that's now out-of-control too.

I'm off for a good cry. I knew I was disabled but seeing it in writing from my employer when I ASKED them to tell me so has made me feel different than I thought it would.

Hang in there, MW. Hopefully, in time, you'll be able to concentrate even more on taking good care of you, since you'll have that one less thing to worry about.



~Sandi~

Hi MW,

Saying you're disabled, and "being" disabled are two different things aren't they? Do you know what I mean? Seeing it writing kind of makes it official.

This should cheer you right up. This is what I wrote to my Senators today. Talk about depressing....

My Migraines and headaches impact not only me but my entire family. It's true that when one family member has a disease such as Migraine disease the whole family has it. My inability to work, due to Migraines and chronic headaches makes my entire family suffer. My inability to be there for school events, family gatherings, holidays, and other times when family needs me has dramatically decreased the quality of life of every member of my family. Why is it that the NIH spends so many more of my tax dollars funding research for other diseases that impact far fewer Americans, some of them far less severely. Please help us! Help me be a better mother, wife and community member and have a better life. Please also help my two children and all the other children who have inherited Migraine disease.

I would imagine someone finally, "officially" saying you're disabled would be a shock. Hang in there.

It's like you feel when the judge signs your divorce papers and the clerk of the court stamps them.

Everyone around you is cheering but you're crying even if it was you who sued for the divorce.

Nancy, your words to your Senator said it all.

Sandi, yes, this is what I plan to do now that I can't work at a job: work full time at getting well.

Deb: yep, "shock" is a good word.

I'll get over all this shortly. Thanks for being here, loved ones everyone. I can feel your good thoughts and prayers.

We're here for you.

Suzie - I've got a dear friend with MS - she's a physician and helps others deal with getting on disability! now she's facing being unable to work any more herself and very reluctant to call herself "disabled." anyway i guess what I'm saying is - you're not alone, and you sure are human!

hang in there baby!

- Megs

I never read past the first paragraph of the letter that said I was approved. Elder Assistant Offspring read the whole thing when she got home from work.

It says I'm disabled due to Meniere's disease, migraines, cluster headaches, and vertigo. Doesn't mention my thyroid disease or mitral valve prolapse or any of my other things.

Yep. My full-time job now will be to get well. Just having this stress off of me will get me off on the right foot.

Love you all, dear ones.

MW,
and take care of yourself you can.

Take care my friend.

Cindy