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Novice
Picture of Miriam36
Posted
You know how frustrating it is so explain to someone what a visual aura looks like? Here is a link to the best depiction I've ever seen! It's EXACTLY what my aura does over the entire 50 minutes that it lasts. What do you think?

http://www.migraine-aura.org/content/e27891/index_en.html
 
Posts: 96 | Location: Minnesota | Registered: 02-11-2008Reply With QuoteEdit or Delete MessageReport This Post
Grasshopper
Picture of JayDocTC
Posted Hide Post
That is fascinating! Thank you for posting that. I've had migraines for years, but never with aura. I had an idea what they must be like from reading about them, but that was really helpful (I'm a medical student, so it's doubly helpful).
 
Posts: 38 | Location: Kansas City | Registered: 04-10-2008Reply With QuoteEdit or Delete MessageReport This Post
Grasshopper
Picture of Helpless
Posted Hide Post
I've seen this before and it is interesting. My aura is a black dot - it gets bigger and bigger - and then WHAMMO! I guess everybody is different...


Helpless in Illinois
 
Posts: 36 | Location: Illinois | Registered: 03-24-2008Reply With QuoteEdit or Delete MessageReport This Post
Master
Picture of ValerieH
Posted Hide Post
Cool Cool I'm sure it's not when you have it, but I've never had visual aura with my migraines- this is scary but fascinating at the same time!

Valerie
 
Posts: 279 | Location: TX | Registered: 03-29-2008Reply With QuoteEdit or Delete MessageReport This Post
Fledgling
Picture of Ursula
Posted Hide Post
That was very close to what my aura looks like. Mine will start out as a black spot or place of missing vision and then the zig-zag appears. Usually starts in the lower right corner of my field of vision. I'm lucky if it happens only in one eye, but if it happens in both, then it's going to be a doozy. 30 minutes minimum and I have had it over an hour. And occasionally, intermittently during a 4 hour period (when I took Excedrin).

Thanks for sharing!
 
Posts: 13 | Location: Virginia | Registered: 04-08-2008Reply With QuoteEdit or Delete MessageReport This Post
Grasshopper
Picture of JayDocTC
Posted Hide Post
For those of you who have aura: is there anything that you do or any medications you take that typically help reduce or "abort" the aura? How long do your auras usually last and when do they come (i.e., before headache, simultaneous, etc.).
 
Posts: 38 | Location: Kansas City | Registered: 04-10-2008Reply With QuoteEdit or Delete MessageReport This Post
Master
Picture of MedievalWriter
Posted Hide Post
quote:
Originally posted by JayDocTC:
For those of you who have aura: is there anything that you do or any medications you take that typically help reduce or "abort" the aura? How long do your auras usually last and when do they come (i.e., before headache, simultaneous, etc.).


Man I wish.

Nothing I've ever tried aborts aura symptoms.



8']

http://stormlaughter.blogspot.com/
http://stormlaughter.deviantart.com/
basilar-artery migraine, MAV, BPPV, migraine with and without aura, cluster headaches, but no tension headaches! W00t! Smiler
 
Posts: 454 | Location: Central Alabama | Registered: 01-13-2007Reply With QuoteEdit or Delete MessageReport This Post
Novice
Picture of Miriam36
Posted Hide Post
I can't abort my aura. As soon as any aura starts (visual, numbness, speech problems, confusion, weakness, etc....I just have to ride it out. If I take something for pain during my aura...it helps reduce the pain to come...but not by much.
 
Posts: 96 | Location: Minnesota | Registered: 02-11-2008Reply With QuoteEdit or Delete MessageReport This Post
Grasshopper
Picture of Helpless
Posted Hide Post
My aura stays with me THE ENTIRE migraine. It's quite annoying - and they sometimes last 3 days...driving is fun... Big Wink

Pam


Helpless in Illinois
 
Posts: 36 | Location: Illinois | Registered: 03-24-2008Reply With QuoteEdit or Delete MessageReport This Post
Master
Picture of MedievalWriter
Posted Hide Post
It's disheartening reading some places that try to cookie-cutter migraine with aura.

They'll tell you it must last only a certain number of minutes and always stops before the pain phase begins blah, blah, blah.

My aura starts sometimes DAYS before the pain phase starts. And like yours, Helpeless, it goes throughout the entire attack.

I believe the fact that the tripans don't seem to stop the firestorm of misfirings in my brain is why I'm ambivalent about them. They don't touch the misfirings, they don't help the pain, they cause crushing pain in my chest, they make the muscles in my neck squeeze so tightly that Imitrex once reduced my air flow, they cost a fortune, and I just don't see why Dr. Breathtakingly Arrogant is miffed that I don't want them for migraine.

He knows I have basilar artery migraine--OH had one, what day was it last week, lost sensation in both arms and my vision just went darker and darker until it was at about 50% of normal. Stayed that way for about 10 minutes. It wasn't right for another 24 hours. And I had the migraine pain, nauseas, and motion-sensitivity along with it and cognitive dysfunction--worthless, I was worthless. I remember now--it was Saturday. I put in my blog that I was was worthless and useless in this state but that I'd be this way in any state, and Alabama was as good as any. Razzer



8']

http://stormlaughter.blogspot.com/
http://stormlaughter.deviantart.com/
basilar-artery migraine, MAV, BPPV, migraine with and without aura, cluster headaches, but no tension headaches! W00t! Smiler
 
Posts: 454 | Location: Central Alabama | Registered: 01-13-2007Reply With QuoteEdit or Delete MessageReport This Post
Grasshopper
Picture of JayDocTC
Posted Hide Post
Fascinating - thanks for all the great info! I have never had aura (knock wood), so it is really interesting to hear from those of you who have. I can certainly imagine how aura would make dealing with migraine that much more, um, "challenging."

I was talking to a friend and fellow student last night who does laboratory research on migraines; he was telling me that some recent research suggests that part of the pathogenesis of migraine is related to mast cell activity in the dura. Mast cells are a type of white blood cells and are well-known for their involvement in inflammation, most notably in allergic reactions and asthma. Apparently there is evidence that the mast cells release small proteins as part of the inflammatory response. These proteins then act as neurotransmitters and appear to play a role in aura, facial and scalp pain and other migraine symptoms as they travel through nerves associated with the dura (one of the membranes that covers the brain and spinal cord).

I discussed this with my neurologist this morning (she was aware of this research already, of course) and she prescribed some prednisone to take along with the abortives and/or rescue meds. It will be interesting to see if that helps. I've seen a number of folks on the boards here who are also taking steroids, but for those of you who haven't tried it yet it might be worth discussing with your physicians.

If anyone has tried prednisone (or other steroids) I'd be interested to hear what your experiences were...
 
Posts: 38 | Location: Kansas City | Registered: 04-10-2008Reply With QuoteEdit or Delete MessageReport This Post
Novice
Picture of Miriam36
Posted Hide Post
That is the most interesting thing I've heard in a long time concerning migraines. Maybe we'll see a cure in the near future!!
quote:
Originally posted by JayDocTC:
Fascinating - thanks for all the great info! I have never had aura (knock wood), so it is really interesting to hear from those of you who have. I can certainly imagine how aura would make dealing with migraine that much more, um, "challenging."
I was talking to a friend and fellow student last night who does laboratory research on migraines; he was telling me that some recent research suggests that part of the pathogenesis of migraine is related to mast cell activity in the dura. Mast cells are a type of white blood cells and are well-known for their involvement in inflammation, most notably in allergic reactions and asthma. Apparently there is evidence that the mast cells release small proteins as part of the inflammatory response. These proteins then act as neurotransmitters and appear to play a role in aura, facial and scalp pain and other migraine symptoms as they travel through nerves associated with the dura (one of the membranes that covers the brain and spinal cord). I discussed this with my neurologist this morning (she was aware of this research already, of course) and she prescribed some prednisone to take along with the abortives and/or rescue meds. It will be interesting to see if that helps. I've seen a number of folks on the boards here who are also taking steroids, but for those of you who haven't tried it yet it might be worth discussing with your physicians.
If anyone has tried prednisone (or other steroids) I'd be interested to hear what your experiences were...
 
Posts: 96 | Location: Minnesota | Registered: 02-11-2008Reply With QuoteEdit or Delete MessageReport This Post
Novice
Picture of Miriam36
Posted Hide Post
The aura I have today is a big blob that I've had for almost 12 hours. I'm WAITING for it to just go away. I've had pain, vertigo and nausea with it also.
quote:
Originally posted by Helpless:
My aura stays with me THE ENTIRE migraine. It's quite annoying - and they sometimes last 3 days...driving is fun... Big Wink

Pam
 
Posts: 96 | Location: Minnesota | Registered: 02-11-2008Reply With QuoteEdit or Delete MessageReport This Post
Novice
Picture of Miriam36
Posted Hide Post
I agree...aura presents itself differently all the time. I just posted this website because it really reflects how my heavy duty visual aura happens. It's shimmery, zigzaggy and looks so much like that video. My aura today is completely different.
quote:
Originally posted by MedievalWriter:
It's disheartening reading some places that try to cookie-cutter migraine with aura.

They'll tell you it must last only a certain number of minutes and always stops before the pain phase begins blah, blah, blah.

My aura starts sometimes DAYS before the pain phase starts. And like yours, Helpeless, it goes throughout the entire attack.

I believe the fact that the tripans don't seem to stop the firestorm of misfirings in my brain is why I'm ambivalent about them. They don't touch the misfirings, they don't help the pain, they cause crushing pain in my chest, they make the muscles in my neck squeeze so tightly that Imitrex once reduced my air flow, they cost a fortune, and I just don't see why Dr. Breathtakingly Arrogant is miffed that I don't want them for migraine.

He knows I have basilar artery migraine--OH had one, what day was it last week, lost sensation in both arms and my vision just went darker and darker until it was at about 50% of normal. Stayed that way for about 10 minutes. It wasn't right for another 24 hours. And I had the migraine pain, nauseas, and motion-sensitivity along with it and cognitive dysfunction--worthless, I was worthless. I remember now--it was Saturday. I put in my blog that I was was worthless and useless in this state but that I'd be this way in any state, and Alabama was as good as any. Razzer
 
Posts: 96 | Location: Minnesota | Registered: 02-11-2008Reply With QuoteEdit or Delete MessageReport This Post
Novice
Picture of Miriam36
Posted Hide Post
I wonder if a lot of us migraineurs have allergic responses to a lot of things. I absolutely do. How about the rest of you? I get hives for no reason a lot of the time. I have developed alleries to lots of meds since I was about 20 and ever since. I take plenty of benadryl Smiler I wonder if benadryl helps with the mast cell inflammatory response also? hmmmmmm.....

quote:
Originally posted by JayDocTC:
Fascinating - thanks for all the great info! I have never had aura (knock wood), so it is really interesting to hear from those of you who have. I can certainly imagine how aura would make dealing with migraine that much more, um, "challenging."
I was talking to a friend and fellow student last night who does laboratory research on migraines; he was telling me that some recent research suggests that part of the pathogenesis of migraine is related to mast cell activity in the dura. Mast cells are a type of white blood cells and are well-known for their involvement in inflammation, most notably in allergic reactions and asthma. Apparently there is evidence that the mast cells release small proteins as part of the inflammatory response. These proteins then act as neurotransmitters and appear to play a role in aura, facial and scalp pain and other migraine symptoms as they travel through nerves associated with the dura (one of the membranes that covers the brain and spinal cord). I discussed this with my neurologist this morning (she was aware of this research already, of course) and she prescribed some prednisone to take along with the abortives and/or rescue meds. It will be interesting to see if that helps. I've seen a number of folks on the boards here who are also taking steroids, but for those of you who haven't tried it yet it might be worth discussing with your physicians.
If anyone has tried prednisone (or other steroids) I'd be interested to hear what your experiences were...
 
Posts: 96 | Location: Minnesota | Registered: 02-11-2008Reply With QuoteEdit or Delete MessageReport This Post
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