Migraine

Let me say, I am simply amazed at the progress I have made in the last month and a half! I cannot believe how things have been changing.

I am finally consistently getting out of bed , consistently doing housework , consistently getting out of the house and running errands . A couple weeks ago I chanced it and flew to visit a dear friend for 4 days and my head held up for the most part! And this week, I volunteered at BOTH places I want to be volunteering at ! Holy cow, who's body is this!!!!

I still have limitations. My NDPH keeps me in check. And I have days where my body is just so exhausted even before attempting anything. If I do an activity for an hour, I have to rest/relax for several hours and give my head a break. Activity increases the severity of my daily headache, but it is managable! I just listen to my body and take lots of breaks.

I have gotten random Migraines here and there, but oh man, what a difference from before!!! In 33 days in Feb/March, I had 26 Migraine days! In the 33 days March/April I had 4 Migraines...yep, you read that right four! And my menstrual Migraines were non-existent last cycle! Am I dreaming?

Everyday, I am appreciating every little thing I can do. If things change back to how they were, I will know that I've appreciated every second of this improvement and I know that it is possible to improve! Even the days that I am only minimally active or in bed with a Migraine, my life is so drastically different than it was a little over a month ago.

Lots of happy dancing going on in our household!

Thank you all for being with me in my darkest moments and my brightest (well since bright is not good for Migraineurs, how 'bout I say heart-warming) joys.


Kelly

Hey there,
That really is wonderful that you are feeling so much better! It is also great that you can see such a difference and enjoy the ways that you are feeling better. (I am soooo envious! lol ) I really hope that this change is going to be your new normal. to this lasting a LONG time and continueing to get better! Good luck!
Alaura

Kelly,
you just made my day! I hope things continue to go as well for you over the next month as it did this one! Isn't it nice to see something other than the bedroom walls?!


Enjoy every minute!

Kelly,

I am so excited for you! I'm doing a Happy Dance with an extra wiggle to help you celebrate. You've come such a long way and I hope it continues!

Kelly,
I am so happy for you. What does Knightly think of all this activity? He must be thrilled too.

Take care dear friend and enjoy!!

Cindy

Kelly, that's amazing. I'm so glad you're feeling better.

Kelly,
I am so happy for you, it is so great to hear such a success story, I hope it continues, can I ask what you have done different? You may have posted some other place but have not seen it yet.
Robin

Kelly-


That is great news You deserve it. You worked hard with your Dr to get here. Enjoy everyday

Yeah Kelly!! So happy for you. I have to say when I read that you got to your volunteer places I said, Yes! That's my goal, to be dependable again. I hope you and your husband and Knightley enjoyed this beautiful weekend!

lisa, who if you teach her to knit would gladly help with your ice hat business!!

I would attempt one million scaly somersaults in honor of your spiffy success but for the fact that I'd probably break things (including parts of me). Guess you'll have to settle for plan B...





I knew you'd get there, dearie!

Alaura, Thank you. I also hope that my new normal keeps progressing and changing for the better! I hope I never get back to where I was these last 6 months.

Jamie, It is *so* good to see something better than my bedroom walls! I'm actually finding that I'm having to "relearn" social skills . It is actually quite difficult. I'm not used to interacting with anyone else except for DH and my drs (IRL anyway). But I'd rather have this problem than feeling like a piece of furniture in my bedroom.

Laura, Thank you for the dance with the extra wiggle!

Cindy, Knightley follows me from room to room and doesn't know what to do with himself. But, he'll learn. He loves going outside for walks! So many new smells to investigate!

Thanks Deb!

Hi Robin! Well, I changed to a new preventative, yet again. This one just happens to be the one that my body likes. I was totally shocked when I responded to it. I'm on a very low dose of Gabitril.

Thanks Trene. I think we all deserve it.

Lisa, Thank you for being so happy for me! I wouldn't say I'm dependable again yet. That is my goal too. The places I volunteer at are very flexible and understanding that if I have a Migraine/increased NDPH then I can't come. One place is our church food pantry where my DH is a leader (we met there) and they always need people to help. The other place is the infant room at our church's mid-week childcare. They also are fine with me canceling last minute, fine with me leaving early and supportive despite my limitations. It was a beautiful weekend--had a nice walk outside yesterday! Although today I was in bed with a cold. I hope you were able to enjoy the weekend! I'd love to talk with you more off the forum about the knitted hats. You can msg me privately by my profile on mymigrianeconnection here.

Droolie, Thank you for your unending support and for even thinking of doing somersaults! Brought a huge smile to my face.

Big s to all of you.

Kelly

Whoo-hoo!! That's such wonderful news! You deserve a cake - :-)

Thanks for keeping everyone updated. It's wonderful to be celebrating with you!

~Rachel

HOOORAAAAY Kelly!
I'm sorry I missed this until now, but now that I've found the good news: I AM SO HAPPY FOR YOU! My heart is overflowing with gladness that you are no longer feeling like furniture in your bedroom, but feeling so much improved that you are out volunteering! Four migraines a month is absolute Dancing on the Ceiling beautiful craziness from where you were, and I am rejoicing that you are experiencing such a change.
Hugs, Hugs, and more Hugs to you - does this mean they don't have to be gentle anymore?

Shumanay

Thank you Rachel for the cake! YUM!

And thanks Shumanay for being so happy for me!

s to both of you!

Kelly

Kelly - im late in seeing this, but I just want to say, I am so glad that you are feeling more positive and enjoying your life again! Im proud of you and how hard you have worked to get at this stage!

I know its been a hrad journey, but remember - we will be here walking this path with you, in the dark and the bright days!

Enjoy dear freind!

Many hugs to you

Gail