Migraine
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Migraine Community MyMigraineConnection New Info on MyMigraineConnection New Daily Persistent Headache – The Basics|
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MMC Lead Expert Supreme Guru  |
 In the last few years, New Daily Persistent Headache (NDPH) has been recognized as a distinct primary headache syndrome... As you look at the symptoms, you'll find that some of them are characteristic of tension-type headache; others are more characteristic of Migraine disease. NDPH is unique, however, in that many patients can tell you the exact date when their headache began...Read New Daily Persistent Headache – The Basics  Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Fledgling |
Hi Teri -
Is this the new term for "tranforming migraine"? That's what I was diagnosed as and it seems almost the same to me. Thanks Liz |
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MMC Lead Expert Supreme Guru |
Liz,
No, TM and NDPH are two different disorders. NDPH isn't Migraine, even though it can have some Migraine-like symotoms. TM is essentially when Migraine becomes more frequent, then "transforms" into daily headache (again, not Migraine) along with episodic Migraine attacks. I know it's confusing. If what I said isn't clear, just let me know, please? Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Maven |
I think that even if most headaches or migraine attaches could be remembered when they started for me. I know that I would be part of the percentage that couldn't remember when they started. I have the hardest time remember when things start or didn't start. Bad Memory is definatly something I struggle with.
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MMC Lead Expert Supreme Guru |
Joyce,
If I'm following you correctly, you're talking about remembering the time at which an individual headache or Migraine begins? NDPH is daily, and the point here is that unlike chronic headache or Migraine, many patients with NDPH can pinpoint the exact date when NDPH began.
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Novice |
Teri, I just ready your shared post on New Daily Persistnet Headache!
Oh boy! I just woke my husband up out of his really well deserved Sunday afternoon nap. That might actually be it. November 8th, that's the day my hell started. It's never gone away. But can you have visual problems with NDPH. If that's it what do I do now? Why would my doctor not give me that for a diagnosis? It says there's really no cure? If that's true, what do I do? Can they treat it as a migraine and get results? I did a quick search of the web but didn't get far. What kind of results can someone with NDPH expect and when? I want to call my doctor. I've tried the Topamax. I want to call and ask to try Neurontin. I've never been forward with him like that maybe I should give it a try. |
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MMC Lead Expert Supreme Guru |
Doah,
Did you read just my post, or did you read the article too? Please go back and read the article again, slowly. I think many of your questions will be answered there. Sometimes, NDPH will respond to the "normal" preventive meds. There have been reports of good results with Neurontin and Topamax. Although there have been some Migrainous symptoms reported, such as nausea, sensitivity light, etc., I don't think I've ever heard of visual symptoms with NDPH. Next time you see your doctor ask about this. I don't remember what kind of doctor you see, but unless he's an actual headache and Migraine specialist, he may not know about it.
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Fledgling |
I just read the post and have been reading about NDPH for a few hours now. I had mono a 4 or 5 months ago and as soon as my mono ended I started getting migraine headaches, but never nausea, or never severe nausea.
I was put on topomax for migraines and got good relief after a few weeks but the side effects were so severe on my mood that I got off it and started trying other medications. I had had migraines in the past for a few years but this is where they became an almost everyday occurance. Where none of the migraine specific drigs have worked except for the topomax and sumutriptan when It was undeniable that I was having a migraine. Now that I think back I can distinctly pull apart specific times when i was having a migraine, and then usually it is just tension, a lot behind the eyes, pulsating but also like a C clamp is over my temples, and stabbing at the same time like needles stuck in my temples behind the eye. anyway I was wondering where I should go to see if this diagnosis might fit for me. It would explain the reason My headaches are so severe and unrelenting also the reason the the usual migraine specific treatments have no effect. except for the times I can definitively say that I was having a migraine, usually because there was nausea involved. Does anyone think that this might fit. Teri, I know u have responded to almost all of my posts. IF u think this is there a place that can tell the difference between this and CDH for medication overuse etc.. I am also getting an occipital nerve block this monday is there anything that might make that procedure dangerous if I did have CDPH. Out of all the things I have read this is what seems to fit me the most. it somewhat of a relief. Its pretty much come down to MOH which I have tried to rule out. But considering the mono (or actually a cousin of mono) and being able to pinpoint exactly when my headaches started as well as when they got better (topomax) and then worst again, since I was off the topomax. any input would be great. other peoples experienced, how they were diagnosed, what worked, what didnt, etc.. |
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MMC Lead Expert Supreme Guru |
Hey there, Matt,
I haven't replied to you in the pain management discussion yet, and this will be kind of short because I had some outpatient tests this morning and am supposed to be in bed. But, I did want to at least try a response to this. NDPH is a toughie to diagnose at times. It is generally NOT pulsating, and I notice you said yours are pulsing. It's essential to have an MRI with and without contrast to ruleo ut other conditions and a lumbar puncture to rule out infection and problems with cerebrospinal fluid pressure (such as psdueotumor cerebri. Please do NOT let a doctor tell you that you can't have pseudotumor because he doesn't see it on an MRI or doesn't see any papilledema in an eye exam. The ONLY truly definitive test for it is a lumbar puncture. Let's see, what else did you ask? I don't know of any reason why the possibility of NDPH would be a problem with occipital nerve blocks, but I'm not a physician, so be sure to ask the doctor that question, please. Regarding MOH -- I know you eliminated triptans and NSAIDs, but if you're taking opioids more than two days a week, MOH is still a possibility, and that's one thing about a diagnosis of NDPH -- it's critical the MOH be ruled out too. Just a guess here -- once it's certain that there's no possibility of MOH, if a doctor is considering NDPH, he or she might want you to try Neruontin since Neurontin and Topamax are the two preventives that have been sometimes shown to help with NDPH. Sorry if I missed anything here. Don't know if I'm going to be back on the forum this evening or not. If not, I'll be here tomorrow, so please let me know what, if anything, I missed? Thanks!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Fledgling |
thanks for the help. Good luck with your tests, hope your feeling better.
Matt. |
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MMC Lead Expert Supreme Guru |
You're welcome, Matt; and thanks. I'm doing fine.
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Migraine Community MyMigraineConnection New Info on MyMigraineConnection New Daily Persistent Headache – The Basics
