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Migraine Community MyMigraineConnection New Info on MyMigraineConnection My Life With Migraine Disease and Headaches|
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MMC Lead Expert Supreme Guru  |
Excerpt 2 - "Living Well With Migraine Disease and Headaches"
Chapter 1: Introduction, My Life With Migraine Disease and Headaches The first time I remember having a Migraine attack was when I was six-years-old. At the time, I didn't realize what it was. There were these spots floating around in my vision that I couldn't see through. Then my head started hurting so badly that I began crying. Crying just made it worse. It was a summer day, and the light coming through the window in my bedroom hurt my eyes, so I closed the curtains and buried my face in my pillow. I couldn't stay that way long because I needed to vomit. My father brought a large bowl from the kitchen so I didn't have to get up. Vividly, I remember him wiping my face with a cold cloth and gently rubbing my back until I fell asleep. My mother had these "headaches," too. At the age of six, I didn't really understand them, but I knew my mother would sometimes be in bed with her headaches for days. My parents have told me that the pediatrician said I was "high-strung" and had Migraines like my mother. All they could do was try to give me aspirin and hope I'd go to sleep... Continue reading Excerpt 2 - "Living Well With Migraine Disease and Headaches."  Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Forum Moderator Grand Wizard  |
I love that you are sharing this with us Teri! Thanks a bunch
 Laura Forum Moderator ***You're welcome to enter your birthday, etc in the Celebrate folder so we can party with you!! =) ***  |
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MMC Lead Expert Supreme Guru |
Thanks, Laura. It's my pleasure!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Forum Moderator Wizard  |
Teri,
even though I'd read this a million times and know your story, i read it again this morning after a night where relief was just not coming. feeling better now, albeit after a long cry and s'more frova (Paid for it out of pocket- $189/box @ costco) your story always makes me remember that this is doable, and that i WILL find something that lets me have the level of relief from the migraine monster that you've achieved. thanks again for posting this. i think it's going to be a good reminder for a lot of us here.  , jamieJamie Forum Moderator  |
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Apprentice |
Thank you for sharing your story Teri.. You've made me think there is hope yet. I am so very desperate to get some control over my head, and right now my head is controlling everything. My life is completely on hold.
I have an appointment in May at Jefferson. I have heard the doc's there are the best and based on your personal experience I am even more hopeful. And less nervous too, since you described some of the 6 hour appt!!( they don't like to explain anything on the phone) So, again, Thank you for sharing and I am very glad that I found this forum. Pain free moments to all.. Lori |
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MMC Lead Expert Supreme Guru |
Jamie,
You're welcome, and thank you. I'm glad reading it again helped you!!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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MMC Lead Expert Supreme Guru |
Lori,
You're very welcome! Always remember two things:
You're right. The Jefferson staff doesn't explain things very well on the phone. As your appointment gets closer, just post if you want to talk about what to expect or need other help preparing.
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Maven |
Teri,
Thanks for sharing your story. I ended up reading the whole thing. I gave me just what I needed today...Hope. Dar |
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MMC Lead Expert Supreme Guru |
Dar,
You're very welcome. Keep hoping!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Apprentice |
Teri,
When my migraines motivated me to seek a preventative medication, I felt isolated because I didn't know of others with migraines as frequent as mine. My first visit with a neurologist (a referral from an ER doctor) was overwhelming at best. Later that same week my mother found your book and shared it with me. I was consumed with your story. It was the first time I didn't feel alone with migraines. I realized I wasn't overreacting to what I was experiencing and there was a path that would lead me to a better quality of life. The challenge is finding the right path for me. There are times of frustration as I try to find the right preventative medication and lifestyle changes, but I've also found improvement. My neurologist recently referred me to a HA specialist. He asked me if there is a time in my future I see days without pain. I quickly answered, "yes!" I was offered that hope and the support to think that, with confidence, when I read your story for the first time. As Lance Armstrong has said, "When we share our stories, we learn we are not alone in the fight." Teri, thank you for sharing your story. Liz |
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MMC Lead Expert Supreme Guru |
{{{{{{Liz}}}}}}
Thank YOU for sharing too. Reading this gave me chills. I can remember my father telling me how much power words can have. It took me many years to come to fully understand that. That's what my story is -- words. To this day, it amazes me that words read by someone whom I have never met can have such impact. Please continue to share your progress with us so you can inspire others, reinforce that they aren't overreacting, that there is a "path to a better quality of life." You're very welcome, and again, thank you. hugs!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Apprentice |
Thank's Teri. I alway's feel guilty A little here because I don't have migrain's. But you'r story bring's back memorie's of when my daughter was little. 5 or 6 year's old. She would have migrain's.
She would hurt so bad. Cry and cry. The doctor's would misdiagnose her. They put her in the hospital once thinking she had reye's syndrom. That was for A week. At the end of the week after every test in the world which showed nothing. They asked me if I had any question's. My reply was yes. I have one. After all the test's and diagnosis, What's wrong with my daughter? All the doctor's just had A blank stare. They could not answer my question which I already knew the answer to, But they wouldn't listen. My girl was tough. Along with the migrain's she had spinal fusion surgery when she was 12. All in all she is A survivor. Now 28, She is doing good. Although the school system decided she needed special class's she showed them. She blew them away. Special class's got ended in the second year of it. She made it through school and 4 year's of college very well. That was with much education from her dad of what her problem's were. Understanding is the biggest part of the battle. I alway's made sure she knew what the pain was. And that she was normal. |
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Apprentice |
Teri,
I appreciate your kind response. I'm just glad that I had the opportunity to share with you the significance of your work in my life, and it must be the same for many others. I know we are all encouraged to share our stories and make a difference in both our lives and the lives of others with migraine disease. I will continue to share my progress. I know it will be progress because I learn more about migraine disease as time passes, which empowers me to be a better partner with my HA specialist. Even the options I try that aren't helpful give me knowledge of things that don't work. That's useful information too. It's something to hang onto as we travel on our individual journeys, together.  Liz
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Grand Wizard |
Teri, thank you so much for posting this. I finished your book a few weeks ago - not only is it well marked up, but I have a list of questions for my doc next time I see her. Rereading your story today brought me some hope on a day I desperately needed it.
I know without a doubt that this forum and all the information on this website, plus the people here who are part of the family, have given me a better quality of life than I would have otherwise. I'm still struggling to find the treatment plan that will give me my life back, but I know I will find it one day. I push through the constant pain, the daily migraines, knowing that one day it will be better - I just need to hold on a little longer. My sister pointed out something to me today that really rings true. I had spoken with her on the phone after finding out my insurance company denied my doctor's office's request for pre-authorization to try Botox. I am going to appeal this decision. My sister pointed out that I am very lucky to have this forum and website as a resource to help me pull together the information I need to go back to my insurance with. She is absolutely right. So thank you, again, for sharing your story, and for all that you do to make all of our lives better.  -MJ my blog: http://rhymeswithmigraine.blogspot.com/ “HOPE CAN GROW FROM THE SOIL OF ILLNESS!” This is the theme of 2008’s National Invisible Chronic Illness Awareness Week in September. Drop by and find out ways to encourage a friend, be encouraged yourself, and spread the word. http://www.InvisibleIllness.com "What will you do, if it does not turn out how you expect?" "I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest  |
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MMC Lead Expert Supreme Guru |
MJ,
Thank you, and you're very welcome. I SO remember the days of being so incapacitated by Migraines that I wondered if I'd ever have a life again. I'm so glad that sharing my story brought you a bit of hope. On the book -- good job marking it up! It's not a piece of great literature. It's a tool, and I'm glad you're really using it the way you are. My mother used to get quite upset with me if I marked up a book. My father, on the other hand, had me quietly ignore her. To him, highlighting, putting notes in the margin, etc., (unless a valuable book of course) was a sign of a well appreciated book. big hugs,
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Migraine Community MyMigraineConnection New Info on MyMigraineConnection My Life With Migraine Disease and Headaches
