Migraine
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Migraine Community MyMigraineConnection New Info on MyMigraineConnection 6/26/07 Podcast - Setting Reasonable Goals for Headache and Migraine Treatment|
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MMC Lead Expert Supreme Guru  |
 Recently, someone with very frequent and severe Migraine attacks told me something her husband promised her. He promised her that, when she'd been Migraine-free for six months, he'd buy her a plane ticket to visit a friend. On the surface, that seems like a nice thing to do. But it brought to mind the subject of setting realistic goals -- goals that aren't too easy, but aren't so difficult that we'll want to give up...To listen, go to MigraineCast.com .  Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Novice |
Teri,
This is a good reminder to us all to not expect total relief. I know there have been times that I have gotten too wrapped up looking for "the cure" that prevented me from seeing the small victories that had been made such as lowered intensity or shorter duration. I also think this podcast is very educational for those living on the outside of our world. I don't know how many times that collegues have asked after I returned from a doctor's appointment if the doctor fixed me. They never quite understand when all I can say is that my preventative regimen was tweaked and we will have to wait a few weeks to see the results. They really did expect me to be cured just because I went to the doctor. Shortone |
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MMC Lead Expert Supreme Guru |
Shortone,
Glad you found it helpful. I've had the "expectations talk" a couple of times with people who made an appointment with my specialist because it seemed as if they were thinking that they'd get to the point I'm at after they'd seen him a couple of times. It took me four years of treatment to get to this point. You make a good point about being so wrapped up looking for "the cure" that you didn't see the small victories. I hadn't really thought of the podcast for nonsufferers, but you make a good point there too. Thanks!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Maven |
I'm ecstatic when I go 2 days in a row without a migraine. Right now I'd be happy for just 1 day. My longterm goal is 1 per month.
In the podcast you said there's no cure, which I know, but do you think there will be a cure in our lifetime? |
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MMC Lead Expert Supreme Guru |
That's a HUGE question. Sadly, no, I don't think there will be a cure in our lifetime. One of the big reasons is that there is so little NIH (National Institutes of Health) funding for headache and Migraine research. NIH funded research is the basic research that pharmaceutical and other research is based on. I'm not commenting on the war, but we spend more in Iraq in one day than is spent on headache and Migraine research in a year. Conditions that affect far fewer people get way more funding.
You'll see more from me about this in the coming months as I work with American Headache Society, MAGNUM, the National Headache Foundation, and others on an advocacy initiative to get more research funding.
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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MMC Lead Expert Supreme Guru |
bump to top of folder
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Sage |
My final goal is one or two migraine attacks a month that respond to triptans. My intermediate goal is to get rid of the !#% daily headaches that I've had for 6 1/2 years. Then I'll actually be able to tell the difference between a bad daily/tension-type headache or a milder migraine attack.
I get an occasional almost-pain-free day. I actually had 5 or 6 last month. I consider anything below a 5 a triumph. I'm at least at a 6 every day, with 7s and the occasional 8. My goal for the day is to reduce the #7.5 I've already got at noon. Gretchen |
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MMC Lead Expert Supreme Guru |
Good job on the incremental goals, Gretchen. Having those will, I hope, keep you going toward that main goal!
Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Master |
My next goal is to get back into some kind of exercise routine now that I seem to have achieved some stability with the daily headaches. Having been into pretty vigorous workouts before this all started, I'll have to be very patient with myself and start slow. Not easy for me, being rather driven and perfectionistic.
My other goal is to reduce my head pain at the computer. Right now, the only time I seem to go above a 2 or so is when I'm at the computer for extended periods. Gretchen, I don't know how you've managed the fortitude to deal with such intense daily headaches for such a long time with such acceptance and patience. I admire that. Robin |
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Sage |
Thanks for the kind words, Robin. You've just got to keep after it. If you decide to stop looking for preventives and eliminate triggers, then the migraine disease has won.
Gretchen |
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Migraine Community MyMigraineConnection New Info on MyMigraineConnection 6/26/07 Podcast - Setting Reasonable Goals for Headache and Migraine Treatment
