Migraine

In the last four years I have been through CT, multiple MRIs, and MRA along with bateries of blood work. So far the best that we have come up with is that since I had no previous history of migraine till the age of 30 and my symptomes run a gamit.

The doctors say that I suffer from two types of migraine, the first is with aura and the second is "headache syndrome"? I have tried to research this and come up with a whole lot of garbble so I reach out to fellow suffers.

The headache syndrome type when I have been to the ER my neurologist is called and he has the work up done for a stroke. (Sad to say very familiar with this as I had one in 2005) With that being said the reason is that the symptomes are so alike most would not be able to tell the difference with out tests and more tests. Honestly I would rather be safe than sorry though. I get numbness/tinglies at the crown of my head that normally move all over head then down one side, usually the left. Then I start talking as if I had to much to drink everything is slurred. Sometimes I get paralisis in one or both extrmities on one side of the body. I can think, these symptomes can last for one hour up to several, then my buddy the headache comes on and I have to take a nap. I can not take imatrex (history of stroke) and I have tried Fosomax or something like it (caffine and tylinol mix) the rebound headaches were to much to bare.

After reading some of the posts some of the things I deal with sound a lot like HM. How would I find out more and is it possible that the migraine with aura and this HM could coinside? Or perhaps it might be being seperated out from the HM? I don't know I would need to do a lot more research and since I see my neuro again in Oct would love to go back with more info then when I last saw him. Thank you all.

Edited by moderator: Please break your posts into smaller paragraphs to make them easier to read. Thanks!

Hello and welcome to our forum family! Our goal is to provide everyone with the information and support that we all need to manage our Migraines and/or headaches. To that end, we consider this a “safe harbor,” where nobody tries to sell us anything, and we all use “family-friendly” language so parents are comfortable letting their children read the forum with them.

Please take a few minutes to review our policies and guidelines along with the other information in the START HERE folderFor information about Migraines, a good article to begin with is Learning About Migraines and Headaches - Where To Start.


I'm sorry you are suffering so. But at this point it is imperative to get an accurate diagnosis and treatment plan. That means seeing a "true" Migraine specialist, not just a neurologist who says they are headache specialists. See, here's the thing, neurologists treat so many different conditions, like MS, stroke and epilepsy it is hard for them to be experts in one area. A Migraine specialist treats one disorder - ours- Migraine disease and headaches.

If your doctor isn’t able to help you, it may well be time to consult a Migraine and headache specialist. It’s important to note that neurologists aren’t necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

For purposes of treatment, learning about your Migraines, being able to get care if you're away from home, etc., you need a full diagnosis of what type of Migraine you have. You can read more about this in The Type of Migraine Does Matter.

Let me know what you think after you read this, ok?

Nancy,

I have a follow up question? Where do I go from here type of question. You had answered my question about my eyes. If I needed to be concerned about them. Well I went to the eye doctor and he told me to use I drops for allergies. I did use them and it gave me a migraine.

My doctor says she doesn't see it and I can feel it. So my question is who can I go to get my answer about my eyes? It's very painful to use the eye drops. Should I just choose a different doctor?

Thanks Dutchess

Well, I'm not Nancy, but I'll take a crack at this one.

Are you sure it was the eye drops that the doctor gave you that triggered a Migraine? Could you also have been exposed to another trigger during the day? perhaps a
Food Trigger?

(Migraine triggers are physical things that bring on a Migraine attack when a Migraineur is exposed to them. Learn more about how to identify and avoid your Migraine trigger foods. Includes free downloadable workbook.)

Or perhaps another type of trigger got you- like the lighting in the doctor's office, or where you tried the eye drops. Here's an article on lighting triggers.

If the drops hurt, will your doctor give you some other medication to try? Perhaps something else will help your allergies without causing side effects, or making you uncomfortable? If the doctor won't or can't be flexible, this may be a sign that this doctor is not the right one for you.


Maybe Nancy knows more of the back story and can help more, but I thought I'd jump in and at least give you this information! Hope it helped!

Thank you very much. I've been a little worried. I've had allergies all my life. Hate anything in my eyes. At least you gave me some reading to start with.

Thanks-a-million

Dutchess

Hey there Dutchess,

Yup, go to another doctor!! Did you happen to see an ophthalmologist rather than an optometrist or optician? An ophthalmogist is a medical doctor who is a specialist in eye disease, surgery and disorders. The other two are typically NOT medical doctors.

So, yes, I would say get another opinion - you only get one set of eyes! I really think it is time for a Migraine specialist. I'm not sure how far Springfield, MO is but we have a great specialist there. Some people travel well over 8 hours to see their doctors.....

Keep me posted ok?

Thank you for your comments and to let you know I have checked out the migraine specialist page and am looking into if either of them take my insurance. Once I know that I will know how I am to proceed from there. About the neurologist info I fully agree which is how I managed to find this site and started investigateing and looking for more info. Since I have had a stroke lookes like I will try to only see him for that. As a bonus I just want to let you all know that you all have done a wounderful job with this site. Thank you. The articles were also very helpful and I am sticking with the idea that it is HM that I seem to suffer from.

Hi


I'm so glad you are finding useful information on the site. Sorry to hear you have to be hear, but happy to have you

Keep us posted, ok?