Migraine

Millsy,

It's not that I'd want epilespy or have to take antiseizure meds again (I can't seem to take a tiny dose of anxiety or depression meds without my body going bonkers), but I'm a bit frustrated that I had to basically be a guinea pig for the past 15 months or so and be given no answers.

No doctor has explained why I frequently get tinnitus, paresthesias, dysthesias and weird sensations. No doctor has explained why I occasionally feel like my environment is tilting or vibrating or why one sided of my body stiffens up, curls up, and clenches and makes me confused.

No doctor has told me why I have cognitive and attentional issues or why I have sleep disorder symptoms.

No doctor has sat down with me & explained why different doctors are coming up different answers. I'm terribly confused.

And I am still on no treatment plan, no ongoing communication with any of my doctors. I've thrown my hands in the air in frustration and disgust. I am so tired of all of this. I feel like I can't get on with my life. I want to go back to a professional full time job, but I'm in tears & exhastion after working 4 hrs at a daycare. I can't even manage that.

The test is back and I'm supposed to get the results later today maybe.

The blood tests were all normal, so nothing weird happening there.

The nurse said that the hosptial reported that the test looked borderline abnormal (some spikes or something) but the doctor hadn't looked at them yet so it doesn't really count. I told her that I wasn't sure if the technican wrote this down or not but I had an asthma attack after the hyperventalating and through the whole last half of the test I could barely breathe at all. And I'm sure because of that I wasn't nearly as motionless as I should have been.

I don't know how that effects the test but it seems important to me. If sevearl minutes is supposed to show me "resting" and instead of resting I am really in a semi-panic mode struggling just to breathe I would think that would be important somehow. She said she'd tell the doctor about it.

At this point I am really just hoping they don't make me repeat it with sleep deprivation type, because then I would have the migraine from and wouldn't survive through the strobe without injuring someone.

, with a whole lotta !

Hi everyone.

There is bad news, sorta.

I have to take a sleep deprived EEG
Which means staying up all night long the night before.

And for someone with a lack-of-sleep trigger it kinda feels like a death sentence right now.

I'm going to do it, but it may just be the longest night of my life.

I'm so sorry you have to take it yet again AND with no sleep. Please keep us posted, k?

All my best to you.

I think I might find that a bit more funny later...

Thanks, Laura. At the moment I don't even know when I will be taking it.

My results for the first one were borderline abnormal, but not exactly indicative of anything. Which means that pretty much no one knows anything more than they knew before I took it.

I'm feeling a little less down about it than I was earlier.

I allowed to take my meds, which is good. But they were very explicit about the no sleeping at all. We talked about the imitrex making me take a 2-3 hour nap and she said that if I take it and fall asleep then I have to call and reschedule the test.

DH is going to have to drive me to have the test done and then home cause I'm sure I'm going to be in no shape to drive. Hopefully my FLMA paperwork will make it through in time because I'll probably be gone from work at least half the day.

Laurelin-I'll be thinking about you and sending you happy "stay awake and pain free" vibes too