Migraine
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Master |
AWW E I'm ss you have been havin such a rough time. I know how scary and frustrating prolonged migraines can be! Especially when your Dr. doesnt seem concerned or helpful! Keep pushing if its not gone!
I really hope its been kicked in the rear this time! Please keepp us posted!  Tawsha |
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Apprentice |
Thanks Tawsha!
I feel pretty awful tonight, but the good kind of awful after the migraine is gone and postdrome is here  Looking forward to hopefully feeling better tomorrow... I'm just glad it's over. I didn't even realize at the time how little I ate and how food tasted this week - it was amazing to be hungry again and for food to actually taste like something again! Thanks again to everyone who helped me out and answered all my questions this week. I don't know what I'd do without you all!  |
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Forum Moderator Wizard  |
Thank goodness it's finally gone, e. Now that you have your appetite back, it's really time for some cake:
 Sorry we were premature in bringing it before, but now we can really celebrate. There is an article I'd like you to take a look at and think about, in case anything like this ever happens again: IV Treatment of Refractory Migraines But here's hoping it doesn't happen again, at least not for a very long time.  Take care. You must be exhausted. Nutcracker Forum moderator  |
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Apprentice |
Thanks Nutcracker! I actually printed that article out with me and took it to the ER with me along with some other info. I think I'll print it and some other stuff and take it to my doctor's appointment next monday to go over options with her. Hopefully she'll be more receptive/helpful in the office appointment and we can come up with a plan for the next time this happens. I don't ever want to go through that again - I'm definitely taking earlier action next time.
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Forum Moderator Supreme Guru  |
Yeah, well, you're our stubborn pain in the tookus, and we look out for our own.
 We're just thrilled to hear you're better.  Dragondrool Forum Moderator ~~8=:>>>> |
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Apprentice |
Thanks droolie
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Forum Moderator Grand Wizard  |
e,
I'm so happy to hear you're doing better now! I see Nut gave you the article on Refractory Migraines; I was treated in the ER with IV magnesium and saline last night and it worked for me.  Please let us know how your appointment goes, k? Laura Forum Moderator ***You're welcome to enter your birthday, etc in the Celebrate folder so we can party with you!! =) ***  |
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Apprentice |
I'm glad to hear the magnesium iv worked for you Laura! I'm putting it on my list to discuss with the doctor next week. I'll keep you posted
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Forum Moderator Grand Wizard |
Cool beans! I look forward to hearing about your appointment
Laura Forum Moderator ***You're welcome to enter your birthday, etc in the Celebrate folder so we can party with you!! =) *** |
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Apprentice |
I guess I'll post my update here... I saw the neuro again today. I wanted to discuss the way that my 11-day migraine saga played out and come up with a plan of action for the next time (hopefully there won't be a next time!)
I think I must have caught her off-guard on a bad day the day I went to the ER, because she was shocked to find out that the on-call neuro had put me on 10 days of dexamethasone - she said that she would normally only give 2-3 days and see if it worked, because the side effects are so severe (which i wholeheartedly agree with - I'm still dealing with the horrible acne breakout!) We talked about options for the next time... I chickened out on bringing up the IV therapy like I had planned, but I am still happy with the appointment. I told her that this last bad migraine was right before my period, and although I don't get those every month, when I do they're real doozies that don't respond to imitrex. I asked about Frova, and she gave me a few sample packs to try out on the next one. She also gave me an NSAID (cataflam) and a rescue med (fioricet) to keep on hand. We talked about my current preventive meds also - I told her that i was migraine-free for almost 3 weeks on the combination of 80 mg inderal / 900 mg neurontin, and that the migraines came back when i tried to taper off the inderal. I told her that I stopped tapering off and went back to the 60 mg until I could talk to her about it. I asked her about going back to 80 mg, but my pulse is so low that she wants me to keep it at 60 and try adding another neurontin, maybe in the morning. So, all in all, a very productive appointment. I feel like I have more options now to try on my own before having to reach out to her or the urgent care/ER. Hopefully I won't have to worry about status again, but I feel like i'm more prepared if it happens again Thanks again for listening to my pathetic desparation lately. I'm so glad I have all of you to whine at! j/k |
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Grand Wizard |
e, sounds like you had a good appointment. Thanks for giving us the update! Hopefully you won't get stuck with another long saga like last week for quite some time.
-MJ my blog: http://rhymeswithmigraine.blogspot.com/ “HOPE CAN GROW FROM THE SOIL OF ILLNESS!” This is the theme of 2008’s National Invisible Chronic Illness Awareness Week in September. Drop by and find out ways to encourage a friend, be encouraged yourself, and spread the word. http://www.InvisibleIllness.com "What will you do, if it does not turn out how you expect?" "I do not know. Nor shall I worry about it until it happens. I still have an action left to take; until I have exhausted it, I shall not despair." - Robin Hobb, Assassin's Quest  |
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Forum Moderator Grand Wizard |
e,
Great appointment! I'm so happy she gave you samples of Frova too Thank you so much for the update, I love good news early in the morning  Laura Forum Moderator ***You're welcome to enter your birthday, etc in the Celebrate folder so we can party with you!! =) *** |
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Forum Moderator Wizard |
Congratulations, e, on your part in a good appointment. I'm glad things went well.
Nutcracker Forum moderator |
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Community Moderator Grand Wizard  |
e you can whine at us any time girl!
Although I don't think you were whining - you were scared and didn't know what to do!May I add again how proud we all are of you for going to the ER! We know what a big step that was for you! Also - on the great doctor visit. I hope you come to love Frova as much as I do! It is my lifesaver!!!!Another thing you may want to do before doctor appointments is write everything down, or type it out on your computer, then make a copy for yourself and your doctor. That way the two of you can go over it together and you won't forget or chicken out! Sometimes I have so many questions, the writing it down thing is the only way to go and make it organized and have me stay focused. I know that the doctors time is important too, and if I'm scatter brained, it makes them run longer because I can't get it together, so I just have it all written down, works like a charm! So happy to hear you have a better picture of what to do if this situation comes up again too - I'm sure that puts you at ease! Eileen Gray Community Moderator eileen@helpforheadaches.com "The most authentic thing about us is our capacity to create, to over come, to endure, to transform, to love and to be greater then our suffering." - Ben Okri Please donate!!! Click below to donate to the AHDA - THANK YOU!!! http://www.networkforgood.org/pca/Badge.aspx?badgeId=102755 my blog: http://fireinmybrain.blogspot.com |
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Community Manager Guru  |
Overall it sounds like your appointment went great, I'm so happy for you. So there won't be any "chicken out" allowed next time, print out our information on IV therapy and bring it with you. You could just hand it to her and see what she thinks!
I'm so glad she was open and responsive to your questions and concerns, and even better that you have a plan. We are here for you in any way we can.
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