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Migraine Community MyMigraineConnection Non-Migraine Headaches Anyone recognize this kind of headache?|
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Apprentice |
Just recently I read an article in Mayo's newsletter about a type of headache that involves having several headaches per hour, up to like a hundred per day. THey are one sided, possibly includes red and swollen eye, nasal congestion and stiff neck?? I can't remember what they called it. I believe they treated it with an electronic stimulator, but that part is irrelevant. I am just trying to find the name of it so I can research it more. If this sounds familiar to any of you headache gurus I would appreciate the help.
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Guru |
Are you thinking of Ice Pick Headaches - The Basics
or Cluster Headaches - The Basics Let me know if this what you need. |
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Supreme Guru |
I thought about ice pick headaches at first, too, with the several headaches per hour until I read the eye, nasal, and stiff neck symptoms, which sounds more like cluster, although I've never heard of up to one hundred per day with cluster. Is it possible the article talked about both kinds?
Really, even with ice picks, it sounds kind of off to say you're having that many headaches per hour. It would be better to call them episodes. It's more like up to one hundred stabs per hour.  Dragondrool Forum Moderator ~~8=:>>>> |
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Guru |
Yes, droolie, I was a bit stumped too. Lots going on here.
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Apprentice |
I appreciate your responses. After I wrote it and left the compunter (at wori) it dawned on me that those would probably be the first two choices people came up with. It was something with a weird name though. I am trying to track down the newsleter but washoping it would ring a bell for someone here.
My son is having this for the second time in three months. He has no insurance and we wrote it off as an eye infection the first time because he did not tell me about the headaches. I of course have migraines and his father has clusters. Great DNA pool huh?? Anyway, his eye turns blood red, even tears occasional blood and swells, along with nasal congestion. This time he kept saying the eye was giving him headdaches, so I questioned him about them thinking it was probably the other way around. He said that they start in his eye and go back over the top of his head and then have given him a stiff neck. I asked him how many he had had and he said he couldn't count that many, lke five times an hour, but they last longer than ice picks, and I was thinking too short for clusters. He has been to the eye doc and she thought he strained his eye. I know we are not supposed to diagnose here and I am not asking anyone to because I will take him to the doc, I was just hoping to be more armed when we go so that they don't write him off as psychotic...again. He had auditory and visual hallucinations as a teenager and the doctor tried to have him committed. I got a second opinion and guess what? Imitrex cured his psychosis! THis was before I knew I had migraines or knew anything about them. Thanks for trying. If anyone thinks of anything else I would appreciate the advice. |
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Supreme Guru |
Wow. I'm stumped too. It description sounds so much like cluster headaches, but 100 attacks in a day seems high. But, it seems to me that I did see a recent article about using a stimulator to treat cluster headaches. Here's a paragraph with other names that cluster headaches have been called in the past:
"Several terms have previously been used to refer to cluster headaches: ciliary neuralgia, erythro-melalgia of the head, erythroprosopalgia of Bing, hemicrania angioparalytica, hemicrania neuralgiformis chronica, histaminic cephalalgia, Horton’s headache, Harris-Horton’s disease, migrainous neuralgia (of Harris), petrosal neuralgia (of Gardner)." Maybe one of those will ring a bell?
 Teri Robert Lead Expert, MyMigraineConnection terimmc@helpforheadaches.com
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Supreme Guru |
Well, if you happen to figure out what the term was that you read, let us know. Now I'm curious.
 Dragondrool Forum Moderator ~~8=:>>>> |
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Apprentice |
Sorry it took so long to get back. Three day migraine, wouldn't respond to normal stuff, spent all day yesterday at ER and I won't even go into that nightmare as it has been covered here at least a hundred times before. Finally got treatment, and though I am am a little shaky and moderately headachey, I am better today. I just want to say, is it necessary for us to go through the mental torture when we are already going through physical torture??!?! (no need to answer)
I found the name of the one I was thinking of: SUNCT. But it said that it usually occurs in men over 50 and he is only 21 so I am don't know about that. We will have to keep watching and see what a doctor says. |
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Supreme Guru |
 These are for you to smoosh away that crummy day at the ER. This batch is for your son. I've never heard of SUNCT before. But I do know very much what it's like to have goop in a group going awry issues that don't fit normal patterns. It complictates everything from diagnosis to treatment. I hope that if this is what your son does have, they can settle on a dx and find an effective treatment soon. Dragondrool Forum Moderator ~~8=:>>>> |
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Grand Wizard |
I never heard of that either.....I'm going to google right now!
 I hope everyone is feeling better today!!!!! Big hugs! Eileen Gray Community Moderator eileen@helpforheadaches.com "The most authentic thing about us is our capacity to create, to over come, to endure, to transform, to love and to be greater then our suffering." - Ben Okri Please donate!!! Click below to donate to the AHDA - THANK YOU!!! http://www.networkforgood.org/pca/Badge.aspx?badgeId=102755 my blog: http://fireinmybrain.blogspot.com |
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Guru |
Hi Hope.
After reading on SUNCT (which I'm not sure is part of the International Headache Society's classification of Headache disorders,) I was wondering if you meant Hemicrania Continua. Not sure about the stiff neck though, of course with that kind of pain anyone's neck would be stiff. |
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Apprentice |
Thanks for all the hugs. Today is even a better day, thank you GOD!! It's so lovely passing these wonderful things on to our children. There is always a joke about kids being in therapy because of their moms, where does this fit in?? And is their therapy for moms who pass on our illness?? I guess the answer to that is yes, it's here! THANKS!!
Just to let you know, I carry a note from my migraine specialist that states that I have FHM, a rare genetic disorder, and its symptoms, to be given to medical personel or anyone else that is freaking out at the time. The paramedic that picked me up the other day told my friend, "Migraine is NOT a genetic disorder." He followed this with, "She would talk to us if she wanted to." Yes, he needs to be slammed with the penquin fin!! (at the very least!) Because then he set the whole tone of the ER visit by telling the nurse that I wouldn't talk to them, and when she asked why, he said because I choose not to. This was followed by the nurse saying, "Oh, we've had her kind in here before." And it went downhill from there. Yes, I know I digress and I wasn't going to go there, but boy it feels good to get it off my chest...Thanks again! |
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Supreme Guru |
I'm glad you're having a much better day today.
As for the paramedic and the nurse, I'd be reporting them to supervisors right after the penguins get done with them. They were majorly out of line and their ignorant and rude comments impacted the care you received (or didn't receive). I'd send a copy of the complaint to your own doctor, too, just for the record. Sometimes they can complain on your behalf with a little extra oomph behind it. Dragondrool Forum Moderator ~~8=:>>>> |
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Apprentice |
Thanks Droolie that is a terrific idea!! I had thought about it, but with the ambulance company being so big, I was discouraged thinking it would not be aimed at the right people. I will just describe the situation, date, time, and place, and they should be able to put it together. Same with the hospital, I don't know if my friends got their names, but I can do the same thing and I am sure they can track it through my name. Perhaps several of us get discouraged from writing letters for the same reasons. Thanks for encouraging me in this, now I have an assignment.
Sending it to my doctor is a brilliant idea because he often wants me to go to the ER and gets frustrated when I refuse, even though I have told him broadly what it is like to go there with a migraine. Maybe if I spell out a specific incident he will get a clearer picture. |
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Migraine Community MyMigraineConnection Non-Migraine Headaches Anyone recognize this kind of headache?
