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Posted
I have five bad discs and verts in my back. I do have a morphine pump in me. Turned up as muck as possible. Any more it would make my legs go numb. I am just so stressed over life right now. All ways feels like no one beleives me how bad and how much pain my back is. And that just makes me want to put them in pain and say to them the pain is not that bad. Then got the money problems. SSI will not help me. They say my back is not bad enough. I can be a key grinder. What they? A key grinder??? Every day when I wake up in pain everyday I am mad. Most of the time I wish I can go to sleep and stay asleep. Even though most of my dreams are nightmares from being in pain while asleep. And then another thing that dosen't help I weigh around 340lbs. And I have no idea how to loose weight. Hunger pains ontop of my all ready pain is awfull. And then trying to deal with everyone. Because they have no idea what pain does to the mind and makes me go into rages and get mad at the little things all the time. I just keep on asking my self why am I alive for....why??? Just so I can be in pain and make everyone elses life worste. I know what every one thinks when they see me. Just another fat ugly lazy guy.
 
Posts: 2 | Registered: 03-09-2008Reply With QuoteEdit or Delete MessageReport This Post
Picture of BettyBoopToo
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Hello nunster
It's nice to meet you. Welcome to the Chronci Pain Connection, we're glad that you've found us.

I'm so sorry for your pain & difficulty. Your certainly not alone in all of this. There are many of us in tremendous pain, trying to get through the SSDI process and having to deal with denial & appeals. I'm going on three years of dealing with them and still going.

I hope we can help you find some information and to make some friends. Let me know if you need help navigating the site or finding something and I'll be glad to help you all I can.

Take Care & Welcome again
Betty


"Only by openness to the mystery of God, who is love, can our hearts' thirst for truth and happiness be satisfied; only the perspective of eternity can give authentic value to historical events and above all to the mystery of human frailty, suffering and death."

Pope Benedict XVI
 
Posts: 511 | Location: Home in Washington State | Registered: 11-07-2007Reply With QuoteEdit or Delete MessageReport This Post
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hey, nun!

i don't think you're fat and lazy at all! i used to train to be an astronaut, so, not skinny by any definition, and always on the heavy side - but healthy! ever tried yoga?? i know you're thinking, "good gawd, no! i have back issues..", but there are so many exercises that don't require you to tie yourself in a knot. just the breathing exercises will burn as much calories as aerobics (some will) and most can be done from the comfort of bed or the couch. i do the situp-less situp. basically, i lay flat on my back or prop myself up in a sitting (but as comfy as a position as possible) position.. then i pull all my abdomenal muscles as tight as i can - like you're trying to get into a pair of jeans that are too small.. hold it for a count of 10-20 seconds (the longer the better, but no need to push it! if you can't hold it long, don't! you'll build up strength and it's about a slow climb - no 30min abs here! lol) each time you do this, it counts as a situp. it takes way longer to complete a set (according to standard workout meathods, but who cares), but the same amount of calories are spent. i always figure that i'm not doing anything else.. and i stop AS SOON AS IT STARTS TO HURT!! (that's the major key!).. there's ton of yoga moves like that - you can google the instructions if you'd like.. Smiler

i know what it's like to not have the government step in and help you out after you've paid taxes your entire life. i've worked a job everyday of my life since i was 14yrs - i'm only 27yrs now! i stopped working 3yrs ago - and i have been denied coverage simply because of my age! they all say that i'm too young for medicare or medical - i've even been told that i can't get covered because i don't have 2 kids (wtf that has to do with anything, who the heck knows)! i had perfect credit until i got sick, now, i don't even bother to look at my credit reports because i know that with $20K in medical debt (never any credit cards - i didn't go on a shopping spree or buy a benz!) that i can't even declare bankruptcy to erase.. it's screwed me over and i have no answers and am no closer to a resolution than when this all started. believe me, i know how you feel. i know how it feels to lose friends because people simply don't get it. they don't understand the pain isn't just physical - it's very emotional and mentally frustrating.. and you will snap at people for the smallest of things. i do! and i can't stop it either. i know why i'm snapping and being absolutely terrible at some points. i do my best to try and explain to folks that the pain, lack of sleep, complete and udder exhaustion, and medications make me absolutely nutz in my head! i try to control it, but sometimes, it's too much and i can't deal. and most folks simply can't take that as an answer. after seeing people through bad breakups and just general bitchiness, they ditch me for a physical problem that i have no control over. it's hard to really understand someone's pain unless you've walked in their shoes. doctors have told me to "suck it up" and to be an adult about things (wtf?!) countless times - i've only had 1 nurse tell me that she understands where i'm comming from because she, herself, has lupus and knows what a flare can do to you. she argued it out with the emergency room doctor to get me some morphine to help with the pain that night, and i'm forever thankful! you that saying, don't judge another unless you've walked a mile in their shoes.. most doctors, i believe, haven't even heard that statement.

anyways, i'm on some nasty steriods for the asthma (darned near close to pnemonia and bronchitus) and it's making me manic. i've been up for 3 days straight, and the norco ain't helping...

have the most comfy of night you possibly can. welcome to our little club! Smiler

Harley


you don't have to be faster than the bear, you simply need to be faster than the slowest person running from the bear.
 
Posts: 45 | Location: Los Angeles, CA | Registered: 01-07-2008Reply With QuoteEdit or Delete MessageReport This Post
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