hey everybody,
my name is jilli. i really love to crochet and knit...i used to dance. i admit i get jealous when i see people dancing, but it's a beautiful art and i'd love for more people to explore it.
i've been diagnosed with CRPS (chronic regional pain syndrome) formerly known as RSD (reflex sympathetic dystropy) resultant from a congenital club foot. i have degenerative bone disease and accelerated osteo-arthritis. this is all located on my left leg/hip.
i am 19 years old. i take oxycontin, morphine, oxycodone...cataflam, depression medications, anxiety medications....pretty much anything you've heard of plus more.
i've been dealing with this all my life...but it has gone downhill so fast since about 1999. i've tried so many specialists...so many pills, just like many of you, and there seems to be no help out there. it's just insane that so many of us live like this daily.
i know i'm young...but i've been through so much. i wish there was just an off switch i could hit sometimes, ya know? i've come to terms with knowing i'll have this my entire life, but it's just hard.
...it's just
hard.
<3 jilli
