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HI, BOB. I AM A NEW MEMBER. I HAVE R.S.D. COMPLEX REGIONAL PAIN SYNDROME. 6 YEARS NOW. I LIVED IN FLORIDA KEYS FOR 19 YEARS AND ONE MORNING A MEDAL BED FRAME FELL OFF RAFTER AND LANDED STRAIGHT DOWN ON BARE RIGHT FOOT. FRACTURED, GASHED, HIT THE NERVE.. THE PAIN NEVER ENDED FROM THEN ON. I HAVE BEEN THROUGH EVERYTHING POSSIBLE TO RELEAVE SOME PAIN, BUT NOTHING HAS WORKED , EVEN THE STIMULATOR. I AM GIVING THE PAIN PUMP A TRY, I FEEL IT'S MY LAST HOPE..I SUFFER EVERYDAY, 24\7.IT HAS CRAWLED UP MY RIGHT LEG , THROUGH GROIN, AND DOWN LEFT LEG TO FOOT. SO IT'S MY WHOLE LOWER EXTREMITIY. I HAVE LOST ALL MUSCLE MASS,ALL THAT'S LEFT IN FEET IS BONE. I HAVE GONE FROM A 1960 PANHEAD HARLEY, TO A WHEEL CHAIR. BUT,LISTENING TO WHAT YOU ALL SAY ABOUT THE PUMP IS SCARING ME..I AM ON OXYCODONES NOW, BUT THEY ARE FAILING..I RAN OUT LAST WEEKEND, AND WENT INTO A HUGE FLARE-UP WHICH KEPT ME IN BED ALL WEEKEND..I ENDED UP AT TH E.R. HOSPITAL FOR SOME RELIEF AND THEY TOLD ME, THE DR. WAS VERY INCONSIDERATE, WE DO NOT TREAT CHRONIC PAIN PATIENTS ANY LONGER..I HAVE NEVER , EVER RAN INTO THAT BEFORE. THEY USUALLY GAVE ME MORPHINE BY I.V. AND SOMETHING FOR NAUSEA..I ALSO GO INTO PANICK ATTACKS, SEVERE, WHERE I HAVE TO GO IN AND BE BR0UGHT DOWN WITH ATIVAN,I.V. THIS R.S.D. IS RELATED TO THE SYMPATHETIC NERVE WHICH GOES TO THE CORTEX OF BRAIN. BUT THEY ARE SCHEDULING ME FOR THIS PROCEDURE, AND NOW I AM SCARED OF WHAT MIGHT OR COULD HAPPEN TO ME. HOW BAD IS THE PROCEDURE? HOW LONG WILL I BE DOWN AFTER? I READ SOME ARE HAVING IT TAKEN OUT.. THEY ARE ALSO TAKING OUT THE STIMULATOR THE SAME TIME OF PROCEDURE, IT IS SO PAINFUL JUST SITTING THERE. AFTER READING ALL YOU GUYS AND WHAT YOUR COMMENTS ARE, NOW I AM SCARED, BUT IT IS MY LAST HOPE...FOR SOME PAIN RELIEF..R.S.D. IS INCURABLE..SO NOW I DON'T KNOW WHAT TO DO. BUT, I JUST CAN'T SIT HERE AND SUFFER 24\7. HELP ME GET OVER THIS FRUSTRATION..OF THIS PROCEDURE. I HAD TO MOVE BACK TO MN. CLOSER TO FAMILY. I NOW HAVE A CAREGIVER THAT COMES 5 DAYS A WEEK, TO DO MOST EVERYTHING..MY ELECTRIC WHEELCHAIR IS BEING MADE. I AM SO FRUSTRATED THAT I ENDED UP LIKE THIS...I LOVED THE KEYS AND RIDING EVERY DAY, AND WORKING . AND IN A BRIEF MOMENT, IT WAS OVER...PLEASE, ANYONE, IF YOU HAVE ANY ADVICE FOR ME, GIVE IT. THANKS, PANHEAD VIC, VICKIE
Welcome to ChronicPainConnection! You've certainly come to the right forum for information about pain pumps. But I wanted to let you know that Bob Englebardt regularly monitors only the one thread entitled “Willing to share experience with intrathecal morphine pump implant” under General Discussion. I know it's a really long thread, but I can assure you he will read and respond to your post. Just click on the last page and post your question. You could just copy and past your post here to that thread. Here is a link to that thread on the forum: http://forums.healthcentral.co.../f/7251032/m/8491036
