Chronic Pain

HI- I've been on narcotics for 3 mos since MVA worsened everything I already had and started some new symptoms. My disorder is kind of rare (Ehlers-Danlos syndrome- tho underdiagnosed) and the message boards are not very busy, so I thought I'd try a more general one.
Plus because of the whiplash/MVA, not everyone on the EDS boards is going thru that of course. I already had spine problems, now I really have spine problems, bottom disk very compressed- it hurts!!
I had a pedestrian MVA as a child, and skull fracture, it was minimized, they said I was fine, but I started having migraines (among other effects) in puberty, over 20 yrs ago. Now I have axe-in-the-head knife-stabbing migraine pains, usually behind the eye. I'm keeping these at bay but not totally controlled with Topamax and Butterbur extract.
I've had a lot of complications of my connective tissue disorder, a collagen deficiency, so it just gets worse, we dont get younger. I have no family support as I have a very disabled sister, my parents and other sister cannot really handle the concept that there was something physically wrong with me after all. They have accused me of being a hypochondriac all my life, now I deal with Drs (some, not all) who do that too, or think I am drug seeking, when I wanted to avoid these narcotics and did my best to for so long.
On the one hand, a Dr does not know what your symptoms are unless you tell them, and since I am in the disability process and trying to settle the MVA, I have to seek treatment and talk about it. But the seeking treatment and talking about it can make one focus more on it, you become your symptoms, become your disease, it gets harder to practice the positive thinking, healing visualizations, etc -and yet here I am on another msg board!
I guess I'm just looking for that global community I can find from my recliner where I rest my hip bursitis!
I'd appreciate hearing from you and I'm reading your intros too.
~Empathy~
Becca

Hello Becca

It's reallly nice to meet you and had to giggle, I'm replying from my recliner too.

Welcome to the Chronic Pain Connection, we are all happy that you've found us and want you to join in on any topic or conversation that your interested in.

I must admit that although I have heard of Eihlors Danlose (sp) I'm not very familiar with it, so If you'd like to share that would be of interest too.

I know what you mean about participating in pain groups, boards, etc. I used to feel the same way and for a very long time refused to learn or communicate with others in pain,as I did not want my life to revolve around my pain. I finally broke down and started studying my pain & illness, then evolved into talking with others and I've learned to deal with and live with this pain much better than I was doing, by trying to ignore it and refusing to learn. Knowledge for me has been golden and learning to cope & know that I'm not alone is very comforting.

If you need any help finding or navigating to the different area of the site, please let me know and I'll do what I can to help you.

Take Care, it's nice to meet you
Betty

I finally found this website agin, I couldnt find it, (I have 2 laptops- it was on the one I dont use as much). I had to register all over again- Becca is same as "Beccuz"... bc I'd quit the email Beccuz was linked to and forgot the pw too, anyway, I'm back, thanks Sooo much to BettyBoop for your commitment to this board, I want to read about some of the other newcomers. I'll try update w some other posts, I'm not doing so hot like a lot of us I'm sure, need a better lawyer, better Drs...