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Please help me with my chronic SI Joint Pain
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My doctors think I'm nuts. My so called pain doctors tried the injection into my SI Joint, but I noticed no improvement.

Mostly my right SI Joint hurts, but after a while my left one starts in.

This pain sometimes grinds down into my hip, buttock and upper thigh.

I'm an ER nurse and after working for 12 hours I drive home and can barely get my legs up and out of the car. I've called my husband to come help me get out of the car a few times. Then I can't straighten up and walk inside.

I need help! Please tell me what you've done or taken to help with SI Joint pain! I can't live like this.
 
Posts: 3 | Location: Tulsa, OK | Registered: 06-22-2010Reply With QuoteReport This Post
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Hello S1jointhell welcome to the pain board. I hear you about the problems with your legs. I have had surgery from T4-S1 and have severe pain now with arachnoiditis in my Right buttock, hip and leg. It is just starting down the Left side for me. The adhesive arachnoiditis now goes from T1-S1 so I understand the pain you suffer with. It is very difficult to walk or get in and out of my car. Some days I have to lift my right foot from the accelerator to the brake. Some days I can't drive at all. I hear what you are saying. Have you seen a neurologist for this problem? I was (am) a neuro nurse prior to becoming the neuro patient so I know those 12 hr shifts too. I can't do any shifts right now and that breaks my heart. I think if they could do some tests to identify why you are having this problem you may be able to get some help. They really should do an EMG and a CT or MRI. A neurologist or neuro surgeon should be able to help you with this problem. Do you have a primary care dr that helps you with pain meds? I know it is difficult to take meds and still work on the floor but you sound like you need some help with the pain. I did do accupunture and that does help a lot, but since I've had the pain pump implanted in Jan this year I don't do the accupunture. I don't know what else to tell you. I do think you need to be seen by a specialist though. Please let me know how you are doing ok. You have a better day.
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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Hello again SIjointhell, I also have a SI belt that my physical therepist put on my hip area that has really helped a lot. I know they can also be purchased on the internet. It might be worth a try for you. Just an FYI.
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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Hi Transcriber! Thank you for replying!

I have an appointment on the 29th with a rheumatologist. My doctor sent me to a pain clinic because I told her I can't work and be gorked out on pain meds. The pain clinic has me on Vicoprofen 7.5/200 qid, but I find it works better if I take 2 twice a day. I'm also on Cymbalta now up to 60 mg. Surprisingly, I HAVE noticed a difference in my overall aches and pains. I hate the side effect of diarrhea every day, but to me, it's worth it!

I am only 41 and I've had surgery on my right shoulder where they shaved about an inch from my clavicle due to severe arthritis. I have pain in both my feet to the point I can't walk my dog for a block without practically crawling home. The pain is definitely bone and joint pain. Also my hips have pain if I have to walk for any distance. And my lower back starts in.

I haven't worked since October. I'm trying to get this pain under control and am willing to try anything so that I can work in the ER again and not have to take a bunch of narcotics. I feel hopeless and useless. We're in dire straights right now having to borrow money to pay the mortgage and bills every month.

I'm waiting for my doctors to schedule an MRI. I haven't thought about an EMG, but I'll sure look into it!

Physical therapy helped put the SI joints back into place a few times in the past. Is there a surgery that will stabilize these joints? The belt you mentioned is the next thing I'm going to look into! Thank you so much for that!

As a nurse for 15 years and most of that in the ER, I see what chronic pain sufferers go through in tryin to get relief. I see people with REAL pain and those that might be seeking. Either way, I feel so sorry for them and the way most doctors treat them. My pain has made me a more compassionate, empathetic nurse.

I've copied your posts and will take them in to the doctor's office with me. What kind of pain pump do you have?
 
Posts: 3 | Location: Tulsa, OK | Registered: 06-22-2010Reply With QuoteReport This Post
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Hi S1Jointpain
Most likely the biggest thing that is causing the constant bowel movements is the Vicoprofren it has Hydrocodone and Ibuprofen. If they would change the medication to straight
Vicodin this would help with the amount of bowel movements that your having. Also with the Cymbalta use caution with you go off this medication on of the side effects that has been noted is Suicide and Depression. Both drugs are good but not suited well for some folks. With the joint pain have they ever tried anything fo the imflamation that your having in the joint. So Predisone might help for a short time or Solu Mederol dose pack. Well good luck and take care.


Over the last several years i have been involved in Emergency Medical Medicine. I started out as a Paramedic Fire Fighter and also a Deputy Sheriff . I devoted the majority of my life to Public Service. I have also over the past several years i have been teaching Emergency Medicine to third year Medical Students. Those who want to make there living in the Emergency Departments of hosptials.
 
Posts: 382 | Location: Ohio | Registered: 06-17-2010Reply With QuoteReport This Post
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Hi There is another thing i wanted to tell you some Rheumy's don't like narcotic medications. They will load you up with other drugs. If you don't like the answers he or she give you, find another one. And good luck.
quote:
Originally posted by S.I.JointHell:
Hi Transcriber! Thank you for replying!

I have an appointment on the 29th with a rheumatologist. My doctor sent me to a pain clinic because I told her I can't work and be gorked out on pain meds. The pain clinic has me on Vicoprofen 7.5/200 qid, but I find it works better if I take 2 twice a day. I'm also on Cymbalta now up to 60 mg. Surprisingly, I HAVE noticed a difference in my overall aches and pains. I hate the side effect of diarrhea every day, but to me, it's worth it!

I am only 41 and I've had surgery on my right shoulder where they shaved about an inch from my clavicle due to severe arthritis. I have pain in both my feet to the point I can't walk my dog for a block without practically crawling home. The pain is definitely bone and joint pain. Also my hips have pain if I have to walk for any distance. And my lower back starts in.

I haven't worked since October. I'm trying to get this pain under control and am willing to try anything so that I can work in the ER again and not have to take a bunch of narcotics. I feel hopeless and useless. We're in dire straights right now having to borrow money to pay the mortgage and bills every month.

I'm waiting for my doctors to schedule an MRI. I haven't thought about an EMG, but I'll sure look into it!

Physical therapy helped put the SI joints back into place a few times in the past. Is there a surgery that will stabilize these joints? The belt you mentioned is the next thing I'm going to look into! Thank you so much for that!

As a nurse for 15 years and most of that in the ER, I see what chronic pain sufferers go through in tryin to get relief. I see people with REAL pain and those that might be seeking. Either way, I feel so sorry for them and the way most doctors treat them. My pain has made me a more compassionate, empathetic nurse.

I've copied your posts and will take them in to the doctor's office with me. What kind of pain pump do you have?


Over the last several years i have been involved in Emergency Medical Medicine. I started out as a Paramedic Fire Fighter and also a Deputy Sheriff . I devoted the majority of my life to Public Service. I have also over the past several years i have been teaching Emergency Medicine to third year Medical Students. Those who want to make there living in the Emergency Departments of hosptials.
 
Posts: 382 | Location: Ohio | Registered: 06-17-2010Reply With QuoteReport This Post
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Hello SIJointHell how are you this weekend? I have a medtronic pain pump for arachnoiditis and back problems. Right now I'm running part dilaudid and part Prialt and having it changed again on Monday. Increasing the Prialt because so far I'm at a 7 and I'm so Happy with that!!! How's it going for you? Can you use a jacuzzi to maybe help when you are hurting so bad? I use mine several times a week and it does good for me. Just to relax after that 12 hr shift makes it good. Please let us know how you're doing ok. You're in our thoughts and prayers. It seems like so many of us in this kind of pain have been in the medical field ourselves. Must be an occupational hazard huh.
You have a better day.
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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Hey gregory8846 how are you my friend? How is the pain today? Any answers from your Drs yet? I'm getting this feeling like it isn't going to be July either. How about you? How is your family? I do so very much appreciate your input. You always know right when I need a boost (and I don't mean the pain pump!!!) Thank you. You take care. Talk to you soon my friend. And I'm glad you're here!
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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Hello SIJointHell how are you doing now? Tomorrow is your Dr apt. so I wanted to let you know you are in my prayers for some good answers for your pain issues. Please let us know how it goes for you ok. Have a good day, and tomorrow also.
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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Hey Trans:
Well between the hospital and the doctor appointment after 12 hours i just got home. WBC/14800, Neutro 88% shift to the left. Started Dicloxacillian 500mg qid other than that how is your pain level now. You know i told you a while back the Prialt was a worry to me. I wish they would have used Fent like we talked about. The side effects of the Prialt concern me. You may have decent pain control but i wonder what else it may be doing to the rest of your body. I was told three times today by doctors that i know to much and i was hard to treat. If i would not be that way i would have had a funeral three years ago. Well talk to you later. Also i hope everyone here is having a decent day with a little less pain.


Over the last several years i have been involved in Emergency Medical Medicine. I started out as a Paramedic Fire Fighter and also a Deputy Sheriff . I devoted the majority of my life to Public Service. I have also over the past several years i have been teaching Emergency Medicine to third year Medical Students. Those who want to make there living in the Emergency Departments of hosptials.
 
Posts: 382 | Location: Ohio | Registered: 06-17-2010Reply With QuoteReport This Post
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hey gregory8846 this isn't getting any better for you is it. So they told you to do what you already are doing? That's it? Yea, you're hard to treat. AND!!! What is it they want, someone that doesn't need a Dr? That's why you're where you're at isn't it? Have I missed something here? Are they getting their info off that other pain site? (I couldn't resist that one my friend) Please keep holding on ok, and I'm here for you. The Prialt just now kicked in this morning, got my first boost about 0930 my time. Helping much more than the dilaudid. But you need to worry more about you right now than me my friend. What's next for you now? Where do you go from here and when? Tell your family hello for me and I'll talk to you soon I hope.
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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Hi Trans:
Well its sad when a doctor tells you that your hard to treat because you know to much. Thats why i had my leg amputated after 430 plus days in the hospital due to a severe infection. If i would have done what they wanted im afraid i would be dead now. You know i don't understand why i pose such a threat to any doctor. All you have to do is do your job and do it well. Don't try to snow someone over with bull because someone will always be better at it than the other. I mean i gave my heart my soul and a few times i could have lost my life. I don't understand why i gave it my all and my best why someone else won't do that these days. I treated folks with Chronic pain with dignity and respect. Im not the one that stood at the nurses station saying the drug seeker is back. Right now im aggravated as i can get. I can't go on walks with my children, i can't use the $23,000 dollar leg that i have because my knee is shot just like my rotator cuffs. Well this is more than i have ever complained to any one about. Well everyone have a great night. Take care and God Bless.


Over the last several years i have been involved in Emergency Medical Medicine. I started out as a Paramedic Fire Fighter and also a Deputy Sheriff . I devoted the majority of my life to Public Service. I have also over the past several years i have been teaching Emergency Medicine to third year Medical Students. Those who want to make there living in the Emergency Departments of hosptials.
 
Posts: 382 | Location: Ohio | Registered: 06-17-2010Reply With QuoteReport This Post
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hey gregory8846 if you can't complain here more than you ever have, then where? We are all in a large boat and it feels like the Drs are steering it. And!!! Yes, you are hard to treat but a Dr made it that way for you, so let them DEAL WITH IT!! They don't hear that do they. All they see is another patient but this one knows too much so they are uncomfortable. Maybe they need to be reminded you have to know too much now because look what happened to you when they made their own choices. They don't pay the price, you do, your family does. Everyone that cares about you is affected by what they did or didn't do for you already. They need to get a kick in the pants and get your knee fixed. You have been very patient with them. I sure don't know if I could or would be. I complain a lot about hurting, I hate it. You don't complain. You just keep reaching out here to those of us that do. Hey my friend, I do care about how it's going for you and many more people here on this board are going to be learning what I know already. You're always here giving. Just a knee is severe enough; worse pain than a hip. But both rotor cuffs is way too much. Makes your life pretty miserable.
(Hey, it's 7pm here and still 106* and at 10:00 last night it was still 108* so see why we use our jacuzzi all year? Want to join us in the 'cuzzi about 10 tonight? I keep the temp down!)
I do hope you are able to get some good rest soon. Like tonight!! That alone makes this much worse. I would have to stay asleep all the time taking as much meds as you do, (I'd be dangerous). Please let me know how you are doing tomorrow ok. And remember, "You'll always be my friend, you know too many of my secrets." Did that make you smile? Hey, for real you are in my prayers daily. I sure couldn't carry your burden like you do. You're very special my friend. You have a great night too.
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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Hello SIJointhell how are you doing this weekend? Did you go to your rheumatologist on the 29th? Did you get anything new to try? My heart sinks for your pain. I was (am) a neuro nurse and can't stand not being able to go back on the floor. Both my neuro Dr and anesthesiologist both gave me that answer this past month. I have been hanging on to that hope for so long that it hurts knowing I can't go back. I feel useless too. All I had to give now it's just gone. I feel sometimes like I have nothing left for anyone. It's hard to come to terms with the fact you can't work because you hurt so bad. Even if it is for only a short time. It is almost like a death to me, all the same emotions connected to it. I do pray you are able to go back to work if you want. Your compasion is exactly what is needed in the ER these days. The ones that have the pain themselves know how to treat the patients entering the facility with the dignity they deserve. My prayers are sure with you. Please let us know how you are doing ok. You have a special weekend.
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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Hey gregory8846 how are you my friend? How is it going for you tonight? I sure hope you are able to get some sleep. My heart is with you and I'm praying for you that the Drs can find out what is going on for you. Please let me know how you are. We are all here for you.
Trans.
 
Posts: 637 | Registered: 06-18-2010Reply With QuoteReport This Post
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