Chronic Pain

As I write articles and do SharePosts on chronic fatigue syndrome for this site, I want to know what your interests are. What concerns you most? Which subjects to you want to hear more about?

I don't pretend to have all the answers and I can't give personal medical advice, but I'll do my best to research your questions and share what I know and what I find with you. I'll also be happy to share my personal experiences with you. (I've had FM and CFS for 18 years and have worked in this field for 10 years.)

But one of the great things about this forum is that you're not stuck with just hearing from me. There are lots of folks who can share their insight and experiences with you. And perhaps best of all, we can encourage one another. We all have good days and bad days. Here you can find friends who will listen and empathize with you.

Please join us and let us know what's on your mind.

I just found your forum. I was diagnosed with fibromyalgia about 25 years ago. Back then it was fibromyositis. Over the years the symptoms have increased; chronic pain and chronic fatique and all the so called side affects...weight gain, anxiety, depression, and life changes due to these conditions. I love to dance and now have to sit in my chair and pretend to dance. So many changes and adjustments with lifestyle can be really trying. Let's keep our hopes up. At least I'm not bedridden (yet), but have experienced being in bed a day or two a month. I'm glad I found a sounding board. It's hard to make people understand how you feel. Keep up the faith out there. Gail

Hi Gail,

Welcome to ChronicPainConnection. We have a nice group of people and look forward to talking with you here on the forum. Also, please feel free to do SharePosts anytime. If you're not familiar with SharePosts, they're kind of like individual blogs. Just go to our homepage ( ChronicPainConnection) and you can read other SharePosts and see how to sign up to do your own. I'm especially interested in growing the fibromyalgia and chronic fatigue syndrome communities here, so please invite your friends to join us.

I can really appreciate your love of dance and frustration at not being able to dance anymore. I've always loved all kinds of dance –– I started taking ballet at the age of three. But it's been a long time since I've been able to do anything other than the simplest movements. I still love to put on music and stretch and move as much as I can.

I look forward to seeing you here again –– and once again, welcome!

hi karen - as far as chronic fatigue , i am facing this issue from two sides .. i was dx'd in april of '92 and was able to work thru it at that time .. my ex and i both gave each other a break by adding an addtional day off during our work week .. i had an extended weekend and he had weds. ....

after falling ill again in april of 93, i was then told epps-barr syndrome .. who knew ?

these two issues at that time were unproven and just coming to light ..

it seems i am always getting something "not proven or factual" diseases just prior to being proven .. lol ..

resting too much is my main concern .. i get so tired and try so hard to stay alert .. so alertness is also another concern .. major , now that i am on my own ..

anyway , good question .. adrian