Chronic Pain

Hello Gang

It's already August and I think that a few of our memebers will be having an anniversary here real soon.

All our welcome to come on in and share, visit, vent or what ever you'd like.

Here's hoping for less painful days and new adventures through Fall.

Hugs
Betty

Good Night Daily Grinders

I'm sorry that I've not posted for the last couple of days. I was having a pretty good week, here at Sis's, but last night, Sis fell in her bedroom trying to stand Crissy up, as Crissy can no longer get up on her own.

I asked Sis several times, not to bed over and try to lift the dog up, to call me to come do it, but like usual, she did not listen and ended up in a pyle with her and the dog.

It was in the middle of the night last night and since the room monitor is not in her bedroom, I just woke up and could barely hear someone whispering my name, so I sat up in bed, sat still to listen and it scared me to death, as I thought Sis was out side with the dog.
I jumped up and hussled as fast as I can to search the house and out side, could not find her, then heard her call my name again and ran to her room.

She was on the floor on the oposite side of the bed, between the wall and her bed, laying on the floor. I sat down beside her and told her I needed to think for a minute and figure out how to get her up. I tried to get her to roll over and get on all four's like a dog, so I could get her top half up to grab onto the desk, but she can't put any weight like that on her arms and it was like she could not even move her legs to help me.
So I ended up having her put her arms around my neck and had to lift her to a complete standing, before she was even able to move her one leg to bare a little of her weight on it.

I'll not go into detail on how badly I'm feeling, my face is leaking today too and I just hope she sleeps tonight and does not mess with the dog any more.

I go home tomorrow, but first I have to make arrangements, as she's having her old doggie put to sleep, then I'm going to head home.
I'll try to post tomorrow, but who knows, it seems that it's normally the second day after I do somthing dumb, that is the most painful.

I am sorry that some of you are having such a rough time too. I can't wait to get home.

Love & Hugs, gotta get some sleep
Betty

Betty, why did you not call the paramedics to come and pick her up? That is what those burly people get paid to do. Just a thought.
Personally I am miserable. I cant go out and ride on the bus, train or even in the car without my neck pillow now and am in so much pain from the headaches I have trouble staying out of bed. Plus I am depressed! Gee I wonder why, grrr. I went from 3 days a week to 5 days a week with migrianes so bad I want to cut my head off and now all 4 headaches are angry with me it seems all the time. I simply cannot wait for the medical tests now. I dont care that my head will be shaved and a meter put in it. I want help and fast! Just trying to hang on. Thanks for being here all. Betty take care of yourself. You only get one you and you need to take care of that chickie. Me too that is why I am venting big time right now and then headed back to bed. I hope you and yours are feeling better. Wishing you pain free days and nights. Sophia

Hi pain peeps!

Betty, Betty, Betty... What are we going to do with you, my dear? I agree with Sophia: call the paramedics, call the relatives next door, call some other neighbor, call anybody!! You should not be lifting anyone! With that said, scolded really, how are you feeling? I just hope you don't end up in the ER. Please let us know, when you can, how you are. Ok? I know you are not only tired with your usual post-Helen fatigue, but hurtin' for certain.

Deb, I'm proud of you for many reasons, as you know. The most recent reason is for correcting that ridiculous doc report. I know you will do an awesome job on it and you are amazing for taking care of that! Good for you! I hope you are enjoying your kids and grandkids there. I know the added stress makes for more pain; but I know it is important for you to see them and for them to see their Nana! Wish I could have met them in person. Take good care of yourself!

Chuck, I hope your pain flare has settled down and that you are much more comfortable! Give your doggy a squeeze for me. How is your wife doing? Has she been out on her motorcycle? My husband wants one so badly. I'm sure he will get one eventually. Take care guy.

Sophia, I hope your headaches just chill out! Those sound completely miserable! Take care of yourself, too. Does your type of trigeminal neuralgia cause facial pain, too? I was curious because I saw a show on the health channel about that and the person had cheek pain. I'm sorry you have to have so many tests to find the problem. I'm sure we can all relate to some degree. Take care...

I heard from Deborama. She is supposed to have that surgery on her hip bone for the necrosis pretty soon. She is miserable and had a recent trip to the ER for pain that was out of control. So, I'm hoping for quick surgery date for her.

Well, I had lunch with a couple of friends today and sat in my one friend's other recliner while we watched P.S. I Love You. It was a pretty good movie. Anyone seen it? Pain is not too bad right now, but creeping up a bit, thus me lying down here in the zero gravity chair.

Take care everybody! Keep in touch...
ellie/Lynn

Hey all,
I know I am not one of the regulars on here but I was hoping to vent a little as well. I am out in CA for the summer doing an internship(my big leap at trying to not let my pain take over my life) and about two weeks ago I missed a few steps leaving the house I am living in and planted super hard on my bad leg. Ever since then, things have been pretty bad and I am out here with no way to manage my pain. In the end, I needed to go to the ER this past Saturday. And, suprisingly enough, I ended up with a very sympathetic doctor who gave me some medicine. It is actually amazing sometimes the doctors who have only met you two minutes before but who actually trust you.

On the other end of things, my doctor back home wanted me checked out by someone here for an x-ray and I went to that appointment a few days after my middle of the night ER stint- he was quite the opposite- he was arrogant and rude- and told me that I should suck it up and take advil.

I am going to see another doctor in CO- to see if he can fix the underlying structure of my hip. I have lots of doubts, especially since surgeons tend to just want to cut. And after all this time, the exhaustion supercedes the hope of it being fixed.

I hope you all are having easier times with pain and thank you all for listening

Hey there gwake!

Please feel welcome anytime! I'm glad you came to vent. We are here for you. Sounds like you experienced the up and the down of docs in CA. I think it is horrendous that the "bad" doc actually told you to suck it up and take Advil. For crying out loud! I tell you, some docs just don't "get it." Do you usually live in Colorado? Just wondering, because that is where I am. I hope you have a better time of it in the next few days. Nice job going to California to refuse to let the pain rule your life. Sorry it had a way of taking over again. You are brave! Hang in there.

Hey, Betty, please give Helen an extra hug for me next time you see her and tell her I'm sorry about her loss of her precious doggy. Please take care of yourself! Love ya!

Hi gang,

I'm checking in my latest news ... I will definitely be leaving the USA for Norway in early September.

I have plane tickets and everything else in order.

My fiance' has been living with me since the end of June. She also has Fibro/Chronic Pain like myself.

We are very supportive of each other and have no problems re: not being able to always be able to clean or cook constantly.

I'm doing fine at the pain clinic and will get a letter explaining my treatment in USA to help a Norwegian Pain clinic (or doctor) continue my treatments.

I'm happy for a change and I will drop in from time to time.

Mark :-)

Hello Dear Friends

It's been a very painful couple of days.

It was surely a very sad day at Helens, it was so hard to see my dear old friend cry so very hard. I felt helpless to help her and all I could do is hug/hold and let her cry. I already know there's nothing I can say to help her grieve over the loss of her old doggie. They had been together for 18 yrs and sis feels so lonely without her.

I could tell that Honey & Tater knew something was wrong and they really huddled up close to Sis and both licked and loved on her. They are such good little dogs and do their therapy work well.

I had my apt with my attorney this afternoon, it lasted for about an hour +. It went really well, I answered all his questions to his satisfaction and he feels very good about our hearing on thursday. Now I just have to rest till then and meet him at the hearing location in Portland on thursday around noon.
I just hope everything goes well and I'm done with this chapter in my life and can move on.

I glad to see & hear from some new & old faces this week. Everyones comments and vents are welcome and I'd like to say something to each one of you, but I'm exhausted and am heading to bed.

Thank you all for your words, suggestions and comments. The paramedics would of been a great idea, but I did not think of that till the next day. DUH!!! Thank you though for your suggestions.

Well, my body hurts and my mind feels foggy & groggy, so I'm going to go lay down with my pooches and snuggle.

Hugs & Love guys and thank you all for being here
Betty

Hi to all my special friends in pain and welcome to Diana and Sophia.

It sounds like you were a member of the Grind from a while ago,Sophia? ……….and know Chuck and Betty? I used to have very bad migraines daily. I tried all the meds suggested by the migraine clinic. My trigger was and is weather pressure changes mostly and living in the mountains as I do it changes quickly and frequently. I also had several types of headaches but it sounds like you have many more. I am so sorry. Strangely, the ONLY good thing about my severe chronic back and leg pain is that I started taking Neurontin which has almost eliminated my migraines completely. It was just a fluke thing but I am very grateful.

It is very late (2:30 am) and I am up due to high nerve pain and yes (Ellie or Gimpy or Lynn) it is from lifting my beautiful 20 pound, 6 month old grandson Nicholas one too many times. LOL I spent the first true summer day (today) in bed with a heating pad listening to all the boats and giggles from the children playing in the water from my bedroom. GRR But I am lucky to be able to be with my son's family regardless.

I have so much to tell you and to catch up on your postings but it will have to wait I guess…….only so many hours in a day and when to remove the ones in pain as being productive or fun. Since we all know our pain is 24/7, participating always comes with consequential extra pain……..so……..here I am. LOL GRRR

Chuck, it sounds like you are having just a miserable time with pain. Is it your newish back flare-up more than your leg at the moment?

I do wish I had a magic wand to take away all of our pain, if only to be able to rest completely for a night. My visit with Lynn was extraordinary. There was no awkwardness when we met for the first time and we were able to support each other through our REALLY, REALLY BAD PAIN. Lynn had a few of these and I only had one insane night of pain. We didn’t need to hide the pain from each other or explain it or apologize for it. This was very freeing and relaxing for me. I suspect it would be the same meeting the rest of you. We have shared so much of ourselves with each other that I am sure all of us would get along in person too. Lynn was so brave to travel all that way to see me. I can’t imagine flying at all, let alone the car ride to the airport and the waiting at the terminal. Thank you for coming Lynn. I hope you don’t suffer a setback because of your trip to my house.

Bless you all and I hope you will have an enjoyable Sunday with low pain.
All the best and cyberhugs,
DS Deb

PS. I posted this on Sunday morning but in July's forum. I was there tonight and saw Chuck was still posting in July and gave him a nudge message. lol

Nite time greets all,
Thanks to ds deb for letting me know that
everyone else had moved to august, so here I am.
I'm recovering from a bad bout of cramps/spasms
in my right leg, we've been having some really good
thunderboomers of late maybe that had something to
do with it who knows. It has left me kinda sore this
time.
Betty, hope Helen recovers soon. I know it's hard
on her loosing her old friend. Hope your hearing
goes good, try to focus on what you can't do. For
mine my attorney went in with and asked a couple
questions but, the judge did most of the talking.
It was all over in about 45 minutes.
I'm off to the heat pad, hope all of you are
having a low pain nite.
chuck

Good morning all,
Hope all of you are well.
Do you ever wake and wonder why??
Why do I have to deal with this every morning?
I worked all my life, served my country, took care of my family. I'm not looking for a pat on the back I just did what I was supposed to do.
But, do I have to wake up with this terrible pain every morning? Just one day with out it would be wonder full. Then you take the meds and they make ya drowsy all over again or nausea worse the 30 foot seas.
I hate to start the ranting but, it's gets OLD!
Thanks for listening....
chuck

Hi all of my dear friends. I am so sorry for my abscense. this has been one of the hardest personal things I have ever had to deal with, and I chose to withdraw into myself rather than share and vent. I am mad at myself for that when there is this beautiful group of sharing people here where I could have been releasing some of this stuff.

I have had 3 visits to the ER. The last was on Saturday. It was a piviotal visit for me. The pain was very severe, and the shots weren't even working. I was fortunate to have the ER doc call the surgeon and let him know how bad the pain has been. As a result of that I am going in on MONDAY finally for a core decompression. When part of the bone is "dead" there is a large amount of pressure within the bone that causes all of the pain. This is going to release it and allow new bone to regenerate to heal the necrotic area. I will be on crutches for 6 weeks.

There has been allot of tension with my husband and myself. As all of us know the chronic pain bit is hard on a marriage. He has been going out allot. It is getting boring for him sitting around with me and I am lonley.

I think of all of you all the time. I will try and drop in more often. I have to read back and catch up so I won't post individually for now.

Chuck my heart goes out to you. The mornings are awful for me too. It Takes me a better part of the day to get caught up with the pain, my better time is definately the night.

Bye Bye for now.
Debo.

Hey all,
Deborama- it sounds like you have had a rough time- but it does sound like you finally got a good ER doc who understood what you were going through. Good luck with the surgery- it sounds intense but if it relieves the pain, it's all worth it. And it is hard to find a way to relieve the tension between a spouse and another who suffers through chronic pain- can you watch a movie together or share a cup of coffee? I know it sounds ridiculous but who knows?

I've had a rollercoaster time myself but I spent some time tonight in a lot of pain but tried to dig through some stuff on rowing for my team that occupied me for a bit. Sometimes getting absorbed in stuff can be a great distraction, and distractions seem harder and harder to find. And I also know this forum is keeping my chin up, so thank you to you all
Plus, it's just about Thursday and the weekend is coming soon,
gwake

Good Morning Gang

I'm bathed dressed and ready to head for Portland. Rods in the shower right now and we are leaving in about a half hour.

I'm a bit nervous & apprehensive, but know that I've just got to get it over with. so here I go and I'll talk to you all later.

Please say a prayer for me and ask that my answers will be sufficient.

CU All soon
Betty

Good Evening DG Friends

I'm so relieved tonight and very thankful that today is done, I finally one my case and should begin receiving my paychecks within about 60 days.

I feel very blessed that the judge decided to give me a bench approval, so I was informed as to the outcome today before I left court.

I'm pretty much spent & in very high pain everywhere, but it was worth it this time, Its finally over and this was a very long 5 years since I applied

Debo; I'm so sorry for all your still going through, I know we expected things to be different and don't understand why they have not gone in your favor my dear. I know how tough this must be on you & your whole family. I will continue to pray for you my sweet dear friend and in hopes that this next sx might give you some sort of relief. Thank you for posting, I know how difficult it's been for you. We love you honey and hope your able to visit again soon, but do what you have to do and just take care of Debo. SMooch! Hug!

Gwake: I also wanted to Welcome you to the DG and let you know how happy I am that you've joined us. I hope we can be of some type of sounding board for you to vent to others who understand your pain and know how your feeling. I also hope we can be of some support for you as you continue on learning to live with this dreadful pain Condition that we all suffer from. Take Care of your self and post as much as you want or as often or little as your comfortable with.

Sophia; I hope your horrible headaches have eased up for you dear. I don't know how your migrain sufferers do it. I only have a migrain about twice a year, but most my headaches are sinus in nature and although I think they are bad, I know they are not nearly as bad as a migrain and I don't know how you survive with the cluster headaches and all the others. Have you went in for your recent tests yet or maybe that's why you've not posted for a couple days. I hope to see you soon dear heart and would like to hear how your tests went also.
We'll be here any time you need us.

DS Deb; I'm sorry for your extra extended pain also hon. I hope you can get to some days of relief too. I miss you sweetie and hope you visit again soon too. Love ya

Chuck; My sentiments exactly. Mornings are so horrible and make it so difficult to wake up in a good mood. I hope some low pain days are coming for you soon and thank you so much for the suggestions & positive remarks about my hearing. You really did make me feel more at ease over the past couple of years or since Dec 7 07 when you had your hearing. Yes, I remember the day still. LOL Can't remember what I ate yesterday, but for some reason I been couting the months for my hearing since yours buddy. And taking in every single comment you've ever made regarding your hearing too. LOL Thanks Pal.

Ellie; I'm so glad your trip to DS Debs went so well. I can't wait till I can go see her or have her come stay with me. (I'll wait a while so she can rest up, before I pop the invite question, Shhhhhhhh Dont tell her yet though). LOL I hope your getting excited to go back to school, but not feeling overwhelmed about it. I can understand if your having some anxieties along the way too. Hope it all goes smooth for you honey. Love ya!

Mark; So happy that you stopped by friend. It seems your norweigen (sp) is really going well, I bet it helps speaking it with your fiance while living together. I'm so happy that you both are together and have each other to love and support. Take care of her buddy! Being in love looks really good on you. hehe

Danielle; Sweetie, wish we could hear from you honey. I hope your job, pain, marriage and doggie are all doing well. I know your as busy as a beaver and don't have much free time, so please just know that we love you and miss you too.

Adrian; I hope life is going your way thesee days dear. Take Care of yourself.

Well Guys, I'm gonna go to bed soon, Rods home and I've not hardly seen him in weeks, so gotta go visit the hubster.

Good Night
Hugs & Love to all
Betty