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Okay, I think I just fixed the problem. We had some spammers for a while who (for some reason) kept using the word "police" in their posts. That was one of the trigger words. I deleted it, so it's no longer a problem. The only trigger left is the at sign to protect all of your privacy. Do you guys appreciate this security measure, or would you rather not have the trigger of the at sign? Let me know and we can discuss. I will also discuss this subject with HealthCentral. Thanks for your patience. Stacy
Hey Elise, No worries! All us of have days when we can't do it. Thats why this medium is so perfect, days you're up to it write about it, days when not you're up to it just rest. Other than that they're no requirements. I hope you had a good xmas even with your dental difficulties, I can see some of that on my horizon too. I've been putting it off cause I'm wimp when it comes to that. I've had surgeries, lumbar punctures, stitches to the moon, broken limbs, sprains but, sitting there at the dentist office just about makes me pass out. chuck
Greetings all, We're back to cold and overcast in southern ky, makes it feel like I have gravel in my joints. Naturally, I had to go to the pharmacy today and wally world was in full swing. It really gets me when folks take the handicap spots when they're obviously not. Mark, hope you recharged the batteries. Thats kinda my routine. If have a few days when sleep won't come, there will be a day we I almost shut down. As long we get to sleep every once in a while I geuss we'll make it I've fell into the James Patterson shelf at the library and it keeps me awake some, there's worse things VBG Betty, Fine on this end, we're enjoying the cold clammy weather. What would life be without a little gravel in the joints?? Glad your hubby's been home with you, my wife's been home for about a week she goes back to work saturday. It seems like the time passes quicker for me, our place is really quiet when I'm home alone. Some days that's the worst part for me.
Hi Chuck: Thanks for reading my post and your kind words of understanding. I wish you all the best in deciding when the time is right to address your teeth challenge, as its a real challenge, trust me! I really do love this site and I will be checking in and trying to post a daily note to all to share whats occuring and I do ALL of the posts everyone does write as well. I was a more social person, in the past but haven't felt good about myself and that others really would care until I was encouraged by Betty and Stacy. You all have been so kind on welcoming me and I have to say its a true honor to begin to feel apart of a group of fine people, which still fucntion in spite of their personal challenges! It is truly uplifting to me and I do from my heart thank you. I love getting to know each of you. I will be more forthcoming overtime as I do wish so much to share about life, current events and just whatever the topic may be overall. So, until later, please take care and I hope to be back later tonight or in the late night or morning.....I hope! Peace all! Elise
This message has been edited. Last edited by: spiritualdancer,
Posts: 28 | Location: Ft. Lauderdale, Florida | Registered: 12-07-2007
Hi Stacy, I appreciate the security measures but is there a list of what we cannot type on the blog? ... I agree with the need to have the triggers but it would be really nice to know what all of those triggers are ... would be less frustrating ... hurts when I type the same thing over and over again ... thanks!
Originally posted by chuckm11: Greetings all, We're back to cold and overcast in southern ky, makes it feel like I have gravel in my joints. Naturally, I had to go to the pharmacy today and wally world was in full swing. It really gets me when folks take the handicap spots when they're obviously not. Mark, hope you recharged the batteries. Thats kinda my routine. If have a few days when sleep won't come, there will be a day we I almost shut down. As long we get to sleep every once in a while I geuss we'll make it I've fell into the James Patterson shelf at the library and it keeps me awake some, there's worse things VBG Betty, Fine on this end, we're enjoying the cold clammy weather. What would life be without a little gravel in the joints?? Glad your hubby's been home with you, my wife's been home for about a week she goes back to work saturday. It seems like the time passes quicker for me, our place is really quiet when I'm home alone. Some days that's the worst part for me.
Chuck
Hi Chuck,
I go through the "home alone" thing too ... My better half, Audrey, works full time and is back in college. My 20 old son is going to the local college and also works at a Safeway supermarket ... my daughter goes to high school and she's a social butterfly... with all that being said, my 6 hours of sleep did wonders? ... I showered, put on my clothes, and was out the door at 9:30 AM ... went to see "National Treasure II--Book of Secrets" by myself at 10:20 am ... no one else had wanted to see it on Christmas Day, so I got to see it and forget about my troubles for a while. After which I did some walking and shopping near the Movie Theater ... it was a really nice day.
Being off of Sister Morphine and taking Marinol instead has given me a new lease on life ... I have appointments with my pain doc. and my Psychiatrist this coming week ... I want to see if they think that I'm well enough to return to work ... As posted in my intro several months ago, I suffer from PTS Disorder as well as deep depression (when I'm on Morphine).
As far as PTS--First, I was working across the street from the Pentagon on 9-11 (and wound up with shards of steel and glass in my eyes, which took about 6 months to heal). Secondly, my son beat up his mother/my wife (Audrey) and I had to deal with the police, etc. [he was institutionalized for a couple of times in two different facilities after the incident]--he's been on med's since he was diagnosed with "pre-frontal lobe" disorder. Thirdly, I live in the neighborhood (Montgomery County, MD) where the "Beltway Snipers" did most of their shooting. My favorite coffee shop and gas station were 2 of the locations where they did their dirty work ... I starting spiraling down so fast that I was ready to get into my pick-up and drive onto the Beltway during rush hour and hit my brakes right in front of a gasoline tanker ... I realized that any type of suicide would be destructive to my surviving loved ones and I realized that the death of the truck driver hauling gas would be a tragic mistake on my part (not to mention the damage I would cause to the poor guy's family). Sooo, I was off to the shrink who gave me oodles of anti-depressants (which I'm no longer taking) ... just taking my Marinol and Valium 5's ... hope to get off of Valium too as soon as possible.
I'm now a very happy contented person who realizes how good life can be and I'm past all of the stuff that made me want to kill myself.
Hey Mark, I'm really glad you found the marinol, sounds like it brought you back. I do hope you can return to work, that will be a victory by itself. It's hard to fill that tremendous void in one's life, it's a daily challenge. I'm glad you hung in and beat it. Your Friend, Chuck
You have all been busy campers today. So great to return tonight and see that everyones been busy and it sounds like most are doing pretty well, except my dear Elise and I will add your intentions to my Rosary before bed tonight.
I have had an unususally good day. It snowed all day long, was beautiful and still is a winter wonderland outdoors. We now have over 16" out there, my husband stayed busy nearly all day shoveling snow. He came in several times to put his clothes in the dryer, get something to drink or eat and then when they (him & the dogs) warmed up, they were all back outdoors shoveling snow and keeping our private road & driveway clear for our son to make it in after work. Our neighbor brought out his snow blower and helped Rod with the road, so that was a nice neighbor thing to do. Rod bought a new snow shovel last night while I was getting my message, so he could take care and make sure we had paths dug around our house, driveway, road, and out to the barn to feed & water the pig & cat. Kitty does not normally come in, he sleeps next to our pig or on top of our pig in the barn, but I picked him up off the patio and brought him in the house all night tonight so he could sleep in the warmth. He normally does not want to stay in that long, but he seemed to be content tonight, so we let him stay until he wanted back out again. He actualy likes to sleep with his pig, the pig puts off so much heat and the kitty likes to just snuggle with her. They have a mound of blankets in the barn, they snuggle in. I think my message last night was the best one yet. I came home and actually had to shut the puter off cuz I was too tired and wanted to sleep??? that never happens, I normally have to force myself to lay down and try and force myself to sleep. I slept better than I had in months, I woke up earlier than normal and felt refreshed more than ever. My pain has only flared once today, I spent a farely quiet day wathcing the snow fall and visiting with Rod when he came & went. It was a really nice low pain day for once in a great while. Just amazing to feel semi normal. I've had such trouble with fatigue, so I really needed to take it easy and recharge my energy. I'm feeling pretty well tonight, but hoping I'm not too awake, that I cannot fall asleep and go back to insomnia case. I just wanted to check back in tonight and see how my pain friends have fared today.
Mark; It's great to see you had a nice day aswell. You deserved it and I'm really sorry for all the stress that you had to endure. I had wondered if all that turmoil during that time frame had caused a great deal of anxiety and stress on people. You really answered my question. Wow! That was way too much stress for anyone. I'm very thankful that you were able to get help and I hope you continue to get well. Just don't forget about us We would be sad if you left us. I'm sorry for your hassles and hope they are over now.
Stacy; Thank you so much for checking in on us and helping Mark & the rest of us with the trigger words, symbals, etc. I'm really happy you've stopped by to contribute too. thank you dear heart.
Elise; Darlin, you are never going to break any rules. I don't even know about the Karma things, I've noticed them and think I may have a few Karma points, but I have noidea whats good or bad. Please don't worry about them. it's no big deal. I was not sure if you had a chance to read my first post when we started this group, so thought it might help to repost it here for you and set your mind at ease. It's a thread about Nothing, but about everything! I'd like to create a discussion where people would like to get a cup of coffee, tea or your favorite beverage and we all come daily or as often as we can and just discuss our day with others who understand us, will provide support, love and exceptance. None of us will pass judgement on you for your chosen topic to share or for the days your resting and are just not able to come here. You do whats best for you and when you return,we'll all be here waiting for you. NO PRESSURE about anything. Your not going to offend anyone or cause any problem. We comewhen we can and we are absent when we cannot come. You don't need to apoligize or worry that we are irritated or anything like that. Leave the judgement for the rest of the world. We're not about judgement or apoligizing for our disabilities. Your comepletely safe with us, so relax and know we care and want what's best for you. With that all said. I'm really sorry about your teeth, head pain is the worst. I had an abcessed tooth a few years ago and I liked to think I was dieing. Of course this was before my chronic pain began and I had no idea about this type of pain, but realized then that head pain is really bad and inteferes with everything including your thinking, eating, moving and just misery. I hope your able to get it fixed soon.
Chuck my friend; firs, what does VBG mean???? I'm curious?? lol I'm sometimes brain dead about these abreviations. I have a list of all the abreviations that the kids use in their text messaging, but I don't know what that one is. Anyway, I happy that it sounds like you've been able to spend some time with your wife. It does get lonely after several hours a day at home all alone and when you don't drive hardly and cannot get any joy out of shopping as it only increases the pain, then it gets lonely at home for several days on end. I get lonely too. I guess thats why I spend so much time online to help with my lonliness. I bet wally world was busy, everyones hitting all the after xmas sales. I have a gift card for Wal-Mart and I think I'll get me a carrying case for my puter when I decide to go shopping. But I'm going to wait, as after having to go shopping for several days in december, I've had all I want for awhile. I hope your weather is good enough for you to take your walk. I know how nice it is to get out of the house and take a nature walk. I cannot wait to take one as soon as our weather clears up too. Well, I've got a couple of things to do before bed, so I'll check back later or tomorrow. Since It's 11:17 PM here, I think it's really late or very early for you guys. Are everyone of you, but Stacy on East Coast time???or three hours ahead of me? That makes it kind of weird for me. My mornings are always late for you? Except of course when someones having insomnia or waking very early, then I'm just getting ready for bed.
See Elise, does not matter what time of the day you post. We're all on a different time zone, so it does not matter at all. We really don't mind anything and are just glad your here when you can.
Take care all Gentle Hugs and loving prayers Betty
We should always remember that Jesus will never let us be tried beyond our strength (1Cor10:13) You may be facing a situation right now that's pushing you to the limit. Just remember that your limit is the place where God works most effectively!
Posts: 873 | Location: Home in Washington State | Registered: 11-07-2007
Hi Everyone, Our normally 3 or so hour drive to get to my in-laws took over 5 due to horrid weather, snow, ice etc. The thing that sticks out in my mind the most, of all the tipped or crashed cars was the van rolled on it's side, wrapped in yellow caution tape like a present. It was eerie. Anyway, we made it safely there & back home. Home to more snow, & more snow again. I ache so badly when the weather is like this. Husband had his shoulder surgery. Turns out he has very loose ligaments like I do - what are the odds of 2 Ehlers-Danlos-hypermobility people meeting & marrying? LOL... Anyway the surgeon did a lot to repair hubby's shoulder & tighten it up with little peg looking things t hat will disolve in time. I am a rather anxious person & in the waiting room was a gentleman who struck up a conversation with me & then seemed to strongly suggest I go to a larger neighboring town to have my wrist stabilization surgery & anything else done. He had a bit of a horror story to tell, even being friends with the surgeon who was to do my surgery. So, I cancelled it. I did find out that a lot of my pain can be from EDS & not just bursitis or fibromyalgia. I get frustrated thinking everyone wants to type-cast my symptoms into some lable I already have. There is a concern by a friend of mine that I have MS, she says I have the classic symptoms. I've been on meds for a long time with no follow up blood work or anything, I hope I'm not getting kidney or liver damage or anything else. I've been so sick with stress & worry over hubby & all that I've lost some weight, if only the weight loss trend would continue! My son got his cast off & was put into a walking boot/brace still with crutches. I'm now trying to find out as much as I can about Ehlers-Danlos Syndrome-h & find an ortho-surgeon familiar with it who can help me. I re-injured my same ankle that I previously rolled, this time all I did was step out of our suburban. Things are going to be hard for a bit, being the one to carry things more & do more taking care of hubby so forgive me if my entries are sporadic. It's nice to see some new "faces" on here too. Hope all of you have a very wonderful new year. Love ya, be well & be blessed! P.S. sorry for whining you to death, call 911 for resuccitation, I'm done now.
~kat
Posts: 12 | Location: The Great Pacific NW | Registered: 12-11-2007
Dear Sweet Betty: I am just waking up this morning and getting my coffee! I have been having such a hard time these past few weeks with these teeth and my flareups with my FM and CFS just have made things worse. I think things perhpas maybe things are strting to stabilize a little bit. I am glad to be able to post and share here. I plan to continue to do so and will not worry any longer about why I have the pencil sign (icons)after my posts or whatever it is called, the delete/edit sign, (icon)any longer. I have way too many other more important things in my life to worry about and I would not ever say or hurt anyone on purposr EVER! To be totally honest, I was getting so frustrated about what was going on yesterday when Mark, I think, was asking for help as the computer was "acting out" or the system on chronic pain site and his questions did not get answered until Stacy I think kindly intervened. The questions I have asked about icons and posting have never been addressed so I will just move on. I can't stay stuck as I did for years with too many challenges daily to cope with and must remain positive while moving forward always as best as possible. I am glad things seem to be better on here now after yesterday's posts abut the computer glitches, I guess. As for me, my pain does make me more irritiable and coupled with the loneliness of the holidays, and the unexpected pain of the oral surgery on my teeth, and my usual, FM and CFS all together, have made for a challenging week to say the least. I was just not thinking how this could be productive to me and my daily routine, as I do not wish to be a "downer" to you all ever. If I ask a question and I do get frustrated with my computer and what things means about how to get around this site correctly, overall, with no forth coming answers, from the powers above, not you all here, I do get frustrated. I am so computer impaired anyway, and with little help available to me, I was going to sign off and not be a burden to anyone. hen I thought why should I do that as I do need friends ot share with and here about their lives as well. Its great here and the love of you Betty ad others whom I am getting to know are a God send to me. This very welcoming and kind forum I think encompasses, such with grace, honor and dignity for all. I do have my self respect and knowing sometimes, I am on edge, I will back away a bit and just post for prayers if that si ok. I do apologize as I am only human, I don't ever wish to be a burden to you all or the forumor world at large. So, I had thought until this challenging time passed, I would leave for a while. But that would defeat the purpose of the group. right? For about two or three days I asked several questions of a person and got no response, no names here and no one on this site currently and I did get letdown a bit as well but I will just move on. When they can I guess they will contact me. I am not a person whom needs instant gratification but I don't understand why someone can't respond unless they are very ill or involved in their own lives, which is fine but just say so. I felt finally, I would just move on as they must be busy or have a reason for no response to me. I am the most understanding person as I was a therapist for 25 plus years and the holidays are the worst times when people have chronic pain and conditions and even those with no aches and pains! So, I have a ton of compassion. Trust me there! I am a very independent woman and I am just not well right now. I do understand everyone has their own lives and situations to live and cope with and I will never be a distraction to anyone! I maybe felt I did not fit in. I totally respect answer should it be the case. I understand everyone has their personal lives and challenges to cope with and I do as well. I realize everyone goes through their own day "their way" OR as the old song goes, I do it "MY WAY" ! So, I will plan to still post, daily, and do the very best I can, and by doing so, it does bring all of you nice, caring souls into my heart, body mind and soul, in a profoundly beautiful way. I want to be very supportive of all YOU, as well. I hope I can be apart of your great group and feel more comfortable each day as time move on. I feel its a safe place for all to share and express themselves (somewhat freely) as it is monitored, and I truly do care very much how all of you beauty souls are doing each day. So, I do hope I have explained my feelings , from my heart well enough for all of you to understand me and my standing back a bit and I hope I don't mean to sound angry but I have been frustrated since the start as I never knew we were screen for every word we write. I can understand if they have to look for unstable people and that is a good thing to look, for but for trigger words, whatever they maybe, beside the email address, is all I know, which I don't know where to even find a list of those forbidden words would be nice to know and share with all of us. I would love to know why after all of my posts, I have a delete/edit icon but I can't let it keep me stalled and poundering forever..so I am over it! If you know, please do share with me as I would be so grateful as I never break the rules. I am a person with boundaries and would never do anything to go against the rules of any sites on purpose. Finally I do write lengthy posts and that is part of my medical condition, CFS and brain fog and I work hard to be more brief in my words, but its very difficult and I will try to do better with each day. I pray for all of you to have a great, less painful day, as I have one errand to run today and hopefully things will slow down and I can be more available to read and catch up here, which is what I would like to do very much. I love this site as it feel lke a great new safe place to express myself freely and read about all of your daily lives as well. God Bless you and be at PEACE! Love and fondness always, Elise
This message has been edited. Last edited by: spiritualdancer,
Posts: 28 | Location: Ft. Lauderdale, Florida | Registered: 12-07-2007
Dear bzmomfor: I am new here and wished to say hi. I just your read post. It sure sounds like you have been so much and must be as expected stressed and quite challenged, to say the least, while being put through so much in a short amount of time. I hope you can slowdown today and its great you could articulate so well all you went through and survived, while going through all of the things you stated. I, for one, feel better, "just letting it out" and expressing my feelings, and not holding them on, especially in an environment such as here, where you can feel people do care and do listen and read all you say and feel in your heart. It has been my experience thus far, that most everyone, here truly does care and never minds listening patiently to you and others, while sending you our prayers and best wishes for things to get better asap! I truly do wish you well and hope to get to know you better over time as our time allows. I do hope you get some much needed rest today and I'm praying for you to feel better very soon. Nice to meet you. PEACE, and best wishes, Most fondly, Elise
Posts: 28 | Location: Ft. Lauderdale, Florida | Registered: 12-07-2007
We would be sad if you left us.
I'm sometimes brain dead about these abreviations. I have a list of all the abreviations that the kids use in their text messaging, but I don't know what that one is. 
Chronic Pain Community 
