Chronic Pain

Hello my dearest friends in pain.

Boy, It's been a really long couple of days, for me and for my husband.

Hubbies been going into work at 2am and then not returning home until 8-10 pm the next evening, then going to bed for a few hours back up at 1:30 am and get reading to go back in and do it all over again. Today was his third day of this in a row and he came home tonight at 3pm and we watched a bit of tv, mainly dvr'd programs and then survivor and he is off to bed. Poor man looks out of it and I'm so glad that he is going to sleep all night like a normal man. He's done all this over time work with a horrible cold and has been running on alkaselzer plus day & night formula.

Of course I feel like a big jerk and am dealing with a Fibro flare and trying to take care of our animals, dishes & today had to change all our bedding, as one of the dogs got sick on something, so that was not good, but I got the bedding all washed and cleaned between laying in my chair and had just got the bed put back togehter when he said good night. Wheeew!

I'm just getting ready to head off to bed myself, I've got a message in the am and have to get my buns outa bed and go. I am looking forward to the message, but I'm also worried it's gonna make my FM flare more and be worse, it sometimes does that, but I'll just have to see.

I miss you all and Mr. Mark really made my day, it was so nice to get your video, I shared it with hubby, so he gets to know my friends faces, when I tell him how your all doing.
I was really feeling down today and I turned on my puter and opened an nice email video from mark and it really helped my day out. thanks so much Mark, it was so good to hear your voice and see your face. Thank you muchly!

Adrian, I know your right and I also know I cannot hide any pain from ya all. I rehooked up my camera tonight, and thought about creating some short videos' to you'all tomorrow afternoon. When I looked at myself today, I thought "Geesh, I have horrible bags under my eyes!" so I'll have to wait till tomorrow and see if they are any better. I'm having issues with my eyes running,so I'm not putting on make up for ya, it's just the way I look these days. It's been a tough winter.

Chuck; I'm so happy you got your puppy. I cannot wait to see your pictures, she is going to be so much company for you and as soon as she's big enough, you'll have to take her on your walks with you. You will really enjoy her alot. I would really be in tough shape with out our doggies and I love them all so much. She's going to make a great dog for you.

Well, I better let you guys go. I gotta go back to bed and hope to be on the road to recovery. It's wet, the pressure alarm was going off all night last night, as if I did not already feel the pressure change in every fibre in my aching body, it just had to keep riminding me of the fact.

You friends take care and I'll talk to ya tomorrow
Hugs
Betty

Good Morning all - Soooo glad to hear from you Betty, enuff said girl, but you had me concerned .. but I understand the fibro flareups very well ... this is why i want to get back to florida .. i can deal with the other stuff , but when the fibro flares up , man i am out of it completely .. migraines, ncek pains and basically my whole friggin' body aches ...

I never know what the heck is going on, having MS the symptoms intertwine .. and talk about brain fog .. yes, Mr. Marks' video was a great way to start the day .. gigggle .. he is a great speaker, dontcha think ? He could be a radio announcer ... and Heidi is as cute as a button , you are so right about her being Chucks' best buddy .. pets are always a great source of laughter , and believe me, when you are down, they respond with hugs ..

I noticed now we are all dog owners , one more positive thing we have in common .. and don't you worry about the bags under your eyes one bit .. if my looks the last few days didn't scare Mark off from video chatting , then you have nothing to worry about .. asides , we luv yas' !

I was up and down all night .. my subconcious was so over active .. I made a decision to move in with Mom .. we had a reasonable couple of talks , no yelling, about her situation and mine and determined we could help each other out .. as you know I have my place 4 sale, and by next winter want to be in Florida .. so instead of worrying about it any longer I figured since she is now going to put hers up for sale , the prudent thing would be to lease (if not sold) my place ..

This way I would rather give her money as she has cut so deeply into her mutuals , while we try to get her budget fixed and sell her home .. even if her place were to sell before I move down , I would still move in , we have a plan, and both of us can then not be alone , have a dinner companion , and save money ..

I have my Aunt & Uncle (dads' twin) right there in Ft. Myers, they will now have two of their daughters nearby .. and one is only 6 months younger than me .. born the same year , but I am the elder .. giggle .. which means I too will have more family there ..

I can go to the clubhouse and lay in the wramth of the sun, swim , use the excersize room , etc ... the dogs will have more freedom as the complex is huge and they have all these walkways and crossovers on the surrounding lakes .. just gotta watch out for snakes and gators ..

Mom can still play her card games, visit with her friends and do her thing, to include going back to work, IF she feels she wants to .. we will see , not gonna stop her, but if we can get expenses covered , hoping that she won't have to .. she did great on getting the stints put in, she is healing up just fine, and she has taken to the meds with no problems ..

One reason I am willing to go is that she now takes a med for the hypertension, which has calmed her down some .. and the other is that my bros are concerned that she won't listen to them .. well, I knew that, but by my moving in, she will .. and they won't have to worry about her watching her diet for the diabetes, or spending the money to visit .. shaking my head ..

I knew at some point I would end up taking over , but all my doctors' are there in Naples anyways .. so it just seemed logical ..

Ahhh, just stretched and heard that familiar snapping and popping .. felt good .. well I have an hour before I take my meds, so I will grab another cup of cawfee .. giggle .. that is my imitation of what's left of my Jersey accent , oh and draw (drawer, as in dresser) .. lol ..

TTFN

HELLO EVERYONE! I have deceided to go to a chiropracter again, and am wearing my tens unit 24/7 again, i figure it will help until i can figure out what to do or God gives me an Ah hah Moment?

I hope he does it soon, i really hate to go back on all the opiod meds again too But i cant take this pain some days i really hurt and i try so hard to work thru the pain But some days its impossible.

I try and rest around every 10 to 15 minutes or so the only relief i get is when i get completely off my feet and stretch out on the sofa or bed,

Brent o gave me another web site to go to maybe i will find another pain management Dr again, i have tryed in ther city nearest me and all the nuerologists phone #s are disconnected, what do you think God is telling me there???

Well got my computer fixed thank God this is my only release right now Thanks for all you Guys and Gals that listen you dont know what it means to me, Well

I guess i close for now i am trying to get high speed internet, phone and satellite together, everytime i call they say its not in your area yet, the only thing thats not is the phone line from Embarq they are about 100 yards from me, my friend has it two doors down, i guess its time for my daily call to them , i figure if i am a pest they will put it in jus to get rid of me Ha Ha. Love cherie

Hello Again Just got a call from my mom that my step dad is in bad shape, he has had parkinsons for around 15 yrs now he is down to 116 lbs low blood pressure and is anemic, went to the hemotologist yesterday got more blood work done they think he is bleeding internally and his chest xrays dont look good, i think he has lung cancer, my real dad died of that 30 yrs ago, and my mom cant live on her own, which means she has to live with one of us kids i would probley take her as i have the most room, except she and my spouse do not get along He goes for a Ct Scan next friday to see whats up PLEASE PRAY FOR THEM AND ME!!! Cherie Thanks

Cherie - you have my prayers ... agserra

quote:

Originally posted by cherie:
HELLO EVERYONE! I have deceided to go to a chiropracter again, and am wearing my tens unit 24/7 again, i figure it will help until i can figure out what to do or God gives me an Ah hah Moment?

I hope he does it soon, i really hate to go back on all the opiod meds again too But i cant take this pain some days i really hurt and i try so hard to work thru the pain But some days its impossible.

I try and rest around every 10 to 15 minutes or so the only relief i get is when i get completely off my feet and stretch out on the sofa or bed,

Brent o gave me another web site to go to maybe i will find another pain management Dr again, i have tryed in ther city nearest me and all the nuerologists phone #s are disconnected, what do you think God is telling me there???

Well got my computer fixed thank God this is my only release right now Thanks for all you Guys and Gals that listen you dont know what it means to me, Well

I guess i close for now i am trying to get high speed internet, phone and satellite together, everytime i call they say its not in your area yet, the only thing thats not is the phone line from Embarq they are about 100 yards from me, my friend has it two doors down, i guess its time for my daily call to them , i figure if i am a pest they will put it in jus to get rid of me Ha Ha. Love cherie

Hi - I hear ya .. you keep going, it's all you can do ... but if you need BT meds to ease the pain , take 'em .. you gotta break the cycle , mind/body/sprit are one, when one of them starts to fail and you do nada, the others tend to dissapate slowly ..

We haven't had the chance to know each other, I am usually great at giving short dissertations , read some of my past postings here and you may get a better idea of my thinking .. as well as Betty, Mark and Chuck ..

We discuss it all .. good , bad or indifferent .. if you can gleen one or two pieces of advice , it is s start .. and participate more, now that you have your computer running .. we don't bite .. giggle .. we may tease , or express our fears . or just report the weather .. but it helps to be consistant in anything you do in life ..

I read the next post and sent my prayers your way .. asking for guidance from God is what I count on, being able to be open minded to see the signs that lead you to the right path is what I pray for , and the strength to follow that path ..

All here have been wonderful in putting up with my short dissertations .. and the comfort we give will help you through , just stay with us a while , so the rest of us can get to know you better .. adrian

Afternoon All,
Man am I movin slow today, overcast and rainy.
Chasing the puppy around the house, now If I could figure a
way to tap her energy! I was up at 430 and didn't turn in til 1,
just couldn't turn it off for some reason.
Adrain, i agree ya gotta keep going. If I have to take meds to
keeo me moving so be it. If I have to take a nap in the middle of
the day I don't think about it much. Sorry, i couldn't help with
the music, still haven't figured it out.
Cherie, welcome back. Hope the chiropractor gets you some relief
it wasn't effective for me at all. My thoughts and prayers to you
and your family.
Betty, I just about keep bags under my eyes. Prolly from lack of
sleep. My wife's been on her 3 day on turn, 5a to 5p 3 days in a row.
Which means she comes on has dinner and to bed at about 8, so on her
days on I don't see her much. Daughter works 2 days 730a to 6p then 8p to 730a, it's interesting around here sometimes for sure.
Mark, the tax man cometh..I did ours in Feb and got a lil over 3 grand
back, very unusual for us. I geuss it was my being off work, I'm not looking forward to next year. SSDI is taxable after all, you'd think paying taxes on it once would be enough!!
Anyway, gotta try and do some dishes...
Chuck

Good Afternoon All,

As I was texting to Betty earlier: I was really busy helping my neighbor set-up (actually re-build) his broadband/wireless set-up … it took about 2 hours … there were many “Well DUH” moments mixed with Gomer Pyle moments (as in “SURPRISE, SURPRISE, SURPRISE, Sgt. Carter”) … however, after re-setting all of the pre-existing wireless settings on 4 windows machines (which I’ll call “Gates Mistake” and provide more reasons later in the post), the operation was a complete success … glad I was able to help, since he is a really good neighbor and has something none of us have (BRAINFOG, LOL).

Well more on “Gates Mistake:

Microsoft would like to build a new Operating System from scratch which they have already done (very recently) … they went back to the original windows code, actually the first “kernel” (if I use “Geek Speak” , not Greek Speak Adrian [hahaha]) and replaced it with a brand new type of kernel and have built the new Microsoft Operating System to replace Windows … the problem is that they won’t distribute it to the general public or businesses … it’s only being distributed to educational institutions, mostly colleges and universities … BUT this a great first step on their part, since if I can be honest here, Windows S_CKS!

I’m back from town now and I’m available if anyone wants try out their webcam setups (hint, hint, hint).

Mark

Well, good day all

I'm slightly recovering, but I got up at a normal hour 830am and then had to take a nap at noon too. I'm still having my flare, but I think it's better today than the past few days, so once again she survives another one. lol

Cherie; good to see you again. If I could use the chiropractor I certainly would, but they won't touch me, too much liability. I'm really glad that you've gotten some relief out of the tens unit, but sounds like you'll be needing a bit more help and I think that's really understandable with the amount of pain your experiencing.
I'm sorry to hear about your step father. it sounds like a really rough time for your mother too. I'll add you all to my prayer booklet and keep you close in my thoughts.

I've had a fairly restful day. Rod came home and he brought some yummy halibut steaks (it's Friday again) He brought me a piece of my favorite carrot cake from our grocers bakery. It was really sweet of him to remember it for me. I'm so glad that he's off all weekend and can be home with me and the doggies.

I also had my telephone apt with my pain doctor at 3:15 pm and it went well, she told me I needed to use more discepline in my activities (pretty much the same as your all telling me too) but she also understands how great it is to have less spinal pain since I've been down all winter. She also said I was really doing a good job, as most of her patients like me, are not very active and she can't get them to do anything at all, she just thinks I need to learn to pace myself better. Which is true!

I gotta admit to Mark, that I too have been giving my relationship with Helen some serious thought, but then last night I read a horror story on another site, that a pain patient had with a regular Home Care Giver that she pays and they don't show up on time to give her her meds, change her patch and all kinds of horrible stuff and I just cannot give Helen over to a regular caregiving service, as I cannot stand the though of her being abused by anyone. It's a longer story and she used to have a neice that told the rest of the family she was taking care of Helen, but she never even stopped by for weeks at a time and she continued to tell her family she had taken care of Helen, so they don't stop to check in on her and when she says anything about the neice not coming over or doing anything for her, they just think Helen has dementia and don't believe her, as the neice swears up and down she's been there every day. But in reality, shes not stopped in over a month. So her lie really is bad for Helen and injures her to both ways, as other members would check in on her, if her neice did not make them all think that she's there every day. I know this is true, because her other family members have asked me what exactly I was doing for her, since Debbie has everything taken care of?
I just could never leave my dear friend & her doggie to the lies & abuse or neglect she would suffer in that situation.
I know you'll understand. I just need to not try and get everything done in one day and it would be nice if one of her other family members could take her to a few of her apts, but since I normally need to know what's going on, then I need to be there anyway, atleast with the doctors visits, as I take care of all her meds and I've let another family member take her before and they did not even get the questions answered or a leg wound taken care of, that were the spacific reason she went in for the apt. So that doesn't work either. Alot to think about though and I thank you Mark for your concern, I know it's well meaning and I thank you.

Chuck; I've just got to get over to your space and check out your little Heidi. Cute name too. She'll keep you busy. Hows she sleeping at night? Some times little babies don't sleep that great the first few nights, I hope she is sleeping well for you though.
I can't wait till you can take her on your walks.

Adrian: thanks hon for checking in on me, I'm moving slow today, I started this post about 3 hours ago, but my phone apt, hubby came home, visited with him for a while and now I'm finally back at it. I just cannot think about two things at once right now, so typing and talking is out. lol
Still foggy & fatigued, but I'm better than yesterday & day before. I just can't believe it's friday already.

Hugs to you all, It's alwasy a plesure to hear your wonderful words.
I'll be praying for your faily Cherie, you take care and it's really good to have you back.

Talk to ya all later
Betty

Happy Saturday All,

I’ve been reading everyone else’s shared postings and you all have put me to shame, since I’ve hardly posted lately.

I’ve overlooked a few things and would like to respond to them now.

Chuck, I’m glad that the taxman has been good to you this year … I’m expecting a nice refund too … seems like once you stop working and your spouse becomes the only wage earner, the refunds get bigger … it sure is awful that big bro is taxing SSDI … have you written or called your congressperson to voice your opposition? (just a thought)

Betty, I’m sorry about the situation with Betty … you have a heart of gold and I can relate better now to your predicament … maybe, the solution(s), as you have stated include breaking down your day with Helen into a couple of days plus delegating some of the chores to a member of Helen’s family (that is one of the more reliable ones).

Adrian, I like the way that you fit me it without directly mentioning me in one of your shared post.

I hope that you guys plus anyone else (Cherie?) has a great day today!

I’ll drop by later,

Mark

Good Day Pain Friends

I'm feeling alot better today, but have still been taking it easy. It seems if I get moving too quickly, I'll find myself back down in a worse flare than before. So I'm still taking it easy and allowed myself to still sleep in today. My poor husband is off, but because of his dreadful schedule, he's exhausted and been sleeping in his chair all day. So needless to say, I cannot even try a video chat or the ringing will wake him up and I want him to get his rest.

It's raining, cloudy, and very dreary here today. We could really use some sunshine and I'm sure it would help get me outa this dreaded flare. I'm really glad that hubbies home and resting. He really needs it. He's normally a really healthy runner, weightlifter type, so I'm expecting him to get very crabby and impatient with being sick. I'll have to use the opportunity to share what It's like to be me, in pain & feeling perpetually sick. Of course nicely and not to irritate him more.

I went and checked out Chucks new features on his site, left him a few comments and enjoyed the pictures too.
I'm going to get to you twos sites and get them checked out too.

How is everyone else today? I hope you all are too busy and are having fun activities and spending time with family.

I'll check back later
Thanks Mark, U have a great day too!

Hugs
Betty

Hi people .. the temps are dropping and with the high winds we have been having problems all day .. I may have to shut down , as the usrges , for what ever reason are not great for my whole system .. giggl e.. or the computer's .. lol

Mark, sorry about not having that chat .. maybe we can try another time earlier in the day .. so you all rest .. stay warm .. while I get blown off my feet later .. giggle .. wish the winds were warmer, then it wouldn't feel so icky .. adrian

Late Night Greetings All,
Been Lind of a long day for me, we've had rain and cool temps
yesterday and today. Feels like broken glass in my knees and lunbar.
That with the overcast just kind a zapped me I guess.
Hope all of you are ok.
Tomorrow will be a better day.
Chuck

Hi Chuck - sorry you are feeling so awful .. guess it is a typical changing of the seasons , but because we have these chronic pain issues the slightsest change hurts .. so i empathize with how you are feeling .. stinks anyway ..

Miss Betty - you rest up, and I am sure that you will come up with a better solution than giving up your care for your friend , I would just ask for a little more help , cut back as the doc says .. and really get her family involved more , even if they have to get a part-time care giver ..

I received in the mail from Secure Horizons , a card that would allow me discounts on dental, in-home care and a few other things .. maybe there is s program near there that can help out , like people from her church , aside from you .. just some thoughts ..

Mark - sorry about the chat last night, the winds were so gusty , I lost cable twice , so I just shut her down .. not good for the sytem, maybe we can give it a try to day ... when you have the time and I am not sleeping .. giggle ..

have to look at the weather yet, when I brought her back up I came straight into the mail .. so now I will go see what's up, horrorscopes and such .. giggle .. ttfn

Good Morning All,
Hope you had a restfull saturday night.
Having had morning meds I'm working on
some coffee, helps with the fog.
Somewhat sore this morning, to be expected I
geuss. On a good note i received my new walking
shoes yesterday, it's like walking on pillows!
I've always had trouble getting shoes, haven't
been able to where walmart or kmart shoes in a
long time. I ordered the latest pair from
Mason shoes. Hope fully I get to try them
out today with a walk in the sun.
I'm off for more coffee
chuck