Chronic Pain

Well, Good day Gang

I'm up late (as usual)but feeling ok, got up took some meds, drank some jo and after an hour or so, I'm feeling pretty decent. I really wish I cold get up as early as all of you, but I think I'm going to have to just face the fact that my body takes a long while to fall asleep and for some reason I just don't fall into that deep sleep till the rest of the world is up & moving and I am just beginning to sleep. When I review my diary, I see that the days I just let my body tell me when to wake up, are the days that I suffer the least pain & far less fatigue. So, I'm just saying Good Mornin guys. I think our time diffence really makes me sleeping in seam really bad though. lol

I'm sorry about yesterday, distractions, hubby home, had to go down and fix Helen's tv/sat system, etc. This time, I made her fix it, as I coached & explained verbally. I am trying really hard to teach her and have not tried this tactic yet, so we'll see how it goes.

It's raining today, but we had a couple of beautiful sunny days, so I'm not too bitter about the rain today.

Adrian; Had to laugh, I have one of those doughnut pillows in my puter chair at my desk top. lol before lappy, I had to really beef up the chair, so I could get maximum time at the puter, as sitting in there was painful, but my only outlet.

Iv'e never heard anyone talk about the eye issues of Fmer's. I'm really sorry for Mark's eye issues. I've never really talked about my own eye issues, but since it's kind of in our topic, I'll add to them. Some FM patients have problems with this dry eye thing. The biggest reason I did not post yesterday and only sent a small email, was because this silly dry eye problem was really bad, it's so uncomfortable, I did & itch & scratch at my eyes, they feel like I have sand or gravel in them and the only thing I can do is rinse them with saline, put in artificial tears and every night before bed, I put in the ointment kind of artificial tears and then my vision is like looking through mucous and every thing is very distorted, blury and I just have to keep them closed and hold the moisture in. Yesterday afternoon they started bothering me, so I took something for allergies first, used allergy eye drops, continued to have them bother me all evening and finally had to hit the hard stuff.
So, I was unable to read your posts yesteday afternoon/evening so I did not want to try to blindly type somthing up and waited till I could read everything & catch up.

Mark; My upmost concern for your eyes, it is such a bother and annouance. You did not mention whether it was uncomfortable, but I can imagine that it surely must be. I actually thing it even causes headaches too, as mine can create this dull headache and discomfort. I'm truely sorry for you & especially the reason You have acquired this condition. I'll not go into my thought on 911 here though.
Mine is not nearly the problem your is, but I sincerely have empathy for you buddy.

Chuck; I hope you & little miss Heidi are doing well, I can imagine how much activity & fun she's brought to your day. She's going to hae such a wonderful family & home at your house and I bet Mrs. Chuck is so happy to have a new dog too. She's the horse lover, so I'm assuming she's an animal person too.

Well friends, I'll leave you all for now and get myself dressed before 3pm. lol Pain is lower and I'm really feeling pretty well today.
Oh, yes. About the satellite! I'm sure you've all heard the saying? If it sounds too good to be true, then it probably is! Well, I'm just saying that I'm glad I never filled any online forms out and gave them any info, there is some types of scams out there and I believe I ran into them. But I continued my hunt and am now looking into; Wild Blue Satellite Isp
I'll give an update later.

Hugs around
Betty

Well, it's past 8 PM over here,

Betty, you having me re-thinking about whether or not I have FM or not ... I've read all of the symptoms before, and now with the eye thing being a symptom, I'm almost convinced that I have FM ... and Yes as far as feeling pain (since my eyes are always hurting).

It's been a high-pain day for me, so much so, that I had to take my break-though (BT) meds today and it's helped take the edge off ... I just don't want to make a regular thing out of using BT meds.

I haven't gotten too much done today except for taking Chappie for a walk ... I have that long ride tomorrow to the Philadelphia area, so maybe it's for the best that I didn't do all that much today ... well, I'm getting my clothes out for tomorrow and planning on heading to bed early, since I've got to be up and at 'em pretty early in the morning.

I wish you all a great evening,

Mark

Greetings All,
The rain continues here in whitley county, flooding watches all over the state. Supposed
to clear out tomorrow so key your fingers crossed.
Heidi does keep me busy, we're a lot more puppy
proof than we were! The house training is fun too.
Mark, be safe on your trip to philly.
Betty, was that a scam or a bundle??
I'm going back to the heating pad for a while..
Chuck

quote:

Originally posted by Mark:
Well, it's past 8 PM over here,

Betty, you having me re-thinking about whether or not I have FM or not ... I've read all of the symptoms before, and now with the eye thing being a symptom, I'm almost convinced that I have FM ... and Yes as far as feeling pain (since my eyes are always hurting).

It's been a high-pain day for me, so much so, that I had to take my break-though (BT) meds today and it's helped take the edge off ... I just don't want to make a regular thing out of using BT meds.

I haven't gotten too much done today except for taking Chappie for a walk ... I have that long ride tomorrow to the Philadelphia area, so maybe it's for the best that I didn't do all that much today ... well, I'm getting my clothes out for tomorrow and planning on heading to bed early, since I've got to be up and at 'em pretty early in the morning.

I wish you all a great evening,

Mark

Hello Friend Mark

You know it's really weird that you say this. Earlier when I was catching up on reading everyones posts, I read your's when you name all your specialists you see and were explaining your doctor situation, I was struck by something you said and that feeling & wondering thought went through my mind too. I did not think of mentioning it at the time, as I figured you would probably know or something. But when I think of your own story into & through pain, I'm brought to many different thoughts on your pain. My chronic pain began after 2 very traumatic life altering events and in many cases this is the traumatic situation that unknowingly causes changes to our central nervous system and cause it to stop responding properly to pain & pain sensations. This does not mean that pain is in our heads, as it's very real, it's just a new study that they are finding to be true in alot of pain patients, not all, but alot.

Interesting! Hmmmmmm
Have a safe trip to philly and Maybe we can talk about this when you get home.

Take care friend
Betty

quote:

Originally posted by BettyBoopToo:

quote:

Originally posted by Mark:
Well, it's past 8 PM over here,

Betty, you having me re-thinking about whether or not I have FM or not ... I've read all of the symptoms before, and now with the eye thing being a symptom, I'm almost convinced that I have FM ... and Yes as far as feeling pain (since my eyes are always hurting).

It's been a high-pain day for me, so much so, that I had to take my break-though (BT) meds today and it's helped take the edge off ... I just don't want to make a regular thing out of using BT meds.

I haven't gotten too much done today except for taking Chappie for a walk ... I have that long ride tomorrow to the Philadelphia area, so maybe it's for the best that I didn't do all that much today ... well, I'm getting my clothes out for tomorrow and planning on heading to bed early, since I've got to be up and at 'em pretty early in the morning.

I wish you all a great evening,

Mark

Hello Friend Mark

You know it's really weird that you say this. Earlier when I was catching up on reading everyones posts, I read your's when you name all your specialists you see and were explaining your doctor situation, I was struck by something you said and that feeling & wondering thought went through my mind too. I did not think of mentioning it at the time, as I figured you would probably know or something. But when I think of your own story into & through pain, I'm brought to many different thoughts on your pain. My chronic pain began after 2 very traumatic life altering events and in many cases this is the traumatic situation that unknowingly causes changes to our central nervous system and cause it to stop responding properly to pain & pain sensations. This does not mean that pain is in our heads, as it's very real, it's just a new study that they are finding to be true in alot of pain patients, not all, but alot.

Interesting! Hmmmmmm
Have a safe trip to philly and Maybe we can talk about this when you get home.

Take care friend
Betty

Hello Friend Betty,

I was looking in Wilkpedia FM Symptoms

and I pasted the following excepts--(1) Trauma (2) Problems with Sleeping and (3) Brain Fog are definetly addressed here ... (we do have a lot to talk about when I get back from Phillie)

“Fibromyalgia has been commonly referred to as a "stress-related disorder" due to its frequent onset and worsening of symptoms in the context of stressful events.[45][46] It was therefore proposed that fibromyalgia may represent a condition characterized by low levels of central dopamine that likely results from a combination of genetic factors and exposure to environmental stressors, including psychosocial distress, physical trauma, systemic viral infections or inflammatory disorders (e.g. rheumatoid arthritis, systemic lupus erythematosus).[47] “

“Chronic sleep disturbances are also characteristic of fibromyalgia. Indeed, studies suggest that sleep disturbance are related to a phenomenon called alpha-delta sleep, a condition in which deep sleep (associated with delta EEG waves) is frequently interrupted by bursts of brain activity similar to wakefulness (i.e. alpha waves). Deeper stages of sleep (stages 3 & 4) are often dramatically reduced.”

“In addition, many patients experience cognitive dysfunction (known as "brain fog" or "fibrofog"), which may be characterized by impaired concentration and short-term memory consolidation, impaired speed of performance, inability to multi-task, and cognitive overload.[24][25] Many experts suspect that "brain fog" is directly related to the sleep disturbances experienced by sufferers of fibromyalgia.[citation needed]This conclusion was based on three key observations: (1) fibromyalgia is associated with stress; (2) chronic exposure to stress results in a disruption of dopamine-related neurotransmission[48]; and (3) dopamine plays a critical role in modulating pain perception and central analgesia in such areas as the basal ganglia[49] including the nucleus accumbens[50], insular cortex[51], anterior cingulate cortex[52], thalamus[53], periaqueductal gray[54], and spinal cord[55] [56].”


Mark

Good Mornin My dearest friends

Everyone seems quiet this am, so I'll go ahead and make my am entry. smile
I'm up a bit earlier this am, I went to bed early last night at 9pm, thought maybe I could get to sleep earlier and possibly get up a bit earlier. lol, well, I don't think 1 hour counts as much earlier. I still did not actually fall asleep till 3am, so I'm wondering if there is any point to try.

I had a difficult time getting logged in here this am, every time I logged in, the site booted me over to My Migraine section???? I think I've looked around over there once, but have no idea why the site would do that. so if some of you are having troubles, let me know by email and I'll try to contact someone with the athority to help fix this. Since Mark is the only one who has made a post this am, I'm thinking it's possible that you guys may be having some trouble?

I'm feeling alright pain wise, so I'm just going to try and pick up around here and do a few things today. I have numerous emails to filter through and make responses, so if any of you have emailed me, I'll be getting some responses out today.

Warm & loving friendship thoughts to you all
Betty

Hey there - good evening or afternoon .. wherever you may be .. I just havn't had anything to post , am just mind boggled lately ..

I have an opportunity again to get to Florida , earlier , and not to my Moms' ..

My 3 bros don't think it is a great idea, while they woudl have all supported me , all not all, they didn't like the idea at all ..

They feel I am an enabler or co-depenency type person .. they feared for my sanity and finally spoke up .. so my friends have their place waiting for me, in May they go back to MI .. and I can have the place from that point on up to Oct .. in which to live and find my own place ..

My boggle is telling my Mom I will not be moving down, for personal reasons , as discussed once before about my mom .. I would be definately setting myself up for nothing but aggravation ..

My bros know I mean well, and just felt I need to enjoy and have a life .. and leave the situation my mom created by herself for herself to deal with and come to terms with .. they are happy I will only be a few hours away , but am glad that I was told how they really felt .. cause deep down, I kinda knew I was doing what I always did .. come to someone elses rescue and forget about what I want ..

My bros John and Andy will talk with her , John said he will tell her and Andy said he will back it up and that it is best if she concentrate on getting out of the home and quickly as possible .. so far since her and I talked she has postpponed listing and is doing her back paddling on how to figure out how to stay put ..

She was telling me of refinance, and telling me she would sell the house "by owner" and was supoose to do a few others things which she has backed off doing so , I could sense she was up to something other than planned .. and I simply canot afford to make this move and have her change up on me .. also get myself into a really stressful situatuin as she is not hearing what I am saying ..

So i havebeen especially fatigued and boggled , and as Mark said , just plain tired .. the never ending winter is also a factor .. as it has been so chilly now, as we went from freezing to chilly , it still creates a muscle pain level that sometimes is unbearable ..

Okay, enuff complaining, and let me add , that I am truly blessed by ALL my family and freidnds .. each one that sends a prayer makes me stronger and weaker .. it's hard to explain, but there are just days where you want to left alone and not think, as this constant headache is frustrating ,, and o=now the ex wants to come up to visit the dya of my MS appt .. ouy .. I am gonna emaila and tell him it's been cancelled .. as he nears 60 , he needs me .. well, he should have thought about that long ago , and not treat me like crap .. all those years of ignoring me and blamig my illness and seeing other women ..

Each time a group email goes out , he ends up contacting me .. and the emmails aren't from me .. and the peope , "my JUdas'" , probably mean well, but I no longer tell too many of my thoughts , or plans ..

I a sorry today , I am in a state of disllusionment , and do not want to make the same mistakes I always do .. God had lead me this far and has laid out the path, i=why is it so difficult to follow ?

Gonna make some chicken soup for this darn cold , and relax .. like I have a choice ...

Saturday Evening Greetings All,
I've been feeling kinda blah all myself, misty
rain in the 50's just dreary and cool. I've just been laying around on the heating pad and
taking it easy. Hope you all are ok.
Adrian, I think if you listen to your inner
voice you'll know it's the best thing for you.
Sounds like your bros know the score, there's
nothing to feel guilty about looking out for
whats best for you.
Just some thoughts
chuck

Well, thank you Chuck, feeling blah myself .. just sitting around also .. hope you feel better soon and stay warm .. again thanks for your support .. HI HEIDI !

Well, it's 10 PM in Maryland and I just got back from a 7 hr round trip to Phillie ... the time actually spent there was so brief that I didn't even have time for a Phillie Steak Sandwich-LOL

I'm sort of exhausted right now, so I'll catch up with the latest thread in the AM.

Have a great evening all,

Mark

Well Good Evening my Special Friends

I wanted to let you all know, that I've started a New Daily Grind for April in the Off Topic area and would like us all to begin using that one as soon as you read this one.

See you next door
Gentle Hugs & Warm Thoughts
Betty